Discussions By Condition: I cannot get a diagnosis.

19 yr old Thoracic Outlet Syndrome (TOS)??? or Raynaud Phenomenon

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: lilbuddy0515
  • November 25, 2009
  • 06:02 AM

19yr old female that was injuried in a softball game 3 yrs ago. I fell on my right extended shoulder. After this injury my shoulder "pops"in and out when I place my hand behind my back. My doctor disregarded the noise and the pain was mild only like muscle aches due to playing the sport. 1 year later I began to feel my arm tingle and become weak anytime it was raised above my head. Then in Nov 08 I began to notice my fingers would become cold and numband the pain felt as though I had slept right on top of my shoulder. After 4 MRI with contrast and without they discovered in one of the slides a possible labral tear .I passed a doppler and a nerve test and went to a neurologist.No one has given me any answers!!! No one can explain the poping noise and the numbess they associate with RaRaynaud's Phenomenon-but my fingers dont lose pulse and dont turn blue?Also thoracic outlet syndrome was another diagnosis but it cannot be determined. So I have been a taking muscle relaxers and went to PT but the symptoms come back and also in PT it was discovered that 2 of my ribs were out of place and I cannot explain that since I havent had an injury since then. I need to know if there is anyone else out there that has the same types of issues?

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  • Hi there!I have primary raynaud's and I dunno, it doesn't really sound like what you are experiencing. Raynaud's is stress and temperature related numbness, swelling, and cold/heat. For example, when I get cold my hands overreact and shut down blood flow to my fingers as if I am on Mt Everest, causing numbness and discoloration. I call it "dead hands". When upset, my hands swell up huge and turn red and itchy. That is generic, standard primary Raynaud's.I bet yours is something pinched or maybe a.tendon or burstia issue. I would see a chiropractor or sports medicine if I were you.19yr old female that was injuried in a softball game 3 yrs ago. I fell on my right extended shoulder. After this injury my shoulder "pops"in and out when I place my hand behind my back. My doctor disregarded the noise and the pain was mild only like muscle aches due to playing the sport. 1 year later I began to feel my arm tingle and become weak anytime it was raised above my head. Then in Nov 08 I began to notice my fingers would become cold and numband the pain felt as though I had slept right on top of my shoulder. After 4 MRI with contrast and without they discovered in one of the slides a possible labral tear .I passed a doppler and a nerve test and went to a neurologist.No one has given me any answers!!! No one can explain the poping noise and the numbess they associate with RaRaynaud's Phenomenon-but my fingers dont lose pulse and dont turn blue?Also thoracic outlet syndrome was another diagnosis but it cannot be determined. So I have been a taking muscle relaxers and went to PT but the symptoms come back and also in PT it was discovered that 2 of my ribs were out of place and I cannot explain that since I havent had an injury since then. I need to know if there is anyone else out there that has the same types of issues?
    chachibobinks 3 Replies
    • November 29, 2009
    • 03:52 PM
    • 0
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  • 19yr old female that was injuried in a softball game 3 yrs ago. I fell on my right extended shoulder. After this injury my shoulder "pops"in and out when I place my hand behind my back. My doctor disregarded the noise and the pain was mild only like muscle aches due to playing the sport. 1 year later I began to feel my arm tingle and become weak anytime it was raised above my head. Then in Nov 08 I began to notice my fingers would become cold and numband the pain felt as though I had slept right on top of my shoulder. After 4 MRI with contrast and without they discovered in one of the slides a possible labral tear .I passed a doppler and a nerve test and went to a neurologist.No one has given me any answers!!! No one can explain the poping noise and the numbess they associate with RaRaynaud's Phenomenon-but my fingers dont lose pulse and dont turn blue?Also thoracic outlet syndrome was another diagnosis but it cannot be determined. So I have been a taking muscle relaxers and went to PT but the symptoms come back and also in PT it was discovered that 2 of my ribs were out of place and I cannot explain that since I havent had an injury since then. I need to know if there is anyone else out there that has the same types of issues?I have Thoracic Outlet Syndrome and it's exactly as you describe it. My shoulder also can dislocate. Took them two years to figure it out, but the test was so simple. It will take another person to help you. Stretch your bad arm at shoulder height then bend your forearm up at the elbow. Have the other person get your pulse and keep their fingers there. Then slowly swing your arm out to the side and back aligned with your trunk. If you have TOS, you'll lose your pulse when you bring your arm back. Fixing it is simpler. You must do exercises to keep the outlet open. Go to a corner and place each hand at shoulder height, on each of the walls. Push in as if you're doing pushups. The point is to make the muscles behind your neck as strong as the ones in your chest. One part of your shoulders is probably stronger than the other part and as it pulls the other part closed, it closes the outlet too. Hard to explain but that's what it is. Had the exact same symptoms - fingers freezing like frostbite though it's 80 degrees and 100% humidity......yep....that's it.
    Anonymous 42789 Replies
    • November 30, 2009
    • 03:59 PM
    • 0
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  • 19yr old female that was injuried in a softball game 3 yrs ago. I fell on my right extended shoulder. After this injury my shoulder "pops"in and out when I place my hand behind my back. My doctor disregarded the noise and the pain was mild only like muscle aches due to playing the sport. 1 year later I began to feel my arm tingle and become weak anytime it was raised above my head. Then in Nov 08 I began to notice my fingers would become cold and numband the pain felt as though I had slept right on top of my shoulder. After 4 MRI with contrast and without they discovered in one of the slides a possible labral tear .I passed a doppler and a nerve test and went to a neurologist.No one has given me any answers!!! No one can explain the poping noise and the numbess they associate with RaRaynaud's Phenomenon-but my fingers dont lose pulse and dont turn blue?Also thoracic outlet syndrome was another diagnosis but it cannot be determined. So I have been a taking muscle relaxers and went to PT but the symptoms come back and also in PT it was discovered that 2 of my ribs were out of place and I cannot explain that since I havent had an injury since then. I need to know if there is anyone else out there that has the same types of issues?What you are describing sounds extremely similar to my problem, except I am not a softball player I am a rower. In 2008 I started to develop symptoms but it wasn't until May 2010 that the doctors discovered my true issue. I have Thoracic outlet syndrome in both my left side and right side. I did all kinds of physical therapy for several months but I never got any relief from that. Finally my doctor told me I needed my right rib removed (he now thinks I may need my left one removed too). Now that may sound scary but it really changed my life and my surgery for my right side has been an utter success. If I were you I would look into finding a thoracic surgeon and make an appointment to see him and to talk about your symptoms.
    Anonymous 42789 Replies
    • November 1, 2010
    • 04:20 PM
    • 0
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  • Go to a Gonstead Trained Chiropractor. A lot of Chiropractor's say they are Gonstead trained because they go to a seminar but they are not. Go to the Gonstead website and find one in your area. Its worth the drive to go to one. You needs to have the bones put back into place to relieve the pressure on your nerves and spine. Pure common sense. 19yr old female that was injuried in a softball game 3 yrs ago. I fell on my right extended shoulder. After this injury my shoulder "pops"in and out when I place my hand behind my back. My doctor disregarded the noise and the pain was mild only like muscle aches due to playing the sport. 1 year later I began to feel my arm tingle and become weak anytime it was raised above my head. Then in Nov 08 I began to notice my fingers would become cold and numband the pain felt as though I had slept right on top of my shoulder. After 4 MRI with contrast and without they discovered in one of the slides a possible labral tear .I passed a doppler and a nerve test and went to a neurologist.No one has given me any answers!!! No one can explain the poping noise and the numbess they associate with RaRaynaud's Phenomenon-but my fingers dont lose pulse and dont turn blue?Also thoracic outlet syndrome was another diagnosis but it cannot be determined. So I have been a taking muscle relaxers and went to PT but the symptoms come back and also in PT it was discovered that 2 of my ribs were out of place and I cannot explain that since I havent had an injury since then. I need to know if there is anyone else out there that has the same types of issues?
    Anonymous 42789 Replies Flag this Response
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