Discussions By Condition: I cannot get a diagnosis.

17 Year Old Daughter

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • December 26, 2006
  • 03:45 AM

On September 11th of this year, my daughter woke up complaining of a sharp pain in her right side underneath her bottom rib. It was so sharp that she was having a difficult time breathing for a few moments. We went to the doctor and he did a blood test to check for appendicitis and it came back normal. She still had a 24 hour pain in her side and the doctor thought maybe she was having some bowel problems. A few days later, her pain got so sharp that she started having more breathing problems so we took her back to the doctor. He did an emergency CT scan but saw nothing once again. We decided to go for a second opinion. My daughter went to a different doctor who told did another CT scan of her upper chest, more blood work, multiple x-rays and an ultrasound. In the ultrasound it showed that there could be a possibility of fulid around the liver. In the CT scan in said there was an azygous lobe or normal variation and a calcified granuloma on her lungs but they should pose no threat. We went to a gastrologist who said it wasn't her liver, and a pullmanologist who said it wasn't her lungs. The doctor said her blood work came back fine except that she was anemic. My daughter has gotten weaker and sleeps around 18 hours a day. She has missed most of her senior year because she has been in so much pain and doesn't have the energy to do anything. (yes, she was tested for mono twice) She has lost about 20 pounds in the past 2 months. She is still in constant pain in her right side, and it has lately moved to her left side too. When she wakes up, her finger joints on her right hand will be swollen up. We are back at square one and don't know what to do next. She takes aleve every 8 hours but it's not helping much. We live in a town of about 55,000 people. Should we go to a bigger city with better doctors? Please help us!

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9 Replies:

  • AHave you had any progress? Have they checked for granuloma type diseases like sarcoidosis?
    erobbins 5 Replies
    • February 12, 2007
    • 03:26 AM
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  • Have they checked to see if she had anything wrong with her gallbladder? If there was fluid around the lungs that could be Pheumothorax which is fluid built up around the lungs,and can be deadly if not treated right,hospitalization is normally a high possibility. It seems to me that she has some sort of cancer though. with all the symptoms you have described,you need to get the doctors to check her for cancer. I have been having similiar symptoms and they have did every test they possibly can on me and they all have came back normal. i still have not found out what is wrong with me. maybe you could get them to refur her to a surgeon so he can do exploritory surgery. that should help!
    Anonymous 42789 Replies
    • February 12, 2007
    • 05:49 AM
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  • they checked the gallbladder and nothing appearedHowever, they checked her ANA levels and they were high so they re-ran that test. Her RA test came back negative. We are waiting now to go to a pediatric rheumatologist.
    Anonymous 42789 Replies
    • February 12, 2007
    • 05:52 PM
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  • Abdominal pain, calcified granuals, rapid weight loss, anemia, chronic fatigue, joint pain... Have you heard of/considered Celiac Disease? Does anyone in the family history have similar conditions, or any generalized digestive problems, psychological or developmental syndromes, or unexplained chronic rashes? Its something the immunologist should be able to test for in the blood, by looking for a type of IgG or IgA antibodies ( I think IgG is more specific these days). Other conditions known to give a positive ANA test: Sjögren’s syndrome, Scleroderma,Raynaud’s disease, juvenile chronic arthritis, or antiphospholipid antibody syndrome.
    Azaral 152 Replies
    • February 12, 2007
    • 07:55 PM
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  • There is also Lyme disease and co-infections like Bartonella and Babesia - and many more. Blood tests are very poor for these infections and don't be fooled by a doctor who says they are accurate. Even the CDC says they are unreliable and diagnosis is clinical based on symtpoms. Antibiotics are needed to kill the bacteria.
    Anonymous 42789 Replies
    • February 13, 2007
    • 01:02 PM
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  • thanks. We will be going to an immunologist next wednesday.
    Anonymous 42789 Replies
    • February 21, 2007
    • 06:37 PM
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  • I am currently 38, but at 18 I had the exact same symptoms. Within 2 yrs I had started having colonoscopies every 5 yrs. All found benign polyps. I had similar symptoms of fingers swelling, so much so that they itched and tingled. What cleared that part of the problem up was a diagnosis of hypothyroidism 6 mos ago. I had been "borderline" for 20 yrs . Prescribed synthroid .025 then doubled to .05 three months later. However abdominal pains continue and I am currently awaiting an appointment to have pill cam done as they have run every other test available. The colonoscopy came back as few polyps but benign, endoscopy was the same, bloodwork up showed thyroid levels off and anemia. I have been anemic for most of my adult life so that didn't surprise me. The barium swallow test showed suspicious lesions in at least 5 places thus the PillCam test. The diagnosis at this time is polyposis. Celiac Disease as mentioned in a proir post is a type of polyposis. The concern now is that of cancer and advanced cancer at that. These types of symptoms do not usually appear until late stage or metastisis of liver, pancreas, or lymph nodes. Please believe I am not trying to unduly scare you. I am only saying that it could be really serious! Do not stop pushing the Drs until you get an answer. The sooner the better. Even if it turnes out to be nothing serious, you will not regret it. I hope the best for you both.Lesa
    Anonymous 42789 Replies
    • February 21, 2007
    • 09:00 PM
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  • we took her to the immunologist. Her white and red blood count were low. Her C3 was high. Her ANA levels were high. Here Anti-DNA count was borderline. Her SED rate was normal. No tests showed any type of parasite infection. The doctor thinks she might have a mild case of lupus. He put her on Plaquenil and that helped her fatigue and swelling a little but pain is still there. Yesterday he put her on a type of prednisone since she was in so much pain. We go back May 4th. I am not 100% sure that the doctor has diagnosed her correctly.
    Anonymous 42789 Replies Flag this Response
  • Get to a doctor, maybe a diagnostician, at the best major hospital in the nearest big city. Have they explored the kidneys?
    shouldabeenadoctor 5 Replies
    • August 10, 2011
    • 08:54 AM
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