Discussions By Condition: I cannot get a diagnosis.

17 doctors later and no Doctor knows my disease! Help!

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Yoda123
  • September 9, 2012
  • 07:17 PM

I'm suffering and need help. I have a massive health problem and have seen 17 expert doctors(Yes, seventeen!). Help!

About me:
6 feet 7 inches (200cm tall)
291 pounds
Attractive face
Well formed body (except for some slight obesity)
Medically confirmed to be a genius
Extremely knowledgeable
Terrible at sports
Unable to move without extreme fatigue
Good humor
Quit my job 3 weeks ago because I can't take it anymore

Hypoglycemia since 2009, but only when I move or if I wait too long to eat (blood sugar crash at the slightest physical movement: walking, pulling, lifting, bending over).
Extreme weakness since 1998 (weakness lasts all day long and gets much worse when hypoglycemic). Movement makes me so tired and weak.
Extreme fatigue since 1998 (I've tried sleeping 90 days in a row and never felt rested).
Vitiligo on my ***** since 2011 (white patches).
White pubic hair since 2011 (that fell out at one point and grew back white).
Testicles produce little testosterone since forever.
Obese on mid section since 2000.

Diseases that I do have confirmed medically:
Hypogonadism (low testosterone)
Delayed puberty
Vitiligo on *****
Hypoglycemia (only when I move or do not eat often)
Elevated neutrophiles

Diseases that I think I have:
Iron excess

Diseases/syndromes that have been medically checked and that I DO NOT HAVE:
Cushing's disease
Klinefelter syndrome
Obsessive compulsive disorder
Being a crazy person

Diseases that I am in the process of checking:
Addison's disease (on the 17th of September 2012), I've been told my cortisol is fine by 2 endocrinologists, they told me they are 99% sur I don't have cortisol deficiency.
Epstein Barr virus (Blood has been drawn, results in October 2012)
Sleep apnea (Will go in October 2012)

Health problems in family:
Brother falls asleep all the time, even while driving, he has just destroyed his second car because he fell asleep at the wheel on highway.
Father has Vitiligo on hands.
Mother has bad knees.
Cousin and uncle are allergic to many foods.
Sister is deadly allergic to wheat (but not gluten).

Drug I take:
Delatestryl (testosterone enanthate) 120mg every 5 days (since December 22nd 2011). This fixed 20% of all my health problems.

What's my disease? I need help! Please!

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