PLEASE READ I AM SIXTEEN YEARS OLD IT IS LONG BUT I NEED HELP ON WHAT IS WRONG WITH ME. It would mean alot to me:) Please Help:)
About five years ago when I was in grade six I began to develop joint pains. This was something new and I had been extremely active when this started happening. I was playing sports almost every day and I was the athlete of the year for my school.
The joint pains bothered me but they weren't enough to stop me from playing, they just made me very sore after exercising. The joint pains started to get worse the next year and soon I had to cut down on playing sports. I would miss practices because my knees hurt. I went to physical therapy but it did not help. I was also becoming very inflexible.
Soon after I started becoming increasingly tired all the time. It was extremely difficult to get to school on time because I would be too tired to get up in the morning and felt very unrested.
I began to develop headaches and concentration problems at school. Previous to this time, I was a straight A student who was passionate about school. I loved doing homework and when we had testing, my teachers recommended that I skip a grade!! I was at the top of my class every year.
As soon as I started being tired and having headaches and concentration problems, my marks began to drop. My teachers noticed a change in me and informed my parents. This was in grade 8. Unfortunately at the time my parents were splitting up so this made everyone think I was depressed and that what was causing everything.
As the year went on I got worse and worse regarding my health issues. I was playing rep basketball but I hardly ever participated in practices because of the joint pains and fatigue.
In the summer of grade 8 I had a horrible time. I could no longer play sports for a long period of time because of the joint pains and fatigue. I started to develop sleeping problems. I noticed that I had to urinate alot in the night and i would wake up constantly.
My concentration problems were so bad that I couldn't figure out what I wanted to say. My memory was shot and I didn't know why. I also had TONS of muscle spasms! Mostly on my thighs, legs and buttox.
My grade 9 year started and I was doing very poorly in school. I was late everyday and forgot about homework all the time. I couldn't focus in class and would not be able to remember what we did when I got home.
My eyes were becoming very sensitive to light and at home I would get watery burning eyes. I moved out of my room because I noticed it was mostly happening in my room, washroom and the basement. I had no idea what was causing this though.
My parents took me to a Neurologist to try to find out the cause of my headaches. He examined me and everything was normal so he gave me migraine medication and anti-inflammatories to see if that helped.
I was put on an anti-depressant because my parents thought I was depressed again and that was causing all the issues.
The headache medication given by the Neurologist did not help. It only numbed the headache a tiny bit which was enough to keep me going to school.
I was missing school because of the headaches and that combined with the anti-depressant allowed me to feel good enough to go to school even though my health was in very poor condition.
I started getting blurred vision and could not focus what so ever on anything. I had to quit all sports. I was getting very weak and everyday I felt as tired as the night before. My bottoms of my feet were very sore especially in the morning when i got up!!!!! We saw a chiropractor and naturopath but none of it solved my problems.
We were then referred to Sick Kids Hospital in Toronto to see another Neurologist. The Neurologist realized that my health problems were more joint pains than headaches. The joint pains came first so they decided to test me for Rheumotological diseases and everything they could think of including Lupus and Rheumotoid Arthritis.
It all came back negative and they didn't know what to do. They gave me another anti-inflammatory that I had already taken and sent me home!
I did have tests that were abnormal such as low B-12, high ferritin and liver abnormalities but they could not explain it.
I was so sad and i looked everywhere on the internet to see if I could find something that the doctors didn't try. I discovered Lyme Disease and I thought that this was it.
I sought after a Lyme disease doctor after my family doctor tested me and it came back negative. I knew all the controversy behind the testing so that did not discourage me and I looked for an expert dealing with Lyme.
I found a doctor in Toronto who was a family doctor that had experience dealing with Lyme Disease. He tested me and it came back negative again. He gave me Amoxicillan anyways to see how I would react to it.
I started taking the Amoxicillan and after a few days I began to feel 100 times worse! The joint pains were so bad that I could barely walk. This feeling lasted for a few weeks and then in the last week I started to feel less joint pain.
We went back to the doctor and he said that this could mean that I have Lyme Disease and he gave me a second trial. In the second trial I got worse again but never got better.
He then put me on Azithromycin and Plaquenil. This made me feel worse than better for a few days. During this time that I felt different I was at my grandparent's house. We went back to my father's home and I began to go back to my normal amount of pain.
I was still getting the burning and watery eyes ONLY at my father's house. I thought this may be due to a mold problem in our home because there was a history of water leaks in our home in the past.
We got a mold sample taken from our basement and it came back positive for two species of mold (Aspergillus and Penicillium). My father said he will get the carpet changed sometime but didn't really take it seriously.
I was put on a second trial of Azithromycin with Plaquenil and I did not improve. We went back to the doctor and he basically gave up on me. He said that he tried everything he could think of and didn't know what was wrong with me.
I had an "indeterminate" bartonella test and asked him what this meant because I already had very sore soles especially in the morning which is a common symptom of Bartonella!
He said that some tests read it negative or indeterminate and he had already given me the Bartonella treatment anyways.
I asked why I got worse on antibiotic treatment and if that means anything else than Lyme and he said it could mean alot of things????? WHAT?
I am now very depressed and not going to school because I am too sick. I don't see my friends because I am too tired and weak to have any fun anymore.
My life sucks now and all my parents say is they want me to talk to someone about it. I have already done that and it is a complete waste of time because therapists have no idea what is happening to me.
It's not depression, it is physical pain. I don't know what to do anymore. I think that the reason I got worse but not better on the antibiotics is because there is a mold problem in my house? Can mold keep me from beating Lyme disease if I have it or do I have something entirely different that nobody has thought of yet?
PLEASE HELP ME I AM ONLY SIXTEEN AND MY PARENTS HAVE NO CLUE WHAT TO DO
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