Discussions By Condition: I cannot get a diagnosis.

15 years of crohns symptoms and still no diagnosis - can't live on painkillers!

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Wantobhealthy
  • June 30, 2012
  • 02:39 PM

Help - I am 38 years old and have spent most of my adult life dealing with excessive diarhea, bloating, nausea, accompanied by bine loss (bone density test reveals osteoporosis - not osteoarthrits - levels!), ever-present scalp and nose sores, and episodes of severe pelvic pain above the belly button (so severe it feels like labor contractions) and general lack of energy. I've had 3 CAT scans which all report impressive inflamation and possible fissure, indicative of Crohns. Yet, further tests are normal. After the last CAT scan, I had laproscopic surgery (only 8 hours following positive CAT scan, however everything looked normal! My appendix was removed as a precautionary measure. Symptoms still present, and my gastroenterologist tells me I am "stable" even though I am taking painkillers (ultram) 2-3 times per week.

This is no way to live. My nutrition is suffering due to the diarhea, nausea and general dislike for food, which frequently is the onset of symptoms.

Anyone have any suggestions for alternative medicine or possible rare disease causes? Thank you!!

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6 Replies:

  • Try diet advised by Dr Sarah Myhill site.
    Flyskyhigh 5 Replies Flag this Response
  • My friend had similar symptoms that lasted for a year, and no Dr. could diagnose it. I asked her if they ever checked for parasites, and she said no, but she will have them do it. After nearly losing her life with her kidneys starting to fail, and constant bowel problems, they did find that it was due to parasites from her water. They treated her and she quickly recovered.Also, many years ago, there was a gal that had years of gastric pain, diarhea and fatigue, someone told her to have them check for parasites, and that's what it was. She also quickly recovered with treatment.It might be an avenue to check into and get this behind you...Good luck!Miss G
    missg2u2 8 Replies Flag this Response
  • I agree with the parasite thing the other person suggested. A good doctor that has many articles and has stories of people being helped from various diseases (including Crohns) by being treated for parasites is Dr Simon Yu. He is nationally known, I recently went to him myself. His website is www.preventionandhealing.com
    Anna123 4 Replies
    • August 20, 2012
    • 02:35 PM
    • 0
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  • One more option I just learned about; wheat intolerance! I am reading a book called "Wheat Belly", by Davis MD, William, which explains how any form of wheat can cause severe reactions. Infact, one of the authors patients was told by her gastro. that she has to get her colon removed. He said, before you do that would you be willing to try one last thing? Just try complete wheat elimination for 6 weeks and see how you feel. She did and came back to him many pounds lighter, and her colon was healing with no more cramps, diarhea, or pain. She never had to get her colon removed! I have just started the wheat-free life and it's not hard to do. You'd be amazed of all the problems, including arthritis pain, wheat causes. I got the kindle version of this book on Amazon. You just may want to try it if there's nothing left but pain pills..Yours in health,Miss G
    missg2u2 8 Replies
    • August 21, 2012
    • 02:03 PM
    • 0
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  • I posted something yesterday to you but don't see it yet. If this shows up I'll repost my other message.
    missg2u2 8 Replies
    • August 22, 2012
    • 01:17 PM
    • 0
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  • I'm guessing your gastroenterologist will have already checked for coeliac disease, but it would be worth checking that has been ruled out.
    claireredhair 4 Replies
    • August 29, 2012
    • 09:36 PM
    • 0
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