Help - I am 38 years old and have spent most of my adult life dealing with excessive diarhea, bloating, nausea, accompanied by bine loss (bone density test reveals osteoporosis - not osteoarthrits - levels!), ever-present scalp and nose sores, and episodes of severe pelvic pain above the belly button (so severe it feels like labor contractions) and general lack of energy. I've had 3 CAT scans which all report impressive inflamation and possible fissure, indicative of Crohns. Yet, further tests are normal. After the last CAT scan, I had laproscopic surgery (only 8 hours following positive CAT scan, however everything looked normal! My appendix was removed as a precautionary measure. Symptoms still present, and my gastroenterologist tells me I am "stable" even though I am taking painkillers (ultram) 2-3 times per week.
This is no way to live. My nutrition is suffering due to the diarhea, nausea and general dislike for food, which frequently is the onset of symptoms.
Anyone have any suggestions for alternative medicine or possible rare disease causes? Thank you!!