Discussions By Condition: I cannot get a diagnosis.

15 mo. old & always sick

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: NEENEE
  • February 19, 2007
  • 05:25 PM

:confused: This little girl is always sick. She has a milk intolerance (will get a rash went she drinks milk), has eczema, and acid reflux. She has had these problems from the day she was born. She constantly has ear, and or sinus infections and lots of chest and nose congestion - along with a fever. She is sick more than she is well.

Receintly she has been in the hospital with dehydration and diareha. The fairly new thing that has been happening is that she will occasionally wake up with purple hands feet and lips and they will be cold even when she may have a fever. Her lips look like she ate a grape popsicle! She has been to the Dr. several times for illness and once now for her purple hands, feet and lips. The Dr. couldn't explain that problem and sent her home.

The last few days she has been sick with cold like symptoms again! On Saturday she was running a temp. and was purple again, but she was willing to play a bit happily. That night she was in the ER. They had her on iv fluids and under an oxygen tent. They say she has RSV, but that doesn't explain her purple hands feet and lips.

Does anyone have any ideas about what could be giving her cold like symptoms all the time - and more troubleing is the new symptoms of turning purple?

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4 Replies:

  • hi, I would have her checked for a heart condition, next time her hand/feet/lips go purple take her to the ER and ask them to do an oxygen saturation test (a little clamp like thing they put on the end of fingers/toes) this will measure her blood circulation. My 16 month old son has Aortic Valve Stenosis (he has a slight deformity of the aortic valve in his heart) and I was told by his pediatric cardiologist that if his hands/feet/lips ever went purple to get him to a hospital as these are signs of poor blood circulation.I hope this information has helped, hope she is better soon. Kitty K (>"<)
    kitty k 31 Replies
    • February 20, 2007
    • 11:27 AM
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  • Get her to another doctor immediately. If the first one sent you home, he was not doing his job! Don't stop until you get REAL answers. This is not a normal condition, and it could be serious.Best wishes.DOM
    acuann 3080 Replies
    • February 20, 2007
    • 02:41 PM
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  • Thanks for the imput so far! She is on day 4 at the hospital now and had a rough night last night. When she lays down or sits back the alarms go off because her oxygen level is too low. She can't go home until she has a full night without needing oxygen. She's restless being confined to her room, but the dr. decided to let her out of bed to play today. She seems to act like she feels better (just weak), but the tests say she isn't any better.Any other ideas or imput would be great! Thanks a bunch!!!
    Anonymous 42789 Replies
    • February 20, 2007
    • 04:53 PM
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  • What tests have they done? Anything - MRI, CT, Xrays? Blood tests? They should be doing all of these tests, especially checking her heart for small holes or other dysfunction. Has she had a stool workup done? This could tell if she may have parasites, or other problems...isn't likely to cause the oxygen inbalance, but may explain immunity problems like candida. What meds is she currently taking? Was she taking anything at the time of the purple problems? Please think back as this is important. Best wishesDOM
    acuann 3080 Replies
    • February 20, 2007
    • 06:28 PM
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