Discussions By Condition: I cannot get a diagnosis.

14 year old Daughter has had fevers daily since Oct. 2006

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: zwolfcub
  • February 1, 2007
  • 00:15 AM

My daughter has had fevers ranging from 100 to 103.8 since Oct. 2006 on a daily basis.. She has had so many tests and still nothing.. She has been on 4 bouts of antibotics. She is extremely tired on some days and others, she seems ok but her fevers still exist..Her tummy hurts all the time and she gets headaches. She bruises very easily too. Her chest hurts alot too. :( Her Dr. called today and said her Epstein-Barr test came back positive, one of the blood test.. Anyway so I looked it and I dont see cronic fevers anywhere and no fever lasting this long.. They are sending her to a ENT Dr and Gyneogolist. I feel they are grasping because non of it makes sense.. Any help would be great, thanks so much..

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12 Replies:

  • When I had mononucliosis (epstein-barr), I spiked a fever everyday for 4 months. 4 months of 103.5 at 4pm. I remember it clearly now 30 years later. No fun.
    Anonymous 42789 Replies
    • February 1, 2007
    • 01:18 AM
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  • http://www.cdc.gov/ncidod/diseases/ebv.htm
    Anonymous 42789 Replies
    • February 1, 2007
    • 01:25 AM
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  • Has she been tested for Lyme Disease and its co infections?? Thats another possibility.
    Anonymous 42789 Replies
    • February 2, 2007
    • 11:56 PM
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  • My daughter has had fevers ranging from 100 to 103.8 since Oct. 2006 on a daily basis.. She has had so many tests and still nothing.. She has been on 4 bouts of antibotics. She is extremely tired on some days and others, she seems ok but her fevers still exist..Her tummy hurts all the time and she gets headaches. She bruises very easily too. Her chest hurts alot too. :( Her Dr. called today and said her Epstein-Barr test came back positive, one of the blood test.. Anyway so I looked it and I dont see cronic fevers anywhere and no fever lasting this long.. They are sending her to a ENT Dr and Gyneogolist. I feel they are grasping because non of it makes sense.. Any help would be great, thanks so much.. Ok my Dr. just gave her valtrex for her epstein-barr. Can anyone tell me why on earth would she get this? I looked up the meds and its says for herpes.. I called the Dr. and the nurse said she doesnt have that then why did I get valtrex meds? Can anyone shed a light on this? thanks
    zwolfcub 2 Replies
    • February 3, 2007
    • 08:01 AM
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  • Please, get your daughter to an alternative practitioner! When your Western docs are grasping at straws we alternative practitioners can offer lots of help... Doctors often prescribe medications to treat conditions other than those the medicine was originally designed for...this is a slippery slope, in my opinion as there hasn't been any studies on efficacy of side effects. Please try a different approach. An acupuncturist, naturopath, homeopath would be worth trying. Due to her antibiotic use she needs to be taking a good quality PROBIOTIC. You can find one at the health food store. She needs to build up her intestinal flora - this will build up her immune system and help her fight this virus. Hope this helps.DOM
    acuann 3080 Replies
    • February 3, 2007
    • 06:48 PM
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  • Herpes is another type of epstein barr virus - I guess they figure if it works in one it must work in another? Get her probiotics like acuann said!
    Anonymous 42789 Replies
    • February 4, 2007
    • 00:01 AM
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  • Thank you for all your help and I am trying everything that you have all written, I just hope something good happens, thanks..
    Anonymous 42789 Replies
    • February 5, 2007
    • 05:19 PM
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  • Another thought about your daughter is get her to a Immunologist/rheumatologist to rule out those disorders. Epstein Barr can be a false postive in some of the Rhematoid dieases such Lupus, especially since you said she bruises easily. Her chest hurting could be pleurisy. Alternative medicine should only be used in conjuction with regular traditional medicine. Until you know what is you are dealing with, you should use traditional medicine.With any antibotic, I myself suggest daily yoguart or buttermilk to replace the normal stomach bacteria that is wiped out with antibotics, but at this point I think antibotics are worthless. Does she have any non-itchy rashes or a reddness over the bridge of her nose? Autoimmune dieases such as Lupus are underdiagnosed because it mimics other disorders. Please get her to a rhuematologist and explain to them all of her symptoms and if possible all her blood work that has been obtained up to then. There are several forms of Autoimmune dieases that fall into what you describe. If she did not have any other sypmptoms up until the time she developed a fever, it is possible she might have a "drug induced" lupus from the medications. There are certain drugs that could trigger it. You may want to ask your doctor if any prescribed medications could trigger a lupus syndrome. If so, once she is off the medicine she will be fine. Please keep searching for a diagnosis. I went 15yrs without a diagnosis and because it went so long, I have chronic problems now from the accumulative damage. Lupus is a very difficult and underdiagnoised diease.
    Anonymous 42789 Replies
    • February 5, 2007
    • 10:49 PM
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  • Thank you so much for all of your advise.. Lupus did stick in my head as well as Leukemia... I appreciate all you have said and I will check into it.. Thanks again... Robin
    Anonymous 42789 Replies Flag this Response
  • Ok my Dr. just gave her valtrex for her epstein-barr. Can anyone tell me why on earth would she get this? I looked up the meds and its says for herpes.. I called the Dr. and the nurse said she doesnt have that then why did I get valtrex meds? Can anyone shed a light on this? thanksHi, I just want to let you know that I'm a 25 year old female and I have Epstein-barr. I do not have herpes as everyone thinks of herpes in the dirty manor, but Epstein barr, as posted by someone already, is a member of the herpes virus family. If you look up antiviral medications, you will see that Valtrex is made for specifically breaking down types of herpes viruses, which also include shingles, cold sores and etc. My doctor just put me on it as of today because of constant battles with reoccurring fevers. I also have the headaches and I am constantly coming down with something, run down ...the works. The antiviral (Valtrex) is being used as a prophylactic deterrent to other illnesses and also as a combatant against the Epstein-Barr, which can reek havoc on a person, let alone a 14 year old girl. I understand your concern about the medication and I will let you know that when I told my mother she freaked out, as anyone would. I had to overcome my own embarrassment in filling the prescription, but I did it, because it feels horrible to feel horrible every day. To feel hot and cold and visa versa. I just want to let you know your daughter is not the only one out there. I also had a lot of other tests done as well to rule anything else out, it is important to do that, but I dont think that your doctor is doing anything wrong. I have been through the mill and I changed doctors to try to get answers and this doctor has given me hope. Some of us have tried just about everything, taking vitamins, changing our diet, etc. I'll let you know how it goes.
    Anonymous 42789 Replies Flag this Response
  • The reason I favor Lupus more than the Epstein Barr virus being responsible is the other symptoms that do not go along with Epstein Barr, such as the chest pain and easy bruising. Epstein Barr virus is in the Herpes simplex family and is a common virus in people. Epstein Barr is mononucleosis and chronic mononucleosis is call "chronic fatigue syndrome". I too had suffered from Mononucleosis and my rhematologist as said it could have been a trigger for my Lupus to accelerate also, because after I was finally diagnoised with Mono, I never really became "Well" Of course back then Valtrex wasn't available. I spent 3 months at home after diagnosis to recuperate from the Mono, and once the daily fevers and symptoms went away...I always had bouts of "flu like" symptoms that occurred 4-5times a year. I could not stand to be in the sun and as time marched on, I noticed I was getting more and more infections such as bronchitis and colds and stuff. I started having chest pains and more shortness of breath and they only thing the doctor could see when he ran tests was my sed rate was elevated, but everything else was negative. After one severe bout of the flu(which I thought was flu), I had to see the company doctor before being allowed on the floor for work. He looked at me and asked me about the "flu" then he asked me about the rash across my nose and cheeks that most people mistake for too much or improperly place makeup. It startled me, because he was the first to ask me that question. I told him I had if for years, but it seems to have increased the past prior couple months. He looked at me..asked me a few questions about other health problems I had (such as frequent colds, infections, chest pain and shortness of breath) and he asked me about other symptoms, that I have told other doctors, but they dismissed such as sores in my mouth, dry eyes, my hands getting cold and almost turning white (raynaulds phenomem that sometimes can occur with autoimmune dieseases), then he told me I couldn't go back to work until he did a blood workup. He suspected Lupus and if he was right I would need to be on a round of steriods to quiet my immune system. If I went back to work then, the stress could flare it up again and cause more damage. Blood work came back and he confirmed I had Lupus. I went to a rheumatologist and he looked at the blood work....did more tests and backed up that confirmation. Only thing is I fall into the 5% of people were my ANA blood work is not always postive (indicating an autoimmune diease) That is why my previous doctors always thought I was crazy. The only indicator was the sed rate (measure amt of inflammation in the body, not necessary an indicator of autoimmune diease). Funny thing is I have confirmed rhematoid arthritis also by x-ray and my ANA is still negative for that also. Since your daughter has symptoms other than what is associated with Epstein-Barr That is why I suggested Lupus, or the class of autoimmune dieases. I sort of steer away from Leukemia, because that would have shown in the WBC count of her blood work. Some doctors are convinced that you can't have Lupus if your kidneys are functioning. That is false...my kidneys so far have only been under attack once. With a routine check up it showed my kidneys starting to show inflammation, so he put me on a round of steroids to stop the damage, which it did. Keep searching and don't stop till you find an answer that makes sense to you.
    Anonymous 42789 Replies Flag this Response
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  • ok so the valtrex is not only used for herpes... it is a general antiviral used for many common viral infections. they simply help your body clear the virus faster by inhibiting viral reproduction. another thing, i had epstein- barr virus for 2+ years before my doctors figured out what was wrong. i am immune compromised (my adrenal glands do not work and i am on steroids) so the presentation of the virus was kind of weird... i had viral pneumonia, cold sores, and viral meningitis from it. i got it when i lived in the dorms at school from who knows what, but i had a fever every day for 2 years and within 2 days of the valtrex, i finally didnt have a fever. i had probably $60,000 of diagnostic tests done before anyone ever thought to try an antiviral and test my titers to various things. i thought i had herpes simplex (not the STD one) for the entire time because i got cold sores every time i got sick, but my titers to it were negative. epstein-barr can cause everything from a simple cold sore to chronic fatigue syndrome. because it is a virus, it can stay in some of your body's cells forever. viruses change the DNA in our cells, so many of them lurk around waiting for us to get sick and have a dip in immune function, so they can rear their ugly heads. that is why some people with mono can feel good one week and be totally exhausted the next... because of the differences in their viral load (count of viral cells). one more thing... viral infections usually cause higher fevers than bacterial... mine would get up to 102 or 103 even through 800mg of ibuprofen. the valtrex should help your daughter but bed rest and lots of water will help just as much.
    Anonymous 42789 Replies Flag this Response
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