Discussions By Condition: I cannot get a diagnosis.

14 Year old Boy with unexplained Join pains

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: ConcernedMom69
  • March 17, 2009
  • 00:29 AM

Hi everyone. I'm hoping that someone out there can help us. Since the age of 12 my son has these episodes where either all his joints will hurt or just some of them. This time he has it so bad in both ankles that we had to get him a wheelchair. We did the normal routine (as all previous times) and took him to the doctor who, once again ran a slew of blood tests...all of which came back perfect...nothing wrong at all. Last October he was seen for pain in his back and neck...also ran blood work..no answers. He had been to a specialist who couldn't give me a straight answer but was very eager to diagnose arthritis and prescribed Naproxen.
Thing is, the pain is not constant and he has about 2 bouts a year. We were given the diagnosis of growing pains in the past, but this time at a follow-up with his Peaditrician my husband was told that they think it's psychological and they've referred my son to a psychiatrist.
NOW here's the biggie...I know my son and I can't help but feel that these doctors...as good as they may be and as concerned as they are...have run out of ideas and now want to blame it on his mental state.
This floors me because my son is the most easy going kid ever.
I need help. I'm about to ask his doctor for a list of all the things they have tested him for so I can start looking for answers.
Anyone else have the same thing happen to their pre-teen/teen? Could this be part of puberty? Could it be growing pains since I know that it almost seems that after he has a bout he has a growth spurt?
Any information, suggestions ... well anything would be welcome at this point. I don't feel that dragging him to a psychiatrist is the answer here.
Thanks for your help in advance.

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1 Replies:

  • Most likely, he is suffering from juvenile rheumatoid arthritis. However you will want to press his current physician to check him for Lupus, Gout, Hemochromatosis and Lyme’s disease (note that it is hard to get a definitive diagnosis of this last one because the rate of error for a false-negative is high), as well as other infectious diseases. The first few are highly unlikely, however they all involve the joints. Due to the intermittent pattern, I’m thinking Lyme’s will probably be the first you’d want to look for.Here is what is listed for Arthralgia in the Medical Dictionary and Health Guide book: Aseptic necrosis, bone tumor, bursitis, gout, hepatitis, infectious arthritis, Lyme disease, osteoarthritis, osteochondritis dissecans, Paget’s disease, rheumatoid arthritis, Sjogren's syndrome, sickle cell anemia, sprain, steroid withdraw, systemic lupus erythematosus, tendinitis, torn cartilage.If his current doctor(s) can’t find a solution, I’d suggest getting a new physician. I would also suggest going to an infectious disease specialist if you can. I hope this information has helped you in some way.
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