My symptoms are a 13 month long dry hacking gawd awefull full body contorting stop what I'm doing and almost pass out cough. I cough until I puke frequently if I don't take the prescription cough medicine. As of the last 4 or so months I've become short of breath with mild exertion. On occasion I feel light headed out of the blue and I am always exhausted. To say I'm tired is a massive understatement. Until Dec 07 I was a pseudo body builder and avid backpacker and in good health save an ACL and a broken ankle.
Over the counter Delsum and Day/NyQuill cut it for a good long time but after about four months they gave out on me.
I got sick in Dec. 07 with bronchitis and after 2 months of steroids and antibiotics I finally got a chest x-ray. Doc said Wegner's Granulomatosis and referred me to a Pulm. Pulm said your doctor is irresponsible, you don't have that, you have bronchitis. I asked if it could be asthma or something else, he said it's definitely not asthma, it's bronchitis and when I get it I get it real bad. Ten months, 90 missed days of work and gallons of Tussonex later I still have bronchitis.
I got a second opinion.
New Pulm. says it's definitely not bronchitis, he thinks it's asthma. Three months later, all known asthma meds, plus nebulizer and asthma challenge test later and it's not asthma.
Bronchoscopy and biopsy come back clean but my lungs are abnormally inflamed or irritated, forget which but they are also real red. I have calcified granulomas but they are apparently not the cause of my symptoms. I live in the midwest and I am told that this is normal around here.
I've had a combination of over 60 shots and *****s for allergens and it's only Elm trees for me. Had CT's of the chest and sinus as well as a MRI of the head after a bout of smelling smoke everywhere earlier in the process but that went away on it's own. Lab results from 4 ER visits now are within normal ranges with the liver enzymes slightly elevated. All others are within normal, albeit just, ranges- my wife is a nurse an peeked. I had an incident of confusion and disorientation two weeks ago and work sent me to the ER, had another officer drive me there. The coughing was phenomenal during this, even for me, and that's saying a lot. I can't account for half the shift and only have foggy memory of arriving at the ER at all. Blood tests again, IV's, some pills and shots and I was discharged 6 hours later when I had my senses about me again as I didn't have any "emergency" anymore and only slightly out of normal liver levels and only slightly elevated white blood cell count that they attributed to my numerous steroid and antibiotic treatments from the beginning of 2007.
Now I'm on a lidocaine nebulizer and it's helping the cough a lot but it's still there. Like the Tussonex, it just hides it a while. Chest hurts from coughing, cracked a rib early in 07 from it. My entire airway is raw. My Pulm. has me scheduled to see his research partner next week.
Any suggestions? I never smoked, had the occasional cigar on backpacking trips but that equates to maybe 4 cigars a year. Quit drinking 5 years ago. I quit using chewing tobacco 6 years ago after roughly 15 years of use. Heavy usage the last 2 years and I developed a patch on my gums that was slow healing. Turned out to be okay but I did not have a happy dentist.
Until this illness happened in Dec '07 I'd work out 2 hours a day, 5 days a week. I had a good diet and as I said, was an avid weight lifter and backpacker. Now I can't walk the stairs but a flight or two and I have to stop for breath sometimes, not always. I pace my walking for the same reason. And the cough is horrific, my first Pulm. labled it "heroic" and nobody, I mean nobody want's to be around me it is so bad.
Could use a little advice here, thanks in advance.
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