Discussions By Condition: I cannot get a diagnosis.

10 years searching for a diagnosis

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: odmanout
  • April 6, 2010
  • 03:10 AM

I'm a 26 year old male and I have been experiencing pain in my right testicle for almost 10 years now. I discovered a lump on the apex of that testicle which I think is the epididymis. 2 Urologists have failed to find the lump but I have discovered that it is more prominant when aroused. The testicle is noticeably smaller and stays pulled up close to me. One doctor did suggest epididymitus but we tried 3 different antibiotics that didn't work.

Since then i discovered many lipomas (so my doctor says) though out my entire body. The entire right side of my body aches and over the years the pain has moved slowly from my testicle to my head. More specifically from my hip to my belly/ribs, to my chest, back, neck and now the side of my face. Even though there are these squishy small lumps throughout my body, the pain remains on the right side.

There are also hard lumps on a few spots in my neck and inside my jaw which my doctor said are bone spurs (mind you these spots are more painful and sore to the touch). Now they are slowly appearing on the left side, mirroring the same spots on the right. Im beginning to feel pain in my left side by these spots as well, but the pain is still far worse on the right side. This same pain is running down my arm to my joints like my fingers, elbow, and shoulder. It almost seems as if the inflamed system of "tubes" running from my testicle is the same large veins that hurt running down my arm, chest, and leg. Maybe its my nervous system because i specifically feel pain in my funny bone (ulnar nerve).

I get headaches on and off that I feel has been the same one for the past 8 months. Now my right eyeball is beginning to ache like my testicle does, and its sore to the touch. My hearing deadens for a few minutes at a time randomly, almost as if I just fired a large rifle with no ear protection, and when this happens I get a little dizzy, so maybe I'm developing vertigo. There are several spots on my head that are sore to the touch. Specifically behind my ear, the corner of my jaw, my cheek bone, and the top of my cheek under my eyeball. Again all on the right side including the headache.

I've lost my appetite and feel nauseous regularly. I have acid reflux and feel if it weren't for the medicine keeping my stomach closed, I would probably vomit more often.

I've had so many tests performed that my doctors last suggestion was to see a psychiatrist for an anxiety evaluation because he thought I might be manifesting these pains in my head. I agreed because i felt like I had a few physical symptoms that pointed that way like insomnia, increased heart rate, shaking and twitching. But prior to seeing the psychiatrist he had me try Zoloft which I only took for 4 days and couldn't sleep for 6. Yes thats 6 days no sleep plus all of my symptoms amplified. So recently I saw the psychiatrist and he said I was fine or at least not manifesting or exaggerating the pain.

The tests I've had in the past 4 years include 2 CT scans, one from my knees to my chest, and the other from my chest to my eyeballs. An ultrasound on my right testicle. An endoscopy and colonoscopy. Countless amounts of blood tests including STD tests, blood-cell count, one that looks for infection or other things of that nature and several others that I can't specifically remember at this moment. I've seen a urologist, gastro internal specialist, several General Practitioners and an Eye Nose Ear and Throat specialist and all say Im perfectly healthy aside from a mild case of hemmorhoids and a vitamin d deficiency. The vitamin d supplements have helped my depression and mild muscle soreness, but the real pain continues. I know Im not crazy and the pain that I feel is real. Is there anyone out there with a suggestion?

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