Discussions By Condition: I cannot get a diagnosis.

10 Years and still no solution!!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • October 26, 2007
  • 11:44 AM

1st off...Excellent site and forums. Much better than WebMD. My Compliments. Hopefully there are some experts here that can give me some guidance.

Have definitely got a situation here with my health but after a series of tests nothing can be "discovered".

BACKGROUND : Back in 1997, after a short affair with a lady, a month later I lost a massive amount of weight (Over 8-10Kgs). (BTW, the lady had just come back from the hospital after a D&C). This weight loss worried me for a bit. At the same time, I got flu like symptoms and a light rash all over my body. This freaked me out and I immediately started keeping track of all "changes" to my body. After waiting for the obligatory 6 months window, I went and tested for HIV. Results were negative. Every year from 1997 till 2002 I have gone for a HIV test and it has come back Negative. I did regain back some of my weight after a while but from that day onwards, my body VERY RARELY puts on weight. I tend to lose weight more easily.

SYMPTOMS : Over the years, get a rash on-and-off, teeth grinding, extreme itchiness on the legs (keep scratching till it bleeds), loss of sex drive, spasms/jerks of the body and legs while sleeping, blood in feces, constant yo-yo of weight.

TESTS : In 2002 I underwent all possible tests a doctor could advice, HIV I/II, all STD's, Blood tests and thyroid tests. All came back clean and clear.

Weird Eh?? And nope, it is not in my mind because of what follows.

Got marrried in 2002 and my wife was in prime health. Good weight and normal. Within a few months of marriage, I noticed the SAME symptoms occurring with her!!!! And as a female, certain things are more noticeable with her.

I have consulted another doctor in 2004 and the same tests were run once again on both of us and once again the results are clear.

Am at my wits end. Don't know who to consult anymore or what to do. What I have mentioned above is just part of it. There are finer details which I have told to the doctors.

Any HELP?????
Any Advice?????


Dazed!! Totally Dazed!!!

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3 Replies:

  • This is a weird thought, but did you move into a new place or did your wife move in with you? I'm just thinking maybe it's something in your home. I don't know exactly what it could be, but it's just a thought.
    carli_justin 8 Replies
    • October 26, 2007
    • 04:14 PM
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  • What does the rash look like. Look up Adult Stills Disease ADULT STILLS DISEASE Adult Still's disease (ASD) is an inflammatory condition in which you may experience daily spiking fevers, have achy or swollen joints and discover a salmon-pink rash appearing on your body. The disorder is rare. As it progresses, Adult Still's disease may lead to chronic arthritis and other complications.Still's disease is named after an English doctor named George Still, who described the condition in children in 1896. Still's disease is now known as systemic onset juvenile rheumatoid arthritis (JRA). In 1971, the term "Adult Still's disease" was used to describe adults who had a condition similar to systemic onset JRA. There's no cure for Adult Still's disease; however, treatment may offer symptom relief for Adult Still's disease and help prevent complications.Signs and symptomsMost people with Adult Still's disease experience a combination of the following signs and symptoms:§ Fever. You may experience a daily fever of at least 102 F for a week or longer. The fever usually peaks in the late afternoon or early evening. Between episodes, your temperature will likely return to normal. § Rash. A salmon-pink bumpy or flat rash may come and go with the fever. The rash usually appears on your trunk, arms or legs. Physical contact such as rubbing your skin or exposing it to hot water may provoke the rash to appear. § Achy and swollen joints. You may find that your joints — especially your knees, wrists, ankles and elbows — are stiff, painful and inflamed. Usually, the joint discomfort lasts at least two weeks. § Muscle pain. Muscular pain associated with Adult Still's disease usually ebbs and flows with the fever. It may be severe enough to disrupt your daily activities. Other signs and symptoms may include:§ Sore throat § Swollen lymph nodes in your neck § Enlarged liver or spleen Having any of these signs or symptoms doesn't necessarily mean that you have Adult Still's disease. The signs and symptoms of this disorder may mimic those of other conditions. These include other infectious diseases such as infectious mononucleosis, a type of cancer called lymphoma or other rheumatic diseases, including rheumatoid arthritis.
    Anonymous 42789 Replies
    • October 26, 2007
    • 11:12 PM
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  • Look up Adult Stills Disease. Rash that is salmon in color.
    Anonymous 42789 Replies
    • October 26, 2007
    • 11:13 PM
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