Discussions By Condition: I cannot get a diagnosis.

10-year-old boy having all stomach reflux symptoms, but scope results negative

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: rosakkin
  • November 19, 2012
  • 03:17 AM

Dear all parents or doctors

I desperately need your advise. I have never felt so stressful in my life and I can no longer live like this. My used-to-be-happy-and-playful 10-year-old boy is no longer himself since the beginning of this year. He always feels like vomitting, nausea, stomachache.... like all the symptoms of a stomach reflux. He was treated with Nexium 20mg for over 3 months. He could not go to school, and even if he went in the morning, he would call home sick again. He is a hockey player and hockey is his life. He would drop anything for hockey, but he can't even play hockey now because of the pain. All these symptoms have dramatically lowered his quality of life in every way, socially, acedemically, mentally, emotionally, physically,.... you name it!! I took him to the sick kids hosptial numerous times, and we were told he is absolutely fine and everything is normal. I took him for scope test, tonnes of blood tests, allergy test, ultrasound.... they all came back negative. Out of all the doctors that we have seen have concluded he has anxiety and depression related physical pain symptoms (PPS), but I am not convinced at all. I did tho take him for pyschological counselling sessions just in case, and I have continued doing it since. I do not believe this is simply PPS because these pain episodes would kick in even during play time when he was fully engaged and did not have a chance for any anxiety or depression to kick in. If these episodes occurred during boring school time or during something that he didn't enjoy, then I could relate them better. For example, he was invited to a birthday party last week, it all went well until all in a sudden, he had to duck down because of the severe sharp pain that just happend in a snap. The nausea wouldn't go away. His face turned pale and hands were all cold. As a single mother, I have totally run out of resources, and I found the doctors totally not helpful because they simply stated there really isn't anything they could do at this point and just threw me out of the door to psychologist. I see no improvements whatsoever from having all these $160/hour psychological sessions. With all these going on, I actually had to switch job for more flexi time (cuz I never know when I would get a call from school and when I have to go to the hospital again), and I still cannot manage. I myself have developed a depression from this. I just can't handle it anymore seeing my son suffering everyday. What does he have, really?!!! Please help me. May God bless you!!!!

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4 Replies:

  • This is my second attempt to post a reply to your query.Here is what my doctor told me and other family members who have similiar problems:1) Sleep elevated on a pillow. This helps gravity. Reflux often happens at night while you are laying down.2) Eat at least 2 hours before going to bed. That gives you digestion time to work a little.3) Eat smaller meals. Large meals overwhelm the digestive tract of some people.4) Several foods that cause such problems are: cokes, coffee, tea, dairy products, tomatoes, strawberries, heavy spices (spaghettis sauce, bar-b-que, chilli..etc...) By eleminating these foods you can get relief. The trigger foods for me were; milk (most dairy), bar-b-que, lettuce, and wheat fiber. The trigger foods for my brother were; any dairy, peanuts, and soy. The trigger foods for my son was; all dairy, peanuts, and shrimp. By looking at the lists you can see that most of the people in my family are "lactose intollerant". This is not an allergy and will not show up on those sorts of tests. I am simply putting that here because it is a very common cause of the symptoms you mentioned in your post.At this time I will not give my opinion concerning the person who may have said it was psyghological simply because they couldn't find the answer. This condition is very painful and embarrassing to everyone who has it. The gas brought on by consuming dairy products when you are lactose intollerant can literally double you over. Hope you son soon gets relief. Grandmom--Bebe
    Grandmom 25 Replies
    • November 20, 2012
    • 09:22 PM
    • 0
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  • Dear Grandmom-Bebe,I can't say enough 'thank-you' for replying to my thread and giving me some directions for my son's continuous discomfort. Yes, I will definitely try going without diary products first. I have already been doing smaller meals and no food before sleep time, but I still haven't seen results. I was skeptical before about taking away his major source of calcium (I usually give him 3 servings of dairy products daily just to ensure sufficient calcium intake for him), but I think I can switch to other calcium-rich products. Who knows, may be that's it. I can't believe there are really good people out there that would take the time and care about the people that you don't even know. You have really inspired me and I would like to thank you once again for helping us. I felt very devastated, but now I have some hope. I will keep trying and trying and do whatever it takes to get my son better.Very very much appreciated!!!! May God bless you and your families!!!Love,Rosa
    rosakkin 2 Replies
    • November 27, 2012
    • 04:35 PM
    • 0
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  • In the past we had to worry about getting calcuim but today there products that will give him calcium other than dairy. You can try the soy substitute. We can't use it in my family but, many people do. I have used a product called Rice Dream and Almond Breeze. Both of these products contain the full amount of calcium as milk. You do not have to take in dairy products to get enough calcium. Wal Mart carries most of these products. There is also a lactose free cheese with the full amount of calcium. It may take at least a week to know if he is lactose intolerant so do this for that length of time. If that doesn't seem to work try eliminating spices one at a time. Here are some spice that can cause reflux problems: Many people are sensitive to certain seasonings and spices. Black pepper, cinnamon, nutmeg, sage and msg are the most common irritants. I have to avoid the black pepper, sage and msg. I have family members who must avoid cinnamon and nutmeg. You son may be sensitive to any other spice. I think though that black pepper is probably the most common irritant.
    Grandmom 25 Replies
    • November 30, 2012
    • 03:55 PM
    • 0
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  • Thank you so much, Grandmom. You are so right, there are so many things in the market that offer good source of calcium!!! Yes, I should draft myself a table introducing other non-dairy calcium products, and phasing out dairy ones and see it that works. My son has been up and down in the last couple of weeks, and I was skeptical to stop all dairy products in one instance, but I think I was too anxious about that. I totally agree with you that I can substitute calcium with a lot of other things.I can't thank you enough, Grandmom for your kind and great suggestions! We wish you and your family a Merry Christmas and a Great New Year!!! May God bless you and your family!!!Love,Rosa
    rosakkin 2 Replies
    • December 15, 2012
    • 02:42 AM
    • 0
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