Discussions By Condition: I cannot get a diagnosis.

1 year old wont eat on NG tube for food...

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: thevideogirl
  • August 21, 2007
  • 04:58 PM

I have a 1 yearold sister who has been having eating problems since she was born. At 4 months, she was diagnosed with "failure to thrive" and has been on a NG feeding tube ever since.

She is now 1, and still breast feeding because she wont take a bottle or a sippie cup (its the only soothing device she has). She will not eat any food - and will gag and choke if she does try a sippie or food.

If she crys at all after a feed through the tube - she will gag and throwup her whole feed. She is very small and has slow weight gain. It seems so weird that a baby wont want to eat - even a yummy treat like a taste of chocolate on a finger, she spits etc. and has a fit.

The doctors just keep saying, oh we will watch and see how shes doing - so if we could find suggestions on finding an answer..
would be greatly appreciated.

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10 Replies:

  • Dear videogirl...I'm sorry to hear about your sister. It is heartbreaking.Where do you live?How old are you? I was very sick and tried NAET/Bioset therapy.It helped me and it is helping sick people all over the world no matter what their "diagnosis" is. I will help you find a practicioner in your area who will actually help your sister.....NOT LIKE THE DOCS WHO SIT BY AND "WATCH" HER.:confused: best regards,mommy cat:)
    mommy cat 1654 Replies
    • August 21, 2007
    • 11:20 PM
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  • Dear videogirl...I'm sorry to hear about your sister. It is heartbreaking.Where do you live?How old are you? I was very sick and tried NAET/Bioset therapy.It helped me and it is helping sick people all over the world no matter what their "diagnosis" is. I will help you find a practicioner in your area who will actually help your sister.....NOT LIKE THE DOCS WHO SIT BY AND "WATCH" HER.:confused: best regards,mommy cat:)Are these the kind of forums I joined? You join and post your problem looking for a solution and you get someone spamming every post with "Try NAET / Bioset" like it's the fountain of youth, or a god send for all illness. How much are you getting paid to do it?
    Anonymous 42789 Replies
    • August 21, 2007
    • 11:45 PM
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  • I have a 1 yearold sister who has been having eating problems since she was born. At 4 months, she was diagnosed with "failure to thrive" and has been on a NG feeding tube ever since. She is now 1, and still breast feeding because she wont take a bottle or a sippie cup (its the only soothing device she has). She will not eat any food - and will gag and choke if she does try a sippie or food. If she crys at all after a feed through the tube - she will gag and throwup her whole feed. She is very small and has slow weight gain. It seems so weird that a baby wont want to eat - even a yummy treat like a taste of chocolate on a finger, she spits etc. and has a fit. The doctors just keep saying, oh we will watch and see how shes doing - so if we could find suggestions on finding an answer..would be greatly appreciated. I am also going to recommend trying NAET for your little sister - she would be treated through a surrogate (yourself or the baby's mother) since she is so young, but it is completely noninvasive and very helpful. NAET is not a scam, and no one is getting money from this - that is just stupid. NAET is an energy balancing therapy that has been shown to be very helpful in allergies and food intolerances. Your little sister sounds like she has some major food intolerances, and it may be a helpful treatment to get her to eat better. I have seen video testimonials of young children ages 3-5 with severe autism, and after having several months of NAET treaments these young children are thriving and articulating and even singing! There are MANY MD's now practicing this form of healing - please just look into it and decide for yourself if it is right for you.Aside from this, is your sister having regular bowel movements? Does she suffer from constipation or diarhhea? Does she cry alot and how is her sleep? This must be very hard to deal with, and if your docs are not very cooperative, maybe it is time to find a different approach. Chiropractors or Naturopaths who specialize in pediatrics may also offer some help. Best wishesDOM
    acuann 3080 Replies
    • August 22, 2007
    • 02:10 AM
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  • Disorders that affect hunger/appetite, food-seeking behavior, and ingestion Anatomic abnormalities of the oropharynx Anatomic/congenital abnormalities of the larynx and trachea Anatomic abnormalities of the esophagus Disorders affecting suck-swallow-breathing coordination Disorders affecting neuromuscular coordination of swallowing Disorders affecting esophageal peristalsis Mucosal infections and inflammatory disorders causing dysphagia Other miscellaneous disorders associated with feeding and swallowing difficulties, for example, xerostomia, hypothyroidism, trisomy 18 and 21, Prader-Willi syndrome, allergies, lipid and lipoprotein metabolism disorders, and a variety of craniofacial. Take to this child to a children's hospital for a video-swallogram to rule out the first 7 disorders. A G.I. pediatrician can help with the other things. This is very serious as poor nutrition can effect the rest of this child's life. Does this kid have CP? Re: different approaches to disease and health. I think this board is equally divided between "Eastern vs Western" approaches. Postings are often a last ditch effort to find answers. What works for some, won't for another. We all try to be open-minded.
    rad-skw 1605 Replies
    • August 22, 2007
    • 08:08 AM
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  • Has this child had a video-swallowgram to test for structural abnormalities? Take her to a G.I. pediatrician as malnutrition now will effect her whole life. To the poster who doesn't go for NAET. Just skip the messages you don't want to read. We all agree to disagree on this board and realize there is no black or white, but many shades of gray regarding health and disease.
    rad-skw 1605 Replies
    • August 22, 2007
    • 08:13 AM
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  • Dear DOM, thanks for the back up. Fortunaltely, I am quite used to people throwing rocks and rotten tomatoes at me in this forum.The good news is, some are actually taking the advice and getting treatment.Thank you for volunteering to be here. Your information is priceless!! Humbly,mommy cat
    mommy cat 1654 Replies
    • August 22, 2007
    • 04:52 PM
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  • Dear Unregistered...NAET/Bioset is a GODSEND!!!!!!!!!!!!!!!!!!!!!!!! If you were to try it, you would see!! Best Regards,mommy cat
    mommy cat 1654 Replies
    • August 22, 2007
    • 05:03 PM
    • 0
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  • See if she'll drink Ensure Plus through her sippie cup. My daughter had similar issues due to reflux and the Ensure was a godsend. Good luck.
    Anonymous 42789 Replies
    • August 22, 2007
    • 05:16 PM
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  • Has this child had a video-swallowgram to test for structural abnormalities? Take her to a G.I. pediatrician as malnutrition now will effect her whole life. To the poster who doesn't go for NAET. Just skip the messages you don't want to read. We all agree to disagree on this board and realize there is no black or white, but many shades of gray regarding health and disease. Rad, Thank you for your informative, respectful post. I appreciate it. Videogirl,Did your mom have any problems while pregnant? Did she have complications during delivery? DOM
    acuann 3080 Replies
    • August 23, 2007
    • 00:03 AM
    • 0
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  • sorry i cant offer you any suggestions but I sympathise as when my daughter was a baby (7-9 mths), she was diagnosed with "failure to thrive" too and then we were told she had "anorexia" when she was almost 2 and a half yrs old!!!!. (she strangely ended up with issue over body image as a toddler thinking she was fat.. she's over all that now thou). In her case, she just wasnt really interested in food much (me and her father broke up when she was a baby due to abusive relationship, so stress may of played a role in her case) and thou breastfed, didnt gain much weight or grow much.... so she was so tiny!!. She didnt take food AT ALL until she was 7 mths old...and then would only eat a few types once she did start eatting a little (mostly junk food which concerned me, she just wouldnt eat anything healthy and would spit it right out!). There was talk of giving her a feeding tube at one point cause she just didnt gain weight due to the little she ate, but fortunately it never came to that. Probably cause she drank fluids okay eg milk, juice etc At 14 mths.. she would just eat 3 or 4 twisties or potato chips for the whole day or one biscuit and that's it.. other than her drinks. Her doctors were just happy when she ate (she was put onto umm steriods I think it was, which the doctors said had the side affect of making someone hungry).. and hence seeing she would then still only eat junk food at times in very small amounts, we were encouraged to keep tempting her with that. Dietians etc didnt help much thou we had to add polygoule (sp?) to her milk and added milk powder etc, to give her more calories. My daughter thou never threw up or gagged, she just didnt want to eat, wasnt interested.. so I wonder if your sisters problem is more than just not wanting to eat or not liking food.. maybe something structual or another issue. I'd like to say that my child once she was about 3.. suddenly developed an appetite and decided she liked food and nowdays, she is a fit and healthy 18 yr old. I hope they sort out whatever your sisters issue is. best luck.
    taniaaust1 2267 Replies
    • August 23, 2007
    • 04:44 AM
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