Discussions By Condition: I cannot get a diagnosis.

1 Consultants, 2 Surgeons and 3 GPs...

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: MissyKrissy
  • May 27, 2010
  • 09:26 AM

Hello :)

I am new here and came across this website when trying to self diagnose. I have congenital hand deformities but have never had problems until two years ago. I am only 34 and have a five year old son. I just want to get back to normal family life again, like going swimming and playing in fun parks with ball pits etc with him, instead of having to watch from the sidelines.

It started when I randomly started dropping things from my right hand and my left hand started cramping up, which made it curl sometimes. It got worse and gained more symptoms (see below).

I have seen a Rheumatologist and 2 Orthopaedic Surgeons during the last year, all who have a different opinion but not actual answers. One surgeon said I had Carpul Tunnel Syndrome in both wrists, and that if I had the operation, my pain would go away. I had the op, couldn't work or drive for ten weeks, gained a big scar (due to not being able to find the nerve on the MRI) but it has made no difference to my quality of life. The last surgeon just said it's not arthritis as there is nothing on X-ray so doesn't know what it is, but maybe partly my thumb muscles are overworking and under-developed, but only a guess, told me to live with the pain (which is getting progressivly worse and I am already on strong pain killers) and go back to my GP. If anyone has any ideas, I would be so grateful. My symptoms are:

Severe pain from thumb joints down through muscles to wrist joints
Pain and strong aches in wrists
Limited activity as hands, particularly my thumb muscles and tendons in my wrists, get very tired and ache, can be so bad I can’t even hold a piece of paper without my muscles aching so much I have to swap hands all the time!
Stiff fingers end joints, especially when wake in morning
Fatigued hands and fingers end joints
Muscle cramp in left hand mainly
Drop things in right hand without realising
Pain through lower part of left thumb, along top, inside
I would really appreciate ideas or who I should see next, if anhone has had similar problems, and anyway to make it easier.

Many thanks and kindest regards, MissyKrissy xx :)

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