Discussions By Condition: Heart conditions

Wolff-Parkinson-White

Posted In: Heart conditions 31 Replies
  • Posted By: ijdavis
  • November 1, 2006
  • 07:50 PM

I was diagnosed with Wolff-Parkinson-White syndrome in my early 20's. The diagnosis was from a ECG, the abnormal ECG correcteditself under a stress test, and I have never experienced any of the symptoms associated with this syndrome. However, I am at 53 about to undertake a serious physical fitness program, to combat bone lose. I am not sure if WPW is a static condition, or one that can vary over time. Should I be retested for WPW, and should the severity of that syndrome be rechecked if still present, through the same controlled exercises on a treadmill that I did 30 years ago, prior to undertaking a course to improve my overall fitness. I am concerned that I might cause some degree of embarrassment to my trainer, were I to experience sudden death.

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  • You should certainly get yourself tested.The procedure is less trouble than going to a dentist and is very safe apart form the xrays. It is done under a local anasthetic and is one of the triumphs of modern medicine.Aubrey Sandman.PhD.
    Anonymous 42789 Replies
    • November 30, 2006
    • 05:26 PM
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  • I am 39 years old, and was diagnosed with WPW when I was 17. Through the years my symptoms got worse, such as a very fast heart rate. When I was 34 my symptoms got so severe that my doctors performed a cardiac ablation. It worked. I have not experienced any symptoms whatsoever since. You may want to talk to your doctor about this, because I was informed that WPW can sometimes cause sudden death even when not experiencing symptoms. I'm sorry, I don't want to scare you or anything, but it is something to talk to your doctor about.
    Anonymous 42789 Replies
    • December 7, 2006
    • 00:45 AM
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  • Dear WPW former sufferer, Although it might well be reasonable to consult a Cardiologist sometimes this should be rarely.Certainly although I have developed heart trouble as a result of chemotherapy I and my cardiologist regard my WPW as something in the past.This is most likely the case in your own situation.Regards, Aubrey Sandman.
    Anonymous 42789 Replies
    • December 18, 2006
    • 07:09 PM
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  • well to those of you who think it cant come back after surgery it can , i had the surgery 4 years ago and i have it back , i was in surgery for 6 hours , i just recently have had my simtoms back and was checked , and it is back it showed up on the ekg, so i hope anyone who has the surgery has more luck than i did , i dont know where to go from here , my episodes scare the ***t out of me, do i have the surgery again , im not very confident with it so why go through it again, i was told that it can heal it self over time so thats why its back, i guess im just upset to know i spent my time and a lot of money for something that didnt work and could possibly kill me in the future, i dont know how bad everyones symptoms get but ive had over 250 heart beats per minute in my episodes i cant stop, how bad has everyone else had it please let me know my name is wes, im 36 years old, i was born with wpw my email is wshelton_11@sbcglobal.net, ive never met anyone with this and i was just wanted to know how everyone else is effected by this thanks wes.
    Anonymous 42789 Replies
    • February 27, 2007
    • 02:16 AM
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  • I am 21yrs old and I too was born with wpw although I was not properly diagnosed until age 12. It started off as a rare occurance of palpitations at 150 to 180 bpm, then over the years it turned into a very common occurance at 250 to 280 bpm and I ended up suffering up to 3 attacks per day at work, most lasting for over 2 hours that would usually have me end up fainting. For the rest of the day I would feel very week, kind of like I had run a marathon without moving at all and all I wanted to do was sleep. I was perscribed with flecanide which seemed to work for a while until my body got used to it. I have had 3 radio frequency ablations so far that have been unsuccessful and I am booked in for my fourth in May. My biggest fear is that my heart is getting weaker after each attack and that I will end up having a heart attack or stroke. I have already suffered a minor stoke as a result of a palpitation. Has this happened to anyone else?
    Anonymous 42789 Replies Flag this Response
  • Hi all, My 15 year old daughter is thought to have WPW and will see a pediatric cardiologist in a few weeks. She's had 3 ekgs over the last 6 weeks showing signs and she is symptomatic (palp's, weakness, dizzyness, shortness of breath). I would be interested in hearing any questions we should ask at her appointment. This is new to us. In the ER they said she was probably suffering from a minor anxiety attack OR it could be WPW. Her peds doc thinks it WPW. Thanks in advance. KinOHIO
    Anonymous 42789 Replies Flag this Response
  • Hi, I was diagnosed with WPWS at the age of 16. I am now 40. At the time of my diagnosis, I was very, very skinny, rarely slept and didn't eat regularly. "Attacks", which feel as if someone is trying to pull your heart out through your back, were almost a daily occurance. I was given Corgard (spell check) 4X per day, then Indoral, and when that stop working Nitroglycerin, which I don't recommend to anyone. I was told the medication would possibly cause birth defects and stopped the meds when I decided to have my first child. I haven't been back on them since. When stressed, the attacks reappear but I've learned to manage the pain in the same way I managed it when giving birth. Long deep breathing helps to keep me calm through the pain and I can avoid passing out. I try to make my life as stress free as possible and it helps. Through alot of research I've also discovered that the heart can be affected by anemia, which is also a problem I have had throughout my life. In keeping track of the attacks, I've discovered they occur most often when my blood count is low. If this has a direct effect, I don't know, but have found that to be interesting.
    Anonymous 42789 Replies Flag this Response
  • I just found out I was pregnant through IVF my first cycle. However I am 45 yrs old and have been diagnosed with WPWS since the age of 28 - my symptoms are rare - I have bouts of rapid heart beats - like my heart is fluttering then it goes away in say afew seconds. Thank god I've never had a worse symptom. I do notice stress and caffeine bring it on worse however. I was wondering any women out there with WPWS that went on to have a normal pregnancy and didn't give the disease to their offspring.
    Anonymous 42789 Replies Flag this Response
  • my daughter has been diagnosed with wpw what things shouldnt she do?
    Anonymous 42789 Replies Flag this Response
  • We are hoping someone can give us some sage advice. Our 12 year old son has had heart palpitations randomly over the last 18 months or so. When they happen, it scares him immensely, as it does us also. It feels as though his heart is pounding through his chest. We have taken him to the ER a couple of times and nothing comes of that. The symptoms disappear or someone associates it with going into puberty. When it occurs he also complains of the chest pain and tightness. His heart rate also is abnormally high. He is not a couch potato and is about 61" tall and weighs 90 pounds. He is a competitive swimmer and plays soccer here in Germany (oh yeah, this is the other issue). He is extremely intelligent and has been reading at the 12+ grade level since 4th grade. We are Americans and we live in Germany. We have made several trips back to the U.S. over the last 4 years for medical reasons, but for a sibling (not heart related). There are either too few or NO pediatric cardiologists in the U.S. system over here and because I am retired from the military and a DoD civilian, we are at the bottom of the list for health care in the military system. Besides the fact that they are understaffed and overworked also. Please ... someone out there provide us some good advice. We are familiar with the Children's Hospitals in Boston and Cincinnati. We will continue to pursue local avenues here in Germany, but hope that we will be able to get the proper diagnosis from SOMEONE. BTW... he suffered these same symptoms Saturday night, but because he felt good Sunday morning, he left for a week at Boy Scout camp. We are extremely concerned.Oh yeah... he also has a 15 year old cousin (female) who was diagnosed with WPW and underwent the corrective surgery. Please Help! M in Germany
    m6lacy 2 Replies Flag this Response
  • http://www.facebook.com/group.php?gid=3989308077&ref=mf&pwstdfy=7627d01a26859e8aca7677f265c2470dplease join the wolff parkinson white facebook group I created, I am looking for other people with the same issues as me so please jointhank youWes Belland
    Anonymous 42789 Replies Flag this Response
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  • I just found out I was pregnant through IVF my first cycle. However I am 45 yrs old and have been diagnosed with WPWS since the age of 28 - my symptoms are rare - I have bouts of rapid heart beats - like my heart is fluttering then it goes away in say afew seconds. Thank god I've never had a worse symptom. I do notice stress and caffeine bring it on worse however. I was wondering any women out there with WPWS that went on to have a normal pregnancy and didn't give the disease to their offspring.I have 2 sons 1 aged 4 and the other aged 2. In Febuary my mum was diagnosed with wpw and had her op, i also experienced the palpertions and fainting attacks. because of my mum having this and being told it could have been passed to me and my brothers i thought it was time to get it checked out. it turns out that i too have wpw. I have had my 2 children without a problem, but you are aware of it and you can dicuss this with your widwife! Good luck
    Anonymous 42789 Replies
    • August 26, 2007
    • 09:06 PM
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  • HI, I have had WPW since I was approx 10 years old, now I am 39. I had only a few episodes when I was between(10-12) but they were pretty severe. I was put in Corgard 40mg and have stayed on it. However, over time I have noticed issues with muscle tention/pain(Mostly in upper back-sholders) and a few other symtoms that seem to be consistent with taking a beta blocker. I have tried everything to relieve these symtoms and just recently discovered that we who take this med may lose some large about of Q10 and possible B12 in our system. I just started taking both and would you believe almost everyone one of those symtoms/problems have gone. I called the doc and no one would give me a staight answer if I should take Q10 and B12 or not. I am not sure what to do and do not want to create other problems by self admin these two items but they work(For 20 years I have suffered, mostly post 32 years old..). Does anyone have similar results, feedback or comments on Q10? Best of luck everyone....KL
    Anonymous 42789 Replies
    • August 30, 2007
    • 03:54 AM
    • 0
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  • hi, I have it and can tell you what bothers it the most (in my case) but I can live normally for the most part (going to the gym, ect) I dont know what will affect her, I can only say what affects me : The worst worst thing is pregnancy. For me, Im sure there are others who have no probs. I was preg 2 times and both times at 5 weeks I had sweating/heart attack symptoms, once while lying down in bed and another while taking a shower on a humid day. Dont know if this has any affect. I seriously thought I would die, but here I am. Went to the doctor, saw another doctor, and got mixed reactions. ( I dont look sickly) Surgery was a suggestion, but I forgot all about it, out of fear that it would worsen not help. Hot days, really really hot days, can bother it. Also for some reason baths/showers when there are extreme temps in the bathroom such as hot weather, cold bathroom, or vice versa. I dont know why this is. I did faint a few more times, but I think once could have been from blood sugar, not sure because it felt "different" when I fainted. Nw also--- the dentist. Ive had an episode at the dentist, and never did before. It was quite embarassing, I dont know if it was the novocaine, I think it was. Also-pretty obvious ones here-dont take any percosets,diet pills, ephedrine, ect. Ive also found that although its not weight-related,gaining weight puts alot of pressure on it. And stress. I was diagnosed when I was about 6, and it didnt bother me much until late teens it started coming back a tad.
    Someone 6 Replies
    • September 11, 2007
    • 02:02 AM
    • 0
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  • If the trainer starts to push you, just ignore him. Although Ive found in my experience, with this it hasnt been working out that irritates, its strange things and sometimes nothing at all. I think its just one of those things, its not like hypertension heart probs, although gaining weight has made it worse, by putting pressure on it.
    Someone 6 Replies
    • September 11, 2007
    • 02:57 AM
    • 0
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  • I have WPW. I have not had any difficulties with it but I have been told that I require a routine Hernia operation. I am concerned about the effects of the anesthesia in relation to WPW. Any information about this would be much appreciated.
    Anonymous 42789 Replies
    • November 13, 2007
    • 08:07 PM
    • 0
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  • I have WPW my doctor told me to NOT have any caffeine...and chocolate has caffeine in it as well. I have not gone for the ablation but it is an option to look into.
    Anonymous 42789 Replies
    • December 13, 2007
    • 05:21 PM
    • 0
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  • Hi,I first noticed symptoms at 7 years old. I was not daignosed until Oct of last year, when I was 46. I had ablation surgery in Jan 08 and so far feel very good. Looking to the top of this post, comparing the procedure to "going to the dentist," sorry, but it's a lot more stressfull than that. However, it's better than open heart and if I, a big whimp can get through it, most anyone can. I controlled the symptoms from the time I was seven until fourty six. However, they went from 1-3 times a year to 3 times a day, making functioning normally on a day to day basis impossible. No more flying, no customer meetings, no diving, etc.I'll drop by later to say how it is going after time. Not fun to see that for some, the symptoms have returned over the years.D
    Anonymous 42789 Replies
    • February 1, 2008
    • 08:53 AM
    • 0
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  • I have gone through 2 ablations and my son also has WPW so if you or your child have WPW and you want some perspective on either situation visit my ad free blog that I just started... http://wolff-parkinson-white.blogspot.com/
    gmlear 1 Replies
    • February 19, 2008
    • 01:50 AM
    • 0
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  • I was diagnosed on May 20th, following what I thought was a heart attack, I received an ablation on the 21st and was out in 48 hours. As I was in the hospital I did not ave access to the internet, possible a good thing? Two items that I have found out are 1.) your heart is an amazing organ it can and will re-heal itself and in some cases the ablation will be for not. 2.) I am getting a sharp pain in and around my chest area, as this is a nerve / electrical shock this could be, not sure, the nerve firing and then landing anywhere it stops. I have an appointment with my surgeon today and will follow-up ASAP. Finally as you are aware this is a life threatening condition, my has possible been resolved, either way do something about it through what ever means you think are at your disposal. God Bless.
    Anonymous 42789 Replies Flag this Response
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