Discussions By Condition: Heart conditions

Undiagnosed Tachycardia. cardiologist, neurologist, but no help.

Posted In: Heart conditions 2 Replies
  • Posted By: Zenica
  • May 25, 2012
  • 05:30 AM

Hello,

I am on my last legs for a series of medical problems and no one seems to know what is wrong.
I am 22 years old, female, and a month ago I experienced a TIA, and was hospitalized. MRI was clear.

TIA began with sudden onset of left neck pain, with left facial numbness that progressed down the left side of my body, and uncontrolable
vomiting. It was reflexive, and did not respond to medication by mouth or shot injection. There was
suspicion that I had a dissection, but MRI/MRA was normal. Tachycardia was present, but not believed to be an important symptom.

They did a thyroid function test along with other blood tests. Thyroid T4 free was 13.3pmol/l and TSH was 13. When I was released I went to my gp who repeated tsh and t4 which came out at 3.8. I was told that I was euthyroid and to repeat in 3 months. Went to my neurologist two weeks later who repeated it and got the same result.

After seeing the neurologist, I developed severe right sided kidney pain and persistant weakness, nausea and vomiting. She sent me to a second GP for further help. 2nd GP did ultrasound, urinalysis, X-ray of chest and pelvis. 2nd gp repeated thyroid again and it was tsh 4.8.Everything else was normal

Gp did ECG and found very high heart rate, 121bpm resting and low blood pressure that increased upon standing. Sent to cardiologist. Repeated ECG, 127bpm on resting, bp was difficult to find, but ECG found sinus tachycardia with minor right bundle branch block. No unduprognation of the qt. cardiologist believed i had svt, so ordered event monitor for 2 weeks and an echocardiogram. 7 events monitored, none explained symptoms. Repeated blood pressure, showed low-normal sitting, and dramatic increase in bp on standing. Cardiologist believed the monitor was not working and dismissed this. He now does not believe there is anything wrong.

Before I had the monitor on, I passed out and fell down a flight of steps. There was no warning, or racing like previous svt symptoms. I woke up, no idea how long I was down, but I woke on the floor with severe bruises on my leg and arm. When I saw the cardiologist again, I told him this, but he dismissed it.

I am fatigued, not sleeping, experiencing a heart beat of 127-137bpm all the time. I have minor chest pain on activity and I can't do anything without it getting worse or feeling lightheaded.

Please help me if you can.

Thank you,

Zenica

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2 Replies:

  • Have you seen an Endocrinologist and Phrenologist? My son hasn't had a TIA but that's what I'm afraid of happening. They can't control his heart rate or blood pressure with meds. My son is similar except he has high blood pressure and his heart rate is high while laying down and goes way up when doing exercise. So far his labs have come back fine so they say but they have ordered more tests and just prescribed blood pressure meds. They have done ultrasounds and found nothing. I would keep searching as somethings wrong. Go to a different group of doctors.
    lcooper 1 Replies Flag this Response
  • Have you seen an Endocrinologist and Phrenologist? My son hasn't had a TIA but that's what I'm afraid of happening. They can't control his heart rate or blood pressure with meds. My son is similar except he has high blood pressure and his heart rate is high while laying down and goes way up when doing exercise. So far his labs have come back fine so they say but they have ordered more tests and just prescribed blood pressure meds. They have done ultrasounds and found nothing. I would keep searching as somethings wrong. Go to a different group of doctors. Hi,Thanks for responding. No I have not seen an Endocrinologist or a Phrenologist, but I have an appointment with a second cardiologist, whois the leading cardiopulmonary specialist in my area. My gp has asked that he do a tilt-table test to try to figure out what caused my collapse. She also wants me to see my neurologist again because it's possible (although not very likely) that I had a seizure. Primarily because when I woke up my tongue was bleeding, which is a sign of seizure. No one was home at the time, so we don't know... I am still very fatigued and very weak. My pulse is still very high and I am recording it and my blood pressure 3 times a day. When I feel very bad (light headed, nauseous, etc), my pulse is 135bpm average, my bp is low 99/40. I have given the data from 5 days of monitoring to my gp who is fairly concerned about the results.Let me know as always if you have any questions, or possible research that might help my case.Zenica
    Zenica 2 Replies Flag this Response
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