Discussions By Condition: Headache

Severe headaches...back of head, never go away??

Posted In: Headache 72 Replies
  • Posted By: kbarnyard
  • August 16, 2007
  • 05:29 AM

I have had severe headaches in the back of my head since March 2nd. They are not considered migraines by doctors. I have seen an immunologist, 2 neurologists, an allergist, a rheumatologist a chiropractor, plenty of ER doctors, an optometrist, and opthalmologist, a neurosurgeon and countless other doctors. Pain medications like Vicodin and codeine do not affect it. I have had a CT scan and 2 MRIs, all of which were normal (I have considered Chiari malformation, but my MRI/radiation tech doesn't see it in my film. I have had many blood tests, all returning normal(negative). I wore a neckbrace and took muscle relaxants for a week on the demand on my neurosurgeon. I have also had an angiogram to rule out artery damage. My mom wants be to try Botox injections, but they aren't proven so I'm not sure. Any suggestions for help?:confused:

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72 Replies:

  • Please try NAET- it is a combination treatment of Oriental Medicine, Chiro, Nutrition, etc. I am sure you have other 'unrelated' symptoms that you have left out.NAET explains how undetected allergies or intolerances to food, inhalants, and contacts can be behind your pain.NAET.comI had 15 treatments with NAET and I am a brand new person. I used to suffer with horrible migrating pain and headaches that sent me to the hospital- even had a spinal tap, I thought my head was going to explode.Drugs did nothing.I spent months and months taking large amount of drugs until I found NAET.Now I have no pain- work hard, I always have energy and I don't experience muscular or mental fatigue. Zero pain.ps: I had persistant pain in the back of my head- ice or heat made it worse. Mine was related to chemical exposure.Best.
    Eatafruit78 960 Replies
    • August 16, 2007
    • 05:38 AM
    • 0
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  • One of my friends had the same symptoms and his problem was that his Atlas vertebrae was out of alignment. Try seeking care of an atlas orthogonal chiropractor. hope it helps....
    Anonymous 42,789 Replies
    • October 9, 2007
    • 09:43 PM
    • 0
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  • I don't really have a reply to that, but I'm looking for help for my mom. SHe's had a permanent headache for over a year now. She has had a CT scan and an MRI as well and they both came back normal. It is from when she wakes upo in the morning, (which are quite bad) until she goes to sleep at night...she lives on Advil...must take atleat 4 or 5 a day....for over a year! I'm very concerned and hate to see her in so much pain as she is a very active and happy person, and this has really changed her. I need some suggestions....she has high blood pressure, but pills for that din't help the headaches. She has also tried acupuncture. What else...???
    Anonymous 42,789 Replies
    • January 7, 2008
    • 04:28 AM
    • 0
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  • I am glad I found this thread. I have had pains in the back and top of my head. They kind of move. I also get tingling, like pins and needles, and sometimes numbness. I had an MRI, the Doctor said it came out fine. Where most of the pain seems to be, on the back left side of my head? My husband said my scalp is kind of red in that area. Has anyone else ever experienced anything like this? Thanks in advance for any help or advice.
    husker2 30 Replies
    • February 8, 2008
    • 11:18 PM
    • 0
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  • Hi,I am having exactly the same problems as the person above, severe pain in left back side and numbness and pins and needles down left side of face its from when i wake up to when i go to sleep!!! Does anyone know anything that will help?Thanksplease reply xx
    kellib2103 1 Replies Flag this Response
  • those with tingling and numbness have you ruled out chiari? Not all doctors know to look for it. Those with daily pain how severe is the pain, just bad or debilitating. Have your doctors ruled out a Cerebrospinal Fluid Leak?
    qwertyuiop123 453 Replies Flag this Response
  • Did they do MRIs of the C-spine too or just brain? Some of the tingling, numbness and maybe even the headaches can be caused my cervical spine herniated discs.I have 2 and fixed them and still have problems but the tingling and muscle spasms are gone and some of the headaches have gone too.The headaches I am left with are not every day and are in different spots (back right, top of left side of head, right on the "headband line", over each eye). They feel like someone stuck a chefs knife in and left it there. Nothing helps them- not aspirin, not NSAIDs, not sinus headache medicine, not Advil, not Tylenol. I also have episodic muscle weakness and dizziness. I've have a bazillion tests and the only thing out of norm is my blocked right sinus. In the process of scheduling surgery to have that cleared and see what goes away and what doesn't.Harumph.
    dizzy lizzie 192 Replies Flag this Response
  • thats weird there is a show on discovery health called mystery diagnosis and one of the episodes was actually called the woman with a knife in her head, but i'm pretty sure it isn't what you have because i think it felt like there was a knife in her head everyday in the same spot, but i'll post the link anyway just in case. "Patients with SIHS typically present with orthostatic headaches, which are maximal in intensity in upright position and diminished in the recumbent position. Other symptoms include neck pain and stiffness, nausea, diplopia, dizziness, hearing loss, photophobia, visual field defects, facial numbness, and (occasionally) radicular pain in the arms. Patients may have a history of recent lumbar puncture, spinal trauma, or surgery. In SIHS, CSF pressure is usually 40-60 mm of water, but it is sometimes normal." http://www.emedicine.com/Radio/topic139.htm sorry i didn't realize i had already suggested cerebral spinal fluid leak. i'll see if i can find something that would better explain your headaches, but maybe someone else who stumbles onto this site will want those links.
    qwertyuiop123 453 Replies Flag this Response
  • Thanks. I love that show. Appreciate the help.
    dizzy lizzie 192 Replies Flag this Response
  • You have to sort this out!! your oral medications just lead you to experiense drug rebound headaches, which is the most terrible thing to go through. I have attended a headache clinic in South Africa and recently had the migraine operation which has worked wonders- diet included!! i have being to the same doctors that you have and none of them have heloed besides this clinic. You must also look into having a X-ray of your pallete, sometimes the roof of your mouth is too high up (arched) and that causes your tounge to be pulled up into that free space and then i turn pull all your alignment out of your spine and in turn causing the pain. If that is the case like me as well they fit you with an mouth plate that you wear all day and night and it forces your tounge to be pushed down. Also every 12 weeks you are allowed to have cortisone cocktail that they inject into the relevent arteries/nerves and that is also magic i had no pain for 8 weeks or so, then you just go for a touch up- it is so much better than being on constant medications all day everyday how long has all this neing going on for??
    Tracy Venter 1 Replies
    • October 23, 2008
    • 06:06 AM
    • 0
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  • I'm 34 weeks pregnant. I had headaches before I was pregnant that they called "probably migraines, whatever that means...and had all the blood tests, MRI's, cat scans and everything was normal, about 3 years ago. For the first 7 1/2 months of my pregnancy, the headaches were better and I just took Tylenol for them and it worked. 4 weeks ago it all changed. They are way worse now and feel like a lot of pressure and blood rushing to my head, it hurts in my neck and I also get dizzy and possibly vertigo. My OB prescribed Lortab and Fioricet for me, neither seems to do much. She said I might want to call a neurologist to have it checked out. Could this just be from pregnancy or could it be something seriously wrong that just developed that I should go to emergency room for? I'm pretty scared.
    mwebster 1 Replies
    • October 25, 2008
    • 07:19 AM
    • 0
    Flag this Response
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  • Thank God I found this site. I have searched everywhere to find a common demoninator, severe headaches in the back of my head that never go away. I have had my illness for over 7 months. I took all kids of meds & nothing works, I also had a CAT scan and it came back negative. During physical actiivty I am worse, going to bed and lying down I feel okay. I have tried acupunture, massage, physio therapy but nothing has worked. I did have severe trama when I was in my 20 from diving and hitting a rock - twice! Can anyone recommend anything?
    Anonymous 42,789 Replies
    • January 29, 2009
    • 05:27 AM
    • 0
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  • Hi. I'm also a migraine victim and regular pain relievers don't help. Hurts so bad. :( I am prescribed with this stronger pain reliever. Works for me. You might want to ask your doctor about it. Hoping for a pain-free day for all of you. :)Deb
    lifeslykmusic 2 Replies
    • January 30, 2009
    • 08:35 AM
    • 0
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  • hi i have headaches for almost 3 years now. the first one i had sent me to the ER i had no idea what was happening! After going to several different doctors and trying to find out why? the only conclusion ive come up with is TMJ.I now have braces and 4 bars in my mouth which really suck!! Ive taken pain meds,but they only help a little bit if they help at all! I also have bad pain in the back of my head and neck pins and needles and pain in my shoulder! I constantley dig at my shoulder! i have it to where there are scars and sores there from digging it so much. Almost everyday of my life is a headach! I cant take much more! plus im always tired and depressed. This is not me at all.Im a get it done person and now its all i got to get out of bed sometimes! anyone got any advise or feelin me at all?
    Anonymous 42,789 Replies
    • February 2, 2009
    • 02:41 AM
    • 0
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  • My 13 year old son also is having constant headaches at the back of the head, that we have yet to find a reason or relief for. These are the things that we have done, which may give you more things to try:MRI, two of them, both normal; blood test for most common food allergies, normal, we may try a food elimination diet (?); outdoor allergy test-normal, chiropractic and massage therapy. We'll look into accupuncture.He recently had strep with two rounds of antibiotic, which was the start of these headaches.Last year he had constant bilateral ear pain, sometimes with headaches and neckaches, after lots of tests and Drs, the chiropractor figured it out.My son was grinding his teeth at night, and the chirop. said that kids that do this have parasites. He does a non-invasive test called Stress Meridian Testing to scan for parasites and also toxins in the body. He was found to have roundworms. He was treated with natural remedies for 3 months, and he gradually got better. So now, it appears this may be something different (?), because the headaches are different.We also ruled out any problems with the jaw joint, even though he may still clench his teeth at night. You can locate info. on Stress Meridian Tests online. It's a wonderful test.
    T and G 7 Replies Flag this Response
  • Wow!!! you guys so many of your symptoms are just like mine and I have a diagnoses! I have a cerebrospinal fluid leak the doctors think its in my neck. Painful headache and pressure in the back of my head relieved while lying down. Pleases research this and find a good HA specialist that knows about these. They are not that rare and can be fixed!! Let me know if you have other questions
    Rooster427 6 Replies Flag this Response
  • After I gave birth to my son in 2008, I started experiencing extremely painful head aches in the the back of my head. Nothing seemed to take the pain away...finally a relative told me to take my blood pressure, so I did and it was through the roof!!!I am sure most of you have probably had your vitals checked through Dr. visits, but if not it's a good thing to check. High blood pressure is a silent killer...as soon as my blood pressure got under control the head ache went away.
    LT8605 20 Replies Flag this Response
  • I started having severe daily headaches 2 years ago. The pain is mainly on the right side of the back of my head but it sometimes moves around. I had a Cat Scan and an MRI both of which were normal. The headaches went away for awhile but are back and worse than ever. Is it possible the Cat Scan and MRI could have missed something serious like a tumor?
    masahiko 1 Replies Flag this Response
  • Wow!!! you guys so many of your symptoms are just like mine and I have a diagnoses! I have a cerebrospinal fluid leak the doctors think its in my neck. Painful headache and pressure in the back of my head relieved while lying down. Pleases research this and find a good HA specialist that knows about these. They are not that rare and can be fixed!! Let me know if you have other questions Rooster.... was wondering if you could elaborate on your symptoms, b4 I go to my Dr with this .. I have "spaced out" feeling, almost dizzy but not quite, bi lateral ear ache, not bad, but its there ( kinda like a dull ear pressure), some head ache. this has been going on for 4+ months now.. had battery of tests ( head CT, blood panels, BP check , eye exam, ear exam both from ENT, etc....) all of my symptoms relieve, while lying down(like at bedtime), was yours like this?what tests did they do to determine cerebrospinal fluid leak? was your fix surgery related or medicine related? thanks for your reply...
    holdemplyr 2 Replies Flag this Response
  • I have been having a similar problem for many years. I am a usually healthy 18 year old female. I play soccer nearly year round and use to never get sick. Starting around my junior year in high school i started experiencing severe migrains in the back of my head and in both temples nearly daily. I went to get and MRI and it came back normal. i started going to a neurologist and he put me on tons of different medicines to try to help the migraines. Nothing helped. I then started experiencing a daily headache in the back of the head. He suggested that I go get my eyes checked because I might be straining. I got glasses and wear them, and still get migraines. sometimes I get total numbness in my left hand and arm, and begin getting black spots in the center of my vision. its extremely painful, and stops me from doing anything. I went to my first year of college this year and ended up having a series of different illnesses. I started with a sinus infection, then kidney infection, pneumonia, and lately bronchitis and upper respiratory infection. also have had MANY ear infections and have a constant pain in my ears and sometimes trouble hearing....I cannot seem to get my neurologists to run any tests on me because he says everything is normal. can anyone please help me!?!
    soccerlover0 6 Replies Flag this Response
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