Discussions By Condition: Headache

Please Help: Chronic Severe Headache

Posted In: Headache 8 Replies
  • Posted By: Adammb13
  • September 23, 2010
  • 00:48 AM

Hello, my name is Adam. For all of my memorable life, I have suffered from very severe headaches. How severe you may ask? The most painful thing I have ever experienced in my entire life.

My normal everyday headache is no more than a pestering pain, not very debilitating. However, a sudden stabbing pain can occur that completely incapacitates me. The pain varies though; oftentimes it feels like my head is expanding and going to burst, or a steel spike is jammed into the side of my temple and moving around.

The pain is usually located on both sides of my head. Going from my eyebrow all the way to the back of my head. The pain is never in my forehead or occipital lobe.

I experience a headache every other day, if not every day. A single headache can last several weeks; I'm currently suffering from one that has lasted a whole month. Excedrin Migraine and Ibuprofen doesn't even dent the pain anymore. I have tried Zomig and Maxalt, both do not help.

In the most severe cases, the headache has beaten out any pain I have ever felt. I have been so incapacitated that I threw up for 4 hours and thrashed around, banging my head into the floor hoping the pain would go away. If I could have stood up, I would have killed myself.

The pain is worse than when I broke my leg, burned my eye with phosphorus, put a knife into my finger, got impaled by a barb through my hand, etc.

Please, can anyone tell me what is wrong and what I can do?

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8 Replies:

  • Here is a list form of my symptoms: -Random immense pain (worst ever) -Constant stabbing, scraping, or exploding pain -Nausea -sometimes watery eyes -very painful to move eyes and focus -very sensitive to light and sound (akin to a concussive grenade) -bashing my head against things -laying down in a dark room -confusion (very difficult to think clearly) -difficulty concentrating -hurts to read -difficulty speaking -speech is mumbled and sickly sounding -random body pain (IE: I was walking and it felt like my leg was getting electrocuted) -Headaches can come with a preceding headache or completely random and instant -I have gotten random spikes of pain lasting a few seconds (IE: an electric pulse through the side of my head or a knife going into the side of my head) -very irritable -when I close my eyes sometimes I can see a strobe light effect on the inside of my eye lid -normally begins on the right side and pain moves throughout -many different types of headaches (some go away with rest, some medication, some last an hour some last weeks, etc)
    Adammb13 4 Replies
    • September 25, 2010
    • 07:00 PM
    • 0
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  • There was a case on Mystery Diagnosis where a woman was having the same symptoms as you. Oddly enough, it ended up being a problem with her heart. If the brain isn't getting enough oxygen from the heart pumping improperly, that will lead to what you are experiencing. Have your heart checked by a doctor.
    gr8tful 175 Replies
    • November 6, 2010
    • 08:29 AM
    • 0
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  • There was a case on Mystery Diagnosis where a woman was having the same symptoms as you. Oddly enough, it ended up being a problem with her heart. If the brain isn't getting enough oxygen from the heart pumping improperly, that will lead to what you are experiencing. Have your heart checked by a doctor.I have gotten an EKG before and the results were normal. I'm going back sometime next week for an MRI and another EKG. My neurologist put me on a new diet, but that hasn't helped at all.According to my neurologist, I've had a constant migraine for 6 years. My low level headaches are actually migraines and the higher up ones are cluster headaches or severe migraines.I also have Raynaud's Phenomenon, which I think could be restricting blood flow to my brain. I'm hoping everything gets straightened out soon, this cluster period is killing me. 3 straight months of severe migraine and cluster headache after another.
    Adammb13 4 Replies
    • November 6, 2010
    • 01:36 PM
    • 0
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  • I've been diagnosed with chronic migraines and severe sinusitis at the Same time. Been in bed for 2 months with unbearable pain to half of my head, face and forehead. My friend came to visit and tried an old Italian remedy. She cut 2 pieces of 1/3in of potatoes and placed them on my temples. Then she tied a bandana tight enough to hold the potatoes. It gave me some relief but it's not a cure.My neurologist had put me on a caffeine free diet and told me to exercise. It's been hard but my headaches are getting better. He also told me to stay away from exedrin or any meds with caffeine. They tend to give you a rebound headache. It's not easy dealing with pain, hang in there
    Anonymous 42789 Replies
    • November 25, 2010
    • 01:01 AM
    • 0
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  • I've been diagnosed with chronic migraines and severe sinusitis at the Same time. Been in bed for 2 months with unbearable pain to half of my head, face and forehead. My friend came to visit and tried an old Italian remedy. She cut 2 pieces of 1/3in of potatoes and placed them on my temples. Then she tied a bandana tight enough to hold the potatoes. It gave me some relief but it's not a cure.My neurologist had put me on a caffeine free diet and told me to exercise. It's been hard but my headaches are getting better. He also told me to stay away from exedrin or any meds with caffeine. They tend to give you a rebound headache. It's not easy dealing with pain, hang in thereThanks for the tip.It does suck, quite a lot. My doctor has me on a new diet, rest and exercise regimen, antihistamine, beta blocker, and antiinflamatories. Been doing it for about a month and a half and I feel no different. I'm just now getting rid of a bad head cold, sinus headache wasn't helping much haha.The doctor told me to stay on my regular intake of soda, the caffeine is helping. I don't get rebound headaches from medication, we already ruled it out. Plus the withdraw from caffeine will incapacitate me for about a week.I'm going back for another appointment tomorrow to check my progress and look at my MRI.
    Adammb13 4 Replies
    • November 29, 2010
    • 11:15 PM
    • 0
    Flag this Response
  • Hello, my name is Adam. For all of my memorable life, I have suffered from very severe headaches. How severe you may ask? The most painful thing I have ever experienced in my entire life.My normal everyday headache is no more than a pestering pain, not very debilitating. However, a sudden stabbing pain can occur that completely incapacitates me. The pain varies though; oftentimes it feels like my head is expanding and going to burst, or a steel spike is jammed into the side of my temple and moving around. The pain is usually located on both sides of my head. Going from my eyebrow all the way to the back of my head. The pain is never in my forehead or occipital lobe. I experience a headache every other day, if not every day. A single headache can last several weeks; I'm currently suffering from one that has lasted a whole month. Excedrin Migraine and Ibuprofen doesn't even dent the pain anymore. I have tried Zomig and Maxalt, both do not help.In the most severe cases, the headache has beaten out any pain I have ever felt. I have been so incapacitated that I threw up for 4 hours and thrashed around, banging my head into the floor hoping the pain would go away. If I could have stood up, I would have killed myself. The pain is worse than when I broke my leg, burned my eye with phosphorus, put a knife into my finger, got impaled by a barb through my hand, etc. Please, can anyone tell me what is wrong and what I can do?:( I feel so much for you. I am 59yrs old and have suffered from Migraines since I was 25. I have tried so many things. right now I am taking a drug called "Depakote" it is usually used for seizures. I guess people who had epilepsy were put on this drug and their migraines went away. This is helped ALOT. I still get headaches, but not like I used too. I do really understand everything you say, you are not making it up, many people think OH headache, that's nothing! well they have never had a real migraine then, I have been to emergency room many times, missed work,I do know they are coming out with new meds all the time so keep working with your doctor and keep hanging in there... I hope you find help
    Pandarhonda 2 Replies
    • January 16, 2011
    • 03:25 AM
    • 0
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  • :( I feel so much for you. I am 59yrs old and have suffered from Migraines since I was 25. I have tried so many things. right now I am taking a drug called "Depakote" it is usually used for seizures. I guess people who had epilepsy were put on this drug and their migraines went away. This is helped ALOT. I still get headaches, but not like I used too. I do really understand everything you say, you are not making it up, many people think OH headache, that's nothing! well they have never had a real migraine then, I have been to emergency room many times, missed work,I do know they are coming out with new meds all the time so keep working with your doctor and keep hanging in there... I hope you find helpI'm glad you have gotten better. :-)So far what the neurologist has been able to tell me is that I suffer from chronic migraines (with and without aura), icepick headaches, and cluster headaches. I'm hoping to get a referral to the headache clinic in Cleavland to check for something else that could be causing them.It is true, not many understand the amount of pain I go through several times a day, even discounting my Raynaud's Disease.After 5 months of using/trying Topamax (anticonvulsant), Verapamil (calcium channel blocker), Atenolol (beta blocker), Treximet (Sumatriptan), Maxalt (Rizatriptan Benzoate), Ibuprofen, Valium, Acetaminophen, and Aspirin the insurance approved my claim for a surgical procedure. The surgery consists of "fixing" my migraine trigger sites (eyebrows, temples, nose, and back of the head). With the surgery I have a good chance of significantly reducing the migraine pain or curing them.I do hope the procedure works, I have quite literally ran out of medications, aside from Botox.
    Adammb13 4 Replies
    • February 16, 2011
    • 10:18 PM
    • 0
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  • I had cluster headaches daily for over 22 years. At one period in my life I was getting 7 65 minute length headaches per day.
    Anonymous 42789 Replies Flag this Response
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