I'm a 40 year old female. Have Multiple Sclerosis (RR) since 1996 but currently am in remission. Also since around 1996 I've had migraines that last for 4 to 5 days and I get them every 4 to 5 weeks.
In October I started what I thought was just a normal migraine but I still have pain... doctors just tell me it's a long migraine but I am not convinced. He then said go see a Chiropractor (those guys cost a fortune!) the Chiropractor said 'It's your Occipital nerve that's causing the problem' so I googled the Occipital nerve and came across Occipital Neuralgia which fits my symptoms more-or-less. My symptoms are below - can anyone identify with these?
Pain in base of head at back on left
Pain in neck, left side - when I prod around I can feel referred pain up to the pain felt at the top of head.
Pain behind left eye and temple
Stabbing page one inch above ear
Worse when I lay down on left side
Sinusses feel blocked on left in that there is pressure but don't know if it really is my sinuses or just an illusion
If I get up suddenly, sometimes I feel pressure build up in my head as if I have high blood pressure suddenly
Last time I had BP taken (2 weeks ago), it was actually low (??!) 105 over something.
When I lay down I can feel/hear my heartbeat - don't know if relevant
Get tired REALLY easily
Physical activity makes it worse... when I feel ok-ish I try and do things then I feel terrible.. today I painted my wall and now it's terrible again.
I have tried stopping drinking wine (I love wine and drink too much!) but it makes no difference.
My son says 'Don't drink, don't do anything physical' blah blah but what's the point in living if I can't do anything fun?!!!!
Really hacked off.. it's New Year's Eve and here I am writing headache symptoms when everyone else I know is probably out having fun!
Thanks for listening...