Discussions By Condition: Headache

Pain on Crown of Head by Muscle Spasms of Spine

Posted In: Headache 2 Replies
  • Posted By: Anonymous
  • April 20, 2009
  • 03:57 AM

For the past 11 years I have endured pain on the crown of my head like someone is taking a knife and cutting up there. It is a nawing pain. I was diagnosed with pinched nerve on both sides of my neck plus carpral tunnel in both my wrists which I wear braces at night. I have a lumbar hernia, and I have small herniations in 2 disks in my neck and 2 disks lost some height. I am getting throbbing pain where the shoulders meet the spine and about 1 1/2 to 2 inches down. I think my spine is going through muscle spasms and it hurts. I can't lie down or sit comfortably on the couch with moving every second.....I am figetty. I was diagnosed also with pernicious anemia in Dec. of 2006. I told my hubby if he doesn't get me to see a stomach doctor, I won't live to see 2007. I was getting to the point where I felt my brain was in a coma and my hands would shake, but only I could see through my eyes and was awake. There neurologist told me that was because I wasn't making new red blood cells that carry oxygen to the brain. The gastroenterologist said that she would try to reverse the nerve damage done by the pernicious anemia, but I don't truely know how long I had it? I could have had it for awhile...I believe it could have been for 2 years. Is it possible to have it for 10 years before it being diagnosed? I do know my level was something like 320 or 250 when I was diagnosed and I was getting pancreatitis (my lipase level was high). I am currently also going through post menopause or menopause which started when I was 46....now I'm going to be 51 in June.

I am going to see a new neurologist ...but I think I have to stick to this one because I'm tired of jumping from one to another. Wherever I tell them I have pernicious anemia...it's like a death sentence or something and they don't want to help me at all. I can't go to therapy because the pain on the crown of my head is simply devastating and then I start having bladder problems where I have to freqently urinate. I'm having muscle problems....bad. I'm taking 100 ml of Celebrex 1 time a day and Ibuprofen 600 mg but it's not really helping.

I feel so helpless I don't know what to do anymore. If only I could get rid of the pain on the crown of my head, I feel I would have a better quality of life and be able to do alot more. Because of the menopause, I only got 5 hours of sleep....I get the sweats at night...it's terrible. After several weeks or 1 month, the pain on my head gets better to the point I don't feel it but when it comes back, it's like a truck hit me on the head and the rest of my body.

Anyone have any ideas? One doctor said I have an autoimmune disease and I asked him which one. He was a gastrointestinal doctor and he said to not watch what I eat because I have reflux, because life is too short not too. What does that mean?

I don't know what to think anymore. Help.

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2 Replies:

  • I am replying to myself for anyone who reads my post back in 2009! Since then I have learned that I have a central herniation in my neck + a bone spur that is impinging in the spinal canal in my neck. I have throbbing pain in my thoracic most probably due to the fact that my right shoulder is drooping after my colarbone break in 1997. I was told at my age of 52, no doctor will risk re-breaking it to set the bone correctly. It might have worse consequences after it's done. So, I'm getting pulling on my neck and pulling in my thoracic which elevates the muscle spasm problem.However, before my bicycle fall in 1997, 1 year before that, I bent down to file something at work and I couldn't straighten-up my spine. My company nurse sent me to 3 orthopedic doctors who worked together and I was injected in my cervical spine, my thoracic, and my lumbar. While going home that night, I felt the pain on the crown of my head but couldn't believe the symptom I was experiencing and dared not to tell my husband as he might think I was dellusional or something. I thought if I go home and rest it might go away and that it did. I was recently informed by a neuro-surgeon that it is due to nerve damage + I strongly disagree with him as I had this pain before my accident to my colar bone.It is really important for doctors to ask about your past history 1st before they jump to conclusions. I feel out of a crib + broke my arm when I was 18 months old. As I got older and then in my late 20's, early 30's, I started to feel stiffness and achiness in my neck. I remember going to a spine doctor and being given muscle relaxants because my spine was going through spasms. I believe this is due to my injury when I was a baby!However, my last surgery to my shoulder, I had my ligaments tightened to correct the drooping in hopes that it would alleviate the pulling in my neck and spine + the doctor informed me that it may or may not work. It feels like the pain in my right arm is worse probably due to the fact that my neck injuries got worse from my MRI's of 5 years ago. Also, the shoulder doctor told me I had a bone spur in my shoulder that he fixed and a rotator cuff tear which the MRI did not reveal before having surgery.I don't know why I am getting bone spurs + could I have an underlying autoimmune disease as I do have perniciious anemia?:(
    Happy_go_lucky612 5 Replies
    • February 22, 2011
    • 06:06 AM
    • 0
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  • The pain at your shoulders and the pain at the top of your head sound like they are related. I would go to either an alternative pain management doctor and/or a very qualified massage therapist. Your shoulder pain could be causing your head pain. This type of pain is very common for someone who has had an injury or bad posture. Have the massage therapist evaluate your shoulder and neck muscles to see if there is a problem. For the night sweats, I would try some natural over the counter progesterone cream. A good cream can work wonders. Also, have all your hormone's tested to see how low they are. Good luck
    Anonymous 42789 Replies Flag this Response
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