Discussions By Condition: Headache

Never Ending Headache

Posted In: Headache 12 Replies
  • Posted By: Spelunk
  • December 5, 2009
  • 05:35 PM

I have had a headache since mid June of 2009. I have been to my family doctor and 3 neurologists, and know one has been able to help me. I do not have a history of headaches. In fact, until this all started, it was very rare that I ever had a headache. They started when I was working out of town. I attributed them to being dehydrated from being outdoors in the heat. I was overseeing a construction project and spent most of my time outdoors, which is normal. They started out as a pounding / throbbing headache. I would be fine in the mourning and by 6pm I was in severe pain. This lasted for about a week. I had trouble getting to sleep, i.e. 3am before I passed out from exhaustion. The pounding / throbbing went away and have been left with a constant headache. It is usually very light (if one at all) in the mourning, and progressively gets worse as the day goes on.
I went to my family doctor soon after they started and he ordered an MRI , started me on topamax and referred me to a neurologist. The MRI was clear. The First Neurologist diagnosed me as having migraines ( Took me off Topamax ) and prescribed the following. – Midrin Immitrex, and a cocktail of drugs through an IV ( 3 days ), phenegren & fentonol shot. None did any good, some made it worse. I switched doctors, to a second neurologist. He diagnosed me as having Tension headaches. At this point, we are now mid August. He prescribed Elavil and zanaflex. These did seem to help once I was up to 100 mg of Elavil. I was also prescribed vicidine for the pain which also did little to help. He finally performed a nerve block and this lasted about 5 hours and then my head fealt as if were going to explode. After 2 months of seeing this doctor, he said there was nothing more he could do and was going to refer me to the Cleveland Clinic. He wouldn’t take or return my calls after this and basically abandoned me.
At this point I went to have my eyes checked to see if there was a problem I was unawhare of. My eyesight is near perfect. She did refer me to the neurologist that I am currently under the care of. He had me stop taking all meds and stated me on Topamax working up to 100mg a day. After no result me switched back to Elavil and put me on a fentenol patch as the pain was becoming debilitating. This is where I stand today. Nearly 6 months later and no better off than I was before. I did just have another MRI of my neck and I am awaiting the results.
The pain is primarily located on the top portion of my head on both sides with minor tingling on the left side. As the day progresses the pain gets more intense and covers more from back to front on both sides.

Please cane someone help me. I’m not sure how much more of this I can take. Its not the pain anymore, it’s the mental agony.

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12 Replies:

  • I have had a headache since mid June of 2009. I have been to my family doctor and 3 neurologists, and know one has been able to help me. I do not have a history of headaches. In fact, until this all started, it was very rare that I ever had a headache. They started when I was working out of town. I attributed them to being dehydrated from being outdoors in the heat. I was overseeing a construction project and spent most of my time outdoors, which is normal. They started out as a pounding / throbbing headache. I would be fine in the mourning and by 6pm I was in severe pain. This lasted for about a week. I had trouble getting to sleep, i.e. 3am before I passed out from exhaustion. The pounding / throbbing went away and have been left with a constant headache. It is usually very light (if one at all) in the mourning, and progressively gets worse as the day goes on.I went to my family doctor soon after they started and he ordered an MRI , started me on topamax and referred me to a neurologist. The MRI was clear. The First Neurologist diagnosed me as having migraines ( Took me off Topamax ) and prescribed the following. – Midrin Immitrex, and a cocktail of drugs through an IV ( 3 days ), phenegren & fentonol shot. None did any good, some made it worse. I switched doctors, to a second neurologist. He diagnosed me as having Tension headaches. At this point, we are now mid August. He prescribed Elavil and zanaflex. These did seem to help once I was up to 100 mg of Elavil. I was also prescribed vicidine for the pain which also did little to help. He finally performed a nerve block and this lasted about 5 hours and then my head fealt as if were going to explode. After 2 months of seeing this doctor, he said there was nothing more he could do and was going to refer me to the Cleveland Clinic. He wouldn’t take or return my calls after this and basically abandoned me. At this point I went to have my eyes checked to see if there was a problem I was unawhare of. My eyesight is near perfect. She did refer me to the neurologist that I am currently under the care of. He had me stop taking all meds and stated me on Topamax working up to 100mg a day. After no result me switched back to Elavil and put me on a fentenol patch as the pain was becoming debilitating. This is where I stand today. Nearly 6 months later and no better off than I was before. I did just have another MRI of my neck and I am awaiting the results. The pain is primarily located on the top portion of my head on both sides with minor tingling on the left side. As the day progresses the pain gets more intense and covers more from back to front on both sides. Please cane someone help me. I’m not sure how much more of this I can take. Its not the pain anymore, it’s the mental agony. First off I completely understand the mental agony. No pun intended but you start to think it's all in your head. I was actually relieved when I found out part of what was wrong with me. I have had a nonstop headache that escalates into migraines for going on five years. The migraines were so frequent that I lost my career that I loved and was put on Topomax to block them. It has reduced the number of migraines I get so even though I do get side effects from it they are worth it. I have more of a life now even though I still cannot remember what it is like to not have a headache. I have a neurologist, pain management center, primary care physician, and reflexologist as my team. I went to physical therapy and that is where we accidentally found out what the problem really is. For me my occipitals spasm and send up shooting pain up my rams horn and right behind my eyes. It always is centered around the base of my skull and unfortunately for me there is no way to fix it. So they know what's wrong but sorry we don't know how to stop it. I am unfortunately allergic to every muscle relaxant so I can't take them at all. The pain meds do very little so it's very tough. I know what you are going through and you are not alone. I did recently find something that has been helping me tremendously and that is why I am writing. I tried acupuncture and it didn't work for me. Your feet are very important when you are suffering from headaches. I would look for a reflexologist in your area and try and get treatment from one. This has so far been the only thing that has shown me actual results!!! Sometimes we have to resort to alternative medicine in addition to or instead of modern medicine. You certainly have nothing to lose and they won't make you any worse. I tried massage therapy and it was good while I was there but bad after I left. If you get the chance to study or look it up all your organs and spinal functions are based in your feet. If you truly aren't getting results anywhere else try it. Good luck to you and I wish you nothing but relief!!!
    ladeegodiva 1 Replies
    • December 5, 2009
    • 10:40 PM
    • 0
    Flag this Response
  • I have had a headache since mid June of 2009. I have been to my family doctor and 3 neurologists, and know one has been able to help me. I do not have a history of headaches. In fact, until this all started, it was very rare that I ever had a headache. They started when I was working out of town. I attributed them to being dehydrated from being outdoors in the heat. I was overseeing a construction project and spent most of my time outdoors, which is normal. They started out as a pounding / throbbing headache. I would be fine in the mourning and by 6pm I was in severe pain. This lasted for about a week. I had trouble getting to sleep, i.e. 3am before I passed out from exhaustion. The pounding / throbbing went away and have been left with a constant headache. It is usually very light (if one at all) in the mourning, and progressively gets worse as the day goes on. I went to my family doctor soon after they started and he ordered an MRI , started me on topamax and referred me to a neurologist. The MRI was clear. The First Neurologist diagnosed me as having migraines ( Took me off Topamax ) and prescribed the following. – Midrin Immitrex, and a cocktail of drugs through an IV ( 3 days ), phenegren & fentonol shot. None did any good, some made it worse. I switched doctors, to a second neurologist. He diagnosed me as having Tension headaches. At this point, we are now mid August. He prescribed Elavil and zanaflex. These did seem to help once I was up to 100 mg of Elavil. I was also prescribed vicidine for the pain which also did little to help. He finally performed a nerve block and this lasted about 5 hours and then my head fealt as if were going to explode. After 2 months of seeing this doctor, he said there was nothing more he could do and was going to refer me to the Cleveland Clinic. He wouldn’t take or return my calls after this and basically abandoned me. At this point I went to have my eyes checked to see if there was a problem I was unawhare of. My eyesight is near perfect. She did refer me to the neurologist that I am currently under the care of. He had me stop taking all meds and stated me on Topamax working up to 100mg a day. After no result me switched back to Elavil and put me on a fentenol patch as the pain was becoming debilitating. This is where I stand today. Nearly 6 months later and no better off than I was before. I did just have another MRI of my neck and I am awaiting the results. The pain is primarily located on the top portion of my head on both sides with minor tingling on the left side. As the day progresses the pain gets more intense and covers more from back to front on both sides. Please cane someone help me. I’m not sure how much more of this I can take. Its not the pain anymore, it’s the mental agony. Please look into basal migraines. I hope it helps. It's frustrating when doctors give up...
    Anonymous 42789 Replies
    • December 29, 2009
    • 04:18 PM
    • 0
    Flag this Response
  • I have had a headache since mid June of 2009. I have been to my family doctor and 3 neurologists, and know one has been able to help me. I do not have a history of headaches. In fact, until this all started, it was very rare that I ever had a headache. They started when I was working out of town. I attributed them to being dehydrated from being outdoors in the heat. I was overseeing a construction project and spent most of my time outdoors, which is normal. They started out as a pounding / throbbing headache. I would be fine in the mourning and by 6pm I was in severe pain. This lasted for about a week. I had trouble getting to sleep, i.e. 3am before I passed out from exhaustion. The pounding / throbbing went away and have been left with a constant headache. It is usually very light (if one at all) in the mourning, and progressively gets worse as the day goes on. I went to my family doctor soon after they started and he ordered an MRI , started me on topamax and referred me to a neurologist. The MRI was clear. The First Neurologist diagnosed me as having migraines ( Took me off Topamax ) and prescribed the following. – Midrin Immitrex, and a cocktail of drugs through an IV ( 3 days ), phenegren & fentonol shot. None did any good, some made it worse. I switched doctors, to a second neurologist. He diagnosed me as having Tension headaches. At this point, we are now mid August. He prescribed Elavil and zanaflex. These did seem to help once I was up to 100 mg of Elavil. I was also prescribed vicidine for the pain which also did little to help. He finally performed a nerve block and this lasted about 5 hours and then my head fealt as if were going to explode. After 2 months of seeing this doctor, he said there was nothing more he could do and was going to refer me to the Cleveland Clinic. He wouldn’t take or return my calls after this and basically abandoned me. At this point I went to have my eyes checked to see if there was a problem I was unawhare of. My eyesight is near perfect. She did refer me to the neurologist that I am currently under the care of. He had me stop taking all meds and stated me on Topamax working up to 100mg a day. After no result me switched back to Elavil and put me on a fentenol patch as the pain was becoming debilitating. This is where I stand today. Nearly 6 months later and no better off than I was before. I did just have another MRI of my neck and I am awaiting the results. The pain is primarily located on the top portion of my head on both sides with minor tingling on the left side. As the day progresses the pain gets more intense and covers more from back to front on both sides. Please cane someone help me. I’m not sure how much more of this I can take. Its not the pain anymore, it’s the mental agony. If it's unilateral it might be 'hemicrania continua'. :rolleyes:I experience headaches since May 2009 and at first migraine was diagnosed. The combination of constant headaches and worser headaches (Migraine?) looks like 'hemicrania continua'.
    ross-syndrome.com 7 Replies Flag this Response
  • Hello,I have undiagnosed issues and it started with spine and then massive unrelenting headache. My headache is gone but I had skull and facial injuries etc...While researching I read a lot about CSF cereberal spinal fluid leakage. This can cause headaches more when you are standing upright and get worse the longer you are upright.They tend to lesson when you lay flat. I hope it helps. They can do a spinal tap for it to find out the pressure and if you have this it is easily fixed normally with a blood plug. I really don't get doctors. They give up to easily on people. Sad. I am still trying to find out my issues and what the cause is but I wish you luck.
    Anonymous 42789 Replies Flag this Response
  • I have had a headache since mid June of 2009. I have been to my family doctor and 3 neurologists, and know one has been able to help me. I do not have a history of headaches. In fact, until this all started, it was very rare that I ever had a headache. They started when I was working out of town. I attributed them to being dehydrated from being outdoors in the heat. I was overseeing a construction project and spent most of my time outdoors, which is normal. They started out as a pounding / throbbing headache. I would be fine in the mourning and by 6pm I was in severe pain. This lasted for about a week. I had trouble getting to sleep, i.e. 3am before I passed out from exhaustion. The pounding / throbbing went away and have been left with a constant headache. It is usually very light (if one at all) in the mourning, and progressively gets worse as the day goes on. I went to my family doctor soon after they started and he ordered an MRI , started me on topamax and referred me to a neurologist. The MRI was clear. The First Neurologist diagnosed me as having migraines ( Took me off Topamax ) and prescribed the following. – Midrin Immitrex, and a cocktail of drugs through an IV ( 3 days ), phenegren & fentonol shot. None did any good, some made it worse. I switched doctors, to a second neurologist. He diagnosed me as having Tension headaches. At this point, we are now mid August. He prescribed Elavil and zanaflex. These did seem to help once I was up to 100 mg of Elavil. I was also prescribed vicidine for the pain which also did little to help. He finally performed a nerve block and this lasted about 5 hours and then my head fealt as if were going to explode. After 2 months of seeing this doctor, he said there was nothing more he could do and was going to refer me to the Cleveland Clinic. He wouldn’t take or return my calls after this and basically abandoned me. At this point I went to have my eyes checked to see if there was a problem I was unawhare of. My eyesight is near perfect. She did refer me to the neurologist that I am currently under the care of. He had me stop taking all meds and stated me on Topamax working up to 100mg a day. After no result me switched back to Elavil and put me on a fentenol patch as the pain was becoming debilitating. This is where I stand today. Nearly 6 months later and no better off than I was before. I did just have another MRI of my neck and I am awaiting the results. The pain is primarily located on the top portion of my head on both sides with minor tingling on the left side. As the day progresses the pain gets more intense and covers more from back to front on both sides. Please cane someone help me. I’m not sure how much more of this I can take. Its not the pain anymore, it’s the mental agony. Have you ever consult with a chiropractor.....
    joestingle 7 Replies Flag this Response
  • Have your heart checked by a doctor. It may not be pumping enough oxygen to your brain, causing the headache.
    gr8tful 175 Replies
    • November 6, 2010
    • 08:40 AM
    • 0
    Flag this Response
  • First off I completely understand the mental agony. No pun intended but you start to think it's all in your head. I was actually relieved when I found out part of what was wrong with me. I have had a nonstop headache that escalates into migraines for going on five years. The migraines were so frequent that I lost my career that I loved and was put on Topomax to block them. It has reduced the number of migraines I get so even though I do get side effects from it they are worth it. I have more of a life now even though I still cannot remember what it is like to not have a headache. I have a neurologist, pain management center, primary care physician, and reflexologist as my team. I went to physical therapy and that is where we accidentally found out what the problem really is. For me my occipitals spasm and send up shooting pain up my rams horn and right behind my eyes. It always is centered around the base of my skull and unfortunately for me there is no way to fix it. So they know what's wrong but sorry we don't know how to stop it. I am unfortunately allergic to every muscle relaxant so I can't take them at all. The pain meds do very little so it's very tough. I know what you are going through and you are not alone. I did recently find something that has been helping me tremendously and that is why I am writing. I tried acupuncture and it didn't work for me. Your feet are very important when you are suffering from headaches. I would look for a reflexologist in your area and try and get treatment from one. This has so far been the only thing that has shown me actual results!!! Sometimes we have to resort to alternative medicine in addition to or instead of modern medicine. You certainly have nothing to lose and they won't make you any worse. I tried massage therapy and it was good while I was there but bad after I left. If you get the chance to study or look it up all your organs and spinal functions are based in your feet. If you truly aren't getting results anywhere else try it. Good luck to you and I wish you nothing but relief!!!If you read this post...I was wondering what your allergies to muscle relaxers were like. I was diagnosed with muscle spasms in my neck and shoulder but I do not feel that is all that is going on. The muscle relaxer I was put on that I could tolerate did not heal me. The next one that I was put on almost took my life from the side effect and also a physical therapist did TENS on me that caused a similiar reaction as the muscle relaxer. And the last pain medication that was given for the now new nerve damage going down my left arm caused another bad reaction like the muscle relaxer, etc. Also I was given Gabapentin which caused a lesser but still severe bad reaction. The severe reactions were as: my hands clamped up on the phone as I was trying to call for help. I could not release the phone. The muscle contractures continued down internally through my whole body to my toes and then back up. They were gripping, and causing my body to bow into a halfmoon rigidity. This went on for a long, long time. At the end, I was in shock and my right leg numb and my gastrointestinal track was so ripped up it took months to heal. Nauseated, could not eat. I had on-going headaches for years also and then was involved in a fatal head-on collision at high speed. After healing the headaches continued but eventually developed excruciating pain inside the back of my head, neck and left shoulder. I also went to a physical therapist at this point which administered trigger point pressure to certain areas. This helped eventually but as soon as I walked or moved the pain returned. Still looking for the cause and what will heal me of this pain. I am scared to death of doctors now and medication.
    Anonymous 42789 Replies
    • November 14, 2010
    • 11:19 PM
    • 0
    Flag this Response
  • Check out the 'constant head pressure' thread...I wrote a reply about sinuses. Your symptoms sound familiar to what I'm going through.
    Anonymous 42789 Replies
    • November 17, 2010
    • 06:44 AM
    • 0
    Flag this Response
  • The Migraine headaches has suffered million of people these days. It may the due stress. It may be caused by hormonal imbalance in our body. Natural dietary products under physician guidance you can take to cure this.
    Alenjacks 14 Replies
    • January 20, 2011
    • 09:58 PM
    • 0
    Flag this Response
  • Sometimes in medicine we get foccused to much on the labs and test and forget to treat the patient. My first question and further more suggestion would be to try going gluten and wheat free. This can help a lot things including headaches. It is amazing what symptoms can be caused by food intolerance or allergies. Try going gluten and wheat free for 2 weeks. See if that helps at all. It will not hurt anything and may just surprise you. Hope it helps.
    Anonymous 42789 Replies Flag this Response
  • I know this sounds weird, and like a long shot, but I once suffered the same kind of never ending migraines, did my research, and I found that a very small percent of people are allergic to a by product produced in the making of soft cheese. Try eliminating it from your diet. I eliminated all cheese from my diet for 3 months, and then I reintroduced small quantities of hard cheese. By the second month my migraines diminished, and now I still get them occasionally but not like I did. Of course, continue seeing your doc to rule out other issues, but it is a small step that can help immensely!!!
    Amyrule30 1 Replies
    • January 29, 2012
    • 07:46 AM
    • 0
    Flag this Response
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  • Going through the same thing, year and a half now. If you have any results or just need a friend let me know.
    Shainalovesmusic 1 Replies
    • September 22, 2013
    • 11:53 PM
    • 0
    Flag this Response
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