Discussions By Condition: Headache

Barometric Change Migraine

Posted In: Headache 3 Replies
  • Posted By: Abbydoodle
  • September 13, 2008
  • 01:10 AM

I am under current treatment for migraines and seizures. Infact yesterday was taken off 48 hour EEG trying to trace my seizures. Have had tonic clonic etc and went into coma. Have underlying genetic problems but those were normal at time.

However to make thinks interesting today (wished they had kept machine on head) I live in Houston. Barometric readings for my neighborhood started dropping during the night last night. The headache woke me up. I looked up on map sure enough millibars dropping with the bay pressures. So looked up emergency treatment.

Started with my medication, ketogenic diet of my cocoa butter and peanut butter, muscle relaxants, relpax for migraines and layed down. When husband rose, told him that eye would be over our neighborhood. Well of course late tonight they have confirmed that eye will come over our neighborhood. Duh, just ask my migraine.

I also had him get some emergency zanex. Am trying to lay zoned out on bed fighing the migraine. Dozing in and out of life. House is boarded up. We are not in the surge zone. We are not stupid enough to stay if that was the issue.

It was a barometric shear that caused me to have a seizure and then go into a coma a year and half ago. I am trying everything I can to make sure I am okay. Only thing I do not have and wish I did was cylinder of oxygen. Have appointment with neurologist in about 3 weeks. We are going to talk.

When I lay down, hubby keeps checking on me, and dogs are laying with. I am taking the cocoa butter and peanut butter by eating the peanut butter cups (epilepsy web page). Took extra seizure pill. Will take strong migrain pill when I lay down to sleep and take another zanex. I am going to beat Hurricane Ike. I don't like Ike.

Say prayers. My whole body hurts. My head feels like it will explode. Have had some nausea. Severe pain and pressure behind eyes.

So ironic, I told people at least two days ago that it was coming over my house in Houston based on the way my body hurt. That was when still targeted for South Texas. Hubby believed me and we updated our hurricane box of flashlights, medicine, books, food, battery powered fans, dog food, etc. And now the turkey will sneak through here tonight.

Wish I could club it with a huge baseball bat. As kid and teenager I use to love hurricanes and their smell --lived on Texas coast. Now they are my enemy --I know it has to do with the amount of fluid and oxygen in my head because of a really bad disorder I now have. In fact I know that the coma is how most of us have died in the past. I am determined to fight.

Sorry rambling. I am po'd tonight. I feel like the storm is a mean ugle personal attack monster and my body is a traitor tonight. I was not really expecting it to be this bad. This is my pitty party letter. I hopefully will be better when this sucker goes somewhere else.
:mad::mad:

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3 Replies:

  • Dear Abbydoodle,I read your posts on your epilepsy and the global history of your illness. I have also probably like you an urea cycle disorder (maybe an Ornithine TransCarbamylase Deficiency or a less common disorder like CPS or NAGS deficiency, but no official diagnosis yet since I don't had a liver biopsy or DNA testing). First, here are some words of introduction on myself: I'm a single male student living near Paris (in France); my illness began 4 years ago (I have had no major disease before but I was a puny child) like a flu (headaches, joint and bone aches, little fever) and unfortunately the headaches never subsided. First we believed (me and the physicians I consulted) it were tension headaches related to stress and psychological problems but some months later I was beginning to think that there was a food trigger. So I decided to remove gluten from my alimentation (like you, strange we have followed the same way) with some soothing, however new symptoms appears with seizures. Keeping on studying was very difficult but I fought. My state seriously deteriorates in summer 2007 when I started to take valproic acid (only 2 days) to calm my seizures (I had convulsive seizures and also arm jerks): I began to have chronic depersonalization states with high confusion, very bad sleep, high mental tension, chronic fears of becoming crazy and a very low concentration; working was nearly impossible. Since the beginning of my illness I had lots of medical exams with very few results (tests were made for celiac disease, Lyme, porphyria, ... all negative). In January I began to think to a probable urea cycle disorder and had blood-tests showing increased ammonia and very high glutaminemia. Now I follow an hypoprotidic diet resulting with less anxiety, reduced depersonalization, better stamina but I have always important difficulties for concentration and chronic headaches (especially temporal and occipital headaches). I have no more ammonia but a persistent hyperglutaminemia (and I don't know how to decrease my glutaminemia).I read your tip about the peanut butter cups: I will try to get some in Paris (it won't be easy) but I have an important intolerance for chocolate that increases my headaches and nausea (so I don't know if it will work but maybe the peanut butter can make miracles). Fortunately we don't have cyclones in France but like you my state is very dependent on the weather.No allopathic treatment has worked on me: I have a global drug intolerance (especially drugs that are highly metabolized by the liver like all people suffering of an UCD I assume). However some vitamins and minerals helped me like calcium, vitamin D, magnesium, vitamin B6, iron, phosphorus and of course zinc. In fact zinc is a co-factor for OTC production and may be a great help.I'm glad you can have some relative relief with drugs (anti-epileptics, migraine soothers) because almost all drugs and phytotherapic remedies increase my symptoms (even a tiny amount of fluoxetine -Prozac- can increase my jerks and mental tension). I have tested lots of benzodiazepines, anti-depressants, antalgics with no success. For me the only solution is being drug-free and resting in my bed in the dark. However maybe I will try to take some milk thistle since it's known to strenghten the liver (and the liver is our weakest link).We must hope to recover from this illness and live a life without headaches and with restored mental abilities.I wish you Abbydoodle a better health (and hope my English is not too terrible),AppleCore
    AppleCore 1 Replies
    • September 22, 2008
    • 09:36 PM
    • 0
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  • I am under current treatment for migraines and seizures. Infact yesterday was taken off 48 hour EEG trying to trace my seizures. Have had tonic clonic etc and went into coma. Have underlying genetic problems but those were normal at time. However to make thinks interesting today (wished they had kept machine on head) I live in Houston. Barometric readings for my neighborhood started dropping during the night last night. The headache woke me up. I looked up on map sure enough millibars dropping with the bay pressures. So looked up emergency treatment. Started with my medication, ketogenic diet of my cocoa butter and peanut butter, muscle relaxants, relpax for migraines and layed down. When husband rose, told him that eye would be over our neighborhood. Well of course late tonight they have confirmed that eye will come over our neighborhood. Duh, just ask my migraine. I also had him get some emergency zanex. Am trying to lay zoned out on bed fighing the migraine. Dozing in and out of life. House is boarded up. We are not in the surge zone. We are not stupid enough to stay if that was the issue. It was a barometric shear that caused me to have a seizure and then go into a coma a year and half ago. I am trying everything I can to make sure I am okay. Only thing I do not have and wish I did was cylinder of oxygen. Have appointment with neurologist in about 3 weeks. We are going to talk. When I lay down, hubby keeps checking on me, and dogs are laying with. I am taking the cocoa butter and peanut butter by eating the peanut butter cups (epilepsy web page). Took extra seizure pill. Will take strong migrain pill when I lay down to sleep and take another zanex. I am going to beat Hurricane Ike. I don't like Ike. Say prayers. My whole body hurts. My head feels like it will explode. Have had some nausea. Severe pain and pressure behind eyes. So ironic, I told people at least two days ago that it was coming over my house in Houston based on the way my body hurt. That was when still targeted for South Texas. Hubby believed me and we updated our hurricane box of flashlights, medicine, books, food, battery powered fans, dog food, etc. And now the turkey will sneak through here tonight. Wish I could club it with a huge baseball bat. As kid and teenager I use to love hurricanes and their smell --lived on Texas coast. Now they are my enemy --I know it has to do with the amount of fluid and oxygen in my head because of a really bad disorder I now have. In fact I know that the coma is how most of us have died in the past. I am determined to fight. Sorry rambling. I am po'd tonight. I feel like the storm is a mean ugle personal attack monster and my body is a traitor tonight. I was not really expecting it to be this bad. This is my pitty party letter. I hopefully will be better when this sucker goes somewhere else. Migraines and epilepsy are heavily comorbid, since they are both fundamentally seizure disorders. A migraine is a seizure. Specifically, a form of simple partial seizure, which usually but not always is followed by a severe headache. The headache is not the migraine; it is an aftereffect of the migraine. Not all headaches that a migraine patient gets are from migraines.Atmospheric pressure changes cannot induce a seizure, based on current medical knowledge. There are a small handful of dubious fringe studies that suggest a possible correlation between them, but atmospheric pressure is not a demonstrated clinical trigger of seizure activity. If you are getting severe headaches, then you have severe headaches. That doesn't automatically mean they are all migraines. Again, a migraine is not fundamentally a headache. Pressure changes can cause headaches. Even bad ones.I don't know what you mean by "zanex" but if you mean Xanax, you should probably not be taking it, at least not in the way you are describing. It's not a treatment for epilepsy or migraine disorder, and taking benzodiazepines causally is very dangerous. If you were given Xanax to help you manage seizure convulsions, you should ask for something else. The use of benzos in "anti-tremor therapy" is very controversial and dangerous, since benzos can induce seizures. If you take Xanax habitually, then do not suddenly stop taking it, as this can cause seizures.
    bobwick 21 Replies
    • October 6, 2008
    • 11:00 AM
    • 0
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  • Thanks for comments. I had the head aches before every started on med treatments. That is the night mare. Now saying gee could the bee the meds. Well ding dang darn it. I had this be fore we started treatment. Sorry if we had not used the regime we did to get through Ike, don't think I would be living now. Something is wrong some where. There is a lot of issues tied to barometric pressure. I have been tracking. The EEG is fine, no known epilepsy at this time. Still have all types migraines with all types of auras and siezures. Am going to a specialist who only treats patients like me with liver disorders. Will go over my liver disorder and see if it is causing all of this; look at meds, see if we can rebalance my life. I am for anything. Paint my heiny purple if it will work. I have had two more instances of seizures. And one of Terror. Pain in head everyday. Something is wrong. We just need to see what.
    Abbydoodle 138 Replies
    • October 19, 2008
    • 05:16 AM
    • 0
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