Hello out there, I am new to this site and hope that my experiences/symptoms stir some new thoughts with some unwitting neurologist or neurologist wannabe.I'm a 43 year old male in what most doctors would consider fantastic health. I LOOK alot younger or so I am told, I have an extremely well kempt physique, which is proving to be my demise. Doctors look at me when they enter the exam room and automatically assume I am malingering or faking my illness. For the past 20 years I have progressively suffered from a mystery problem. It started with buzzing and tingling throughout my body and an intolerance to heat and bright light. I have chronic joint pain in all of my large joints and blurred vision. This is an intermittent condition that occurs WITH major weather changes but is worse in the summer. I experience what I refer to as tremors(may not be the right way to describe this, but....) I tremble from the inside and it is followed by flu-like symptoms and extreme fatigue. It feels like I have constant voltage coursing through my body. I have night sweats that only affect my lower extremities (wierd). I have undergone a ton of tests that all return normal, MRI of every portion of my spine and brain, a spinal tap, CT scans and more blood tests. The ONLY test that revealed ANY problem was the EMG that shows I have peripheral nerve loss in both legs from the knees down. I have difficulty walking, kneeling and squatting....but no explanation why. I have normal urinary and bowel movements....other than inconsistent bowel consistency and pale/yellowish stool. The pain in my joints is tolerable but it is constant and I have muscle pain in my low back, hips, thighs and calves. (They always feel tight, like they are about to pop or tear.) I am accustomed to lifting weights on a regular basis, but I've become to tired and too sore to even attempt it. At onset 20years ago I weighed 243 pounds with a body fat index of 6%. I am holding steady at 200 pounds but feel weak and tired all the time. My small motor skills seem to have gotten weak, my hands and feet feel swollen and stiff all the time. I truly feel as though some of the tests performed just weren't read accurately since I am treated primarily by the VA Hospital which uses STUDENTS to treat us VETS. Like most of the hard working, bill paying Americans out here, I can't afford to go to too many more Doctors for new opinions. I have changed jobs several times to try and find a job that I can work without endangering myself or my coworkers when my symptoms do get unbearable. But when you deal with high voltage for a living.....those jobs are getting harder to come by. I wish all of you out there with unresolved medical problems the best of luck in finding a doctor that cares enough to take a personal interest in their patient and follow up on test results that just DON'T add up to the PERSON that's sitting in FRONT of them
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