I'm so tired of being tired and sick of being sick. I have basically suffered from fatigue and headaches for as long as I can remember. My most recent symptoms that have me on restricted work hours are; fatigue, weakness, aches, headaches, and hives. I'm currently 28.
History: When I was 16 I had mono and viral menengitus. I've always been sick, virus after virus. I've had 3 spinal taps so far! About 5 years ago, I suffered from severe headaches and a neurologist said it was "new onset daily headache". A couple of years ago I went through physical therapy for really bad low back pain. The thought now is that there is "fatty tissue" near my pelvic bone. It hurts though! Then in August of this year, I was hospitalized for a week. I had a fever of 104, severe aches, fatigue, weakness, and headache. They finally admitted me when a bullseye rash showed under my knee. They treated me for lymes because of the rash, but the tests never came back positive. Since then, I have not been able to fully recover. I am still so fatigued and weak. I feel like I will just collapse. It's even hard to drive. I have seen Infectious Disease, all his tests came back "normal". I saw the Rheumatologist, all his enzyme tests came back "normal". I'm supposed to follow up with him soon as he is concerned of fibromyalgia. My mother and her mother have been diagnosed with fibromyalgia. I've seen the allergist and he does not feel the hives are related to allergies. I've seen a therapist and a psychiatrist (because my mood continues to decline
I'm having a hard time "taking this into my own hands", but I am so frustrated with feeling this way. No one I've seen seems to know what is wrong, everything is "normal", but I don't feel normal at all! I have a hard time asking my doctor if it could be this or that, because, if she thought it was, wouldn't she have already ruled it out?
Where do I start? What do I do next? What else can I do to feel better?!?!?!?!?
I'm tired of being tired and sick of being sick!