Hi, for those of you that have CFIDS or suspect you do, let's use this thread to post regarding this disease/disorder/syndrome (whatever it actually is).
I noticed a LOT of people on these forums have many qualifying symptoms of CFIDS so I thought maybe a central thread related to it would be very helpful.
Please post informational links, quotes, helpful tips, anything related to CFIDS, including your personal experiences, in here!
I never exactly knew when the onset of my symptoms were, because it seems like I've had exhausting fatigue my entire life (my mom once said "hon, you were BORN tired." Usually it occurs after a bout with a virus or illness. What illness(es), is yet unknown, but theories suspect latent/repressed viruses you've once had surface at a minimum, causing low-grade ongoing immune system activation, which makes it difficult to fight off other infections or attackers. My symptoms are intermittent, though. I don't always have every single symptom at all times. I am currently doing my own personal research on the topic of CFIDS, and though my doctor has never been able to diagnose me specifically, she basically said, "well we've tested you for virtually everything under the sun and can't find anything wrong so its likely that (CFIDS) is what it is...". I have frequent throat infections, IBS, headaches, fatigue/exhaustion, sore joints, general malaise, upset stomach, tachychardia, heart palpitations, sleep problems, you name it. I've been trying to help myself by treating each symptom individually (for example I have a sleep study coming up soon for sleep apnea, and take prescription meds for headaches, etc), but it in no way can cure the problem.
I'm not sure exactly WHAT tests were done on me, so recently I requested a copy of all my medical records, and hope to get them soon.
I'd love to hear your stories and your thoughts!