Discussions By Condition: General well-being

So many symptoms, so much desperation

Posted In: General well-being 2 Replies
  • Posted By: sydneyf06
  • September 9, 2008
  • 06:58 AM

I'm a 20 year old college student, and I was diagnosed with fibromyalgia when i was about 18. The problem is, I have so many varying symptoms, and not all of them fit the fibro. Everytime i have any blood testing done i get the typical "everything was normal" response, when i know for a fact that I've been sick since i was 15, if not longer, and that something is wrong with me (and no, I'm not a hypochondriac, lol).
My symptoms include headaches/migraines, joint pain, joint stiffness and popping, wounds and bruises that take a long time to heal, chronic yeast and sinus infections, frequent extreme fatigue and occasional overwhelming energy, unexplained anxiety, difficulty losing weight, getting fatigued and nauseous after eating, muscle aches and pains, tingling and numbness in shoulders and hands, insomnia, asthma, trouble concentrating and communicating my thoughts, depression, extreme tenderness to mild touch, tenderness in the lowerback near the kidneys, swelling of the hands, feet, neck and eyelids, flushed, hot cheeks, seemingly random low grade fevers and a general feeling of crappiness.
To give you an idea of what I'm going through, the last time i went to the doctor (2 weeks ago), i felt just about "normal".. turns out i had a sinus infection, yeast infection, and a urinary tract infection and had no idea. I feel so crappy all the time that things that would put people in bed for a few days or at least have them fully aware of an issue seem like any other day. It's gotten to the point where i don't even share my symptoms because everyone thinks I'm making them up or that I'm over reacting, including my doctors.
I've never written in a post like this, so i figured i would ask the people out there. If anyone has any idea of specific things i can ask the doctor to test for, please share! I'm tired of feeling like i'm going crazy because my doctors can't think any particular reason for my problems. Hopefully someone has an idea... :o(

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  • Your symptoms sound similar to mine (I posted a reply to my original post in this forum just a few minutes ago if you want to look), but it sounds like a lot of similar symptoms. I have also felt very tired and been sick with sinus, yeast, UTI's frequently for the past few years, but the docs kept telling me everything was fine until about a year ago. When I started having chronic, recurrent low grade fevers every afternoon or at minimum a few times a week they got more concerned (fevers from 99-101.2). Have you been to the doc when you have the fevers? You should start going b/c once you have a concrete symptom like recurrent fevers the doctors have more to go on. Make sure you go to the doctor when you have the fever and make sure they are aware its an ongoing problem. There are specific categories of illness that cause ongoing or recurrent fever so its a really important symptom for them to be aware of. It can really help in getting the doctors to look into what might be causing the problems you are having. Also, if you have a rash on your face make sure you see the doctor. You should see a rheumatologist if you haven't yet, the symptoms you describe might be something they are best equipped to deal with. If you get a dignosis let me know b/c your symptoms sound a lot like mine!
    Anonymous 42789 Replies
    • September 14, 2008
    • 09:29 PM
    • 0
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  • This may have nothing to do with you but I found this to be very valuable information and will hopefully help you or others. My mother was also diagnosed with fibromyalgia and was to the point she could not bear to get out of bed. All the narcotics she could take was not helping. She had to go to rehab for a broken shoulder after a fall and they removed most of her meds, including Fosamax which is for osteoporosis. Each week that passed she began to feel better and better. Now you are very young so I doubt you have meds for osteoporosis but could it be something else you're taking? Google any meds you take for side effects and even withdrawal symptoms. I always research anything this way before taking it to find out what other people have experienced. It seems now they misdiagnosed her with fibromyalgia when in fact, it was a pill causing her this horrible pain. Also, she experienced sinus infections, UTI's, jaw pain and teeth falling out, migraines, sweats, hot flashes, dizziness, loss of balance. The list is very long. I refused to let the doctor give it to her anymore. He didn't like that so we switched doctors and the new doctor agreed that it is a terrible medication and causes many people a lot of problems.
    trina789 1 Replies
    • September 18, 2008
    • 07:57 PM
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