Discussions By Condition: General well-being

Ross River Fever

Posted In: General well-being 6 Replies
  • Posted By: Anonymous
  • February 14, 2007
  • 06:58 AM

I am a male, fit and I am 60 years old.

I got Ross River Fever (RRF) about 15 years ago.

It took me a year and a half to find out what was wrong with me, (3 doctors couldn't) and it was only because my wife was reading a newspaper article about RRF and read the same symptoms being described as I was complaining about.

I had a test done for RRF and sure enough I had had it.

It took me about a year and a half to fully recovery from it.

Now, 15 years later the same symptoms (aching joint pains and fatigue) have returned, but right now most noticeably in my arms and wrists, and the other joints to a much lesser degree.

I have had blood tests to check me out for almost everything possible and all have come out negative.

Again the test result for RRF only said I had had it at some time in my life but it did not show that I was again affected.

The specialist said to wait another 2 weeks (after the first RRF test) and check it again. Again it said I had it but not right now.

So I still don't know what I have at present, it has been with me for about 6 months now and regardless of the tests I personally still believe I have RRF back again.

I am told if you get Malaria it can come back from time to time and I am now convienced that RRF can do the same.

So, question,

Does anyone out there know if this is true, that you can get it back again with a blood test showing a negative result?

or will a blood test always tell you you have it back again (which of course means I have to keep searching and even more blood tests for what is wrong with me right now)

Reply Flag this Discussion

6 Replies:

  • Sorry I never heard of Ross river fever, so I can't actually answer your question. But Lyme disease, like malaria, is never actually cured, but goes into remission. I think once you have something like this it remains, forever on the blood work. BUT did they test to see if it was active again?? Some people are never bothered by it again thus thinking they are cured.....But others, have relapses....Some docs claim you are cured, then refuse to even condiser patients having a relaps, so they either tell us theres something else wrong..or its all in our heads. Just maybe, its the Lyme bacteria that cause you the RRF in the first place. Perhaps you could do a search on the Lyme bacterias, like babseia, borrellia, there are over 300 strains of Tick born illnesses. And see if any of those were ever found on your past tests. ...Its so frustrating when the medical profession dosen't listen to the patients, when we are the ones feeling so poorly, and paying for shoddy treatments. Perhaps someone at this site can answer your question www.lymenet.org so many there are very helpful and been through similar things....I hope you find the answer and can feel better soon.
    Anonymous 42789 Replies
    • February 18, 2007
    • 02:37 PM
    • 0
    Flag this Response
  • Hi, I got RRV about 18 months ago and I have never fully recovered. I have had periods where I could drive a car and function at about 50% of my former capacity in life (which is still pretty good when compared to laying in bed too dizzy and sick to move) but I also have episodes of dizziness and exhaustion which reminds me of early days of RRV. My life has been put on hold somewhat during this whole time and I am really in my prime at 33. I can't work yet - have tried but it always ends up badly. I hear so much about how RRV only lasts a few months but unfortunately I got the short end of the stick here. Doctors of course have no advice for me and can't even tell me if it really is still RRV. My suspicions are that this virus or its nastly by-products are still in my system and every time I get my engine started, something bad gets stirred up and comes to the surface - causing bad symptoms again. When I think about what this virus did to my body in the early stages - I realize how nasty the virus is and that there must without a doubt be by-products left in my organs. I have decided I have to be pro-active about helping my body out and have gone to see a good herbalist. He pre-scirbed a herbal potion for me and warned me that during this detox I might get very sick. He understated that! I went off it through fear of the symptoms (thought I was going to die) but have since realised that if this detox is making me this sick, I can't just leave those bad toxins sitting in my organs because they must be pretty bad. I continue with the detox and drinking plently of water in the hope that I can cleanse my body of it. It's so bad but it has to be done.I just thought I would share with you that my experience is that it seems to still be lurking around in my body and I am not sure it will be gone for good any time soon unless I give it a hand. If you think you still have it, maybe you could consider a good herbal detox - made especially for you by a proffessional who takes into account your RRV. Word of mouth is the best way to find a godd herbalist. There is not alot that modern medicine is doing for those with RRV unfortunately. I wish you good health.
    Anonymous 42789 Replies Flag this Response
  • I had RRF about 15-20 years ago, when I was in my late teens. It resurfaced in my 20's and again now (36). It has taken me weeks to realize what I had, it wasn't until I had a few unreasoned sweating episodes that I remembered about this virus. At least it's good to know why my arms, elbows, hands and knee's hurt so badly and the headaches.Both of my secondary attacks have surfaced while recovering from injury. It seems to hone in on the injured area and then run it's usual symtoms in the rest of my body. This current episode is after a massive calf muscle tear 4 months ago- A lot of work standing on my feet recently made the torn area tense up and I started having physiotherapy and acupuncture then my arms and elbows starting getting sore and then my other leg (?). I had "Tennis Elbow" 4 years ago and it also has reappeared. The acupuncture does help but takes a few days (after the treatment) to have any results, also having massage hurts but does improve the day to day pain/mobility. I'm currently trying "Glucosamine" a shellfish extract the helps with osteoarthritis, joint swelling and inflammation. It does take about 4 weeks to start having an affect.I might try detox per the above post, sounds like good advice.
    painfull 3 Replies
    • January 13, 2009
    • 05:10 AM
    • 0
    Flag this Response
  • Please be VERY careful of detoxing with herbs. The poster who said he thought he was going to die - that is a very bad reaction indeed. There is something called a Herksheimer reaction to any cleanse/detox - this is a temporary worsening of your symptoms due to die off. IME this is a sign you are doing too strong a cleanse and you should back off a bit to lessen your die off symptoms. Too strong a detox/cleanse when the body is already weakened is just not a good idea. You would need herbs that are supportive otherwise you will experience too strong a reaction. That is my opinion. Do ask around and research before you attempt to do any kind of detox. Lastly, it may be very helpful to take a good quality probiotic with several strains of beneficial bacteria to help rebuild your immune system which will help you fight this virus. Best wishesDOM
    acuann 3080 Replies
    • January 13, 2009
    • 05:24 AM
    • 0
    Flag this Response
  • Hi, I got RRV about 18 months ago and I have never fully recovered. I have had periods where I could drive a car and function at about 50% of my former capacity in life (which is still pretty good when compared to laying in bed too dizzy and sick to move) but I also have episodes of dizziness and exhaustion which reminds me of early days of RRV. My life has been put on hold somewhat during this whole time and I am really in my prime at 33. I can't work yet - have tried but it always ends up badly. I hear so much about how RRV only lasts a few months but unfortunately I got the short end of the stick here. Doctors of course have no advice for me and can't even tell me if it really is still RRV. My suspicions are that this virus or its nastly by-products are still in my system and every time I get my engine started, something bad gets stirred up and comes to the surface - causing bad symptoms again. When I think about what this virus did to my body in the early stages - I realize how nasty the virus is and that there must without a doubt be by-products left in my organs. I have decided I have to be pro-active about helping my body out and have gone to see a good herbalist. He pre-scirbed a herbal potion for me and warned me that during this detox I might get very sick. He understated that! I went off it through fear of the symptoms (thought I was going to die) but have since realised that if this detox is making me this sick, I can't just leave those bad toxins sitting in my organs because they must be pretty bad. I continue with the detox and drinking plently of water in the hope that I can cleanse my body of it. It's so bad but it has to be done. I just thought I would share with you that my experience is that it seems to still be lurking around in my body and I am not sure it will be gone for good any time soon unless I give it a hand. If you think you still have it, maybe you could consider a good herbal detox - made especially for you by a proffessional who takes into account your RRV. Word of mouth is the best way to find a godd herbalist. There is not alot that modern medicine is doing for those with RRV unfortunately. I wish you good health. pummy. i think there is a possiblity that the RRV has triggered chronic fatigue immunity syndrome (CFIDS) in your case. The statistics are that 10% of those who get RRV end up getting CFIDS. RRV is as much of a trigger for CFIDS as EBV is. I strongly suggest in your case to go and seek out a doctor specialising in CFIDS. If you have CFIDS you will probably need to go onto disability as most of us cant work. umm being RRV probably means you are in Australia in Queensland so i'll give you the address of an Australian support site and you can use that to find a specialist doctor in this. http://forum.notcrazy.net/ (one at that forum called Ash runs a queensland support group in Townsville)
    taniaaust1 2267 Replies Flag this Response
  • From wikipedia: Reports from the 1980s and 1990s suggested RRV infection was associated with athralgia, fatigue and depression lasting for years. More recent prospective studies have reported a steady improvement in symptoms over the first few months, with 15-66% of patients having ongoing arthralgia at 3 months. Arthralgias have resolved in the majority by 5–7 months. The incidence of chronic fatigue is 12% and 6 months and 9% at 12 months, similar to Epstein-Barr virus and Q fever. The presence of a pre-morbid diagnosis of depression strongly influences the chance of significant illness at 12 months.
    Plastikfear 64 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.