I wad dxd PPMS in 2003,Aquiductal Stenosis in 2004(rejected by surgeons saying “Arrested Hydrocephalus”, Non-compressive myelopathy in 2004,Demyelination & ?Progressive MS in 2006.I was having WBC Count of >14000 in 2006 and was given IMURAN 50 mg *2 a day ,which was discontinued from Mar’10 on being asked to do so by the neuro.Now After all blood,nerve,thyroid test and MRI of dorsal spine and brain the doctors are confused to give a correct diagnosis. I had have three relapses(worsening of symptoms) in 2003,2006 & 2009.
I have Taken MRI of Brain and Spine with contrast in 2003,2006,and 2010 ,but excepting demyelination at D1..D2 level found in the MRI in 2006 no other things has came out.
The symptoms are also more or less the same like
Lack of balance needs support of wall,
Walking Difficulties , having trouble getting up when sitting down
The severity of the symptoms increases with each relapse and again improves to some extent.I had have two episode of vertigo in 1994 and 1996,once with vomiting.Feb;10 my neuro asked me to have a MRI to look for "VESTIBULAR PATHOLOGY". The radiologist asked for contrast on being seen some sort of infection at D1..D3 level,but on looking at the MRI the neuro said it is too small to take any action.
Now, the neuro seems to be reluctant to name it as Multiple Sclerosis also fails to give it a name.So far as medication is concern they stopped IMURAN ( a med to control WBC ).
I am in a confused and frustrated state of mind doing nothing for the ailment. Sir pleeeease show me some way out of the limbo land.
with best regards,