Discussions By Condition: General well-being

Dont know how much more I can take..

Posted In: General well-being 21 Replies
  • Posted By: Abouttogiveuponlife
  • November 2, 2006
  • 08:27 PM

Hello everyone. I came across this website by accident.. First let me tell you my problems....For the last 14 years Ive been suffering from all types of symptoms...Horrible sleepin, pain in my joints especially my waist area and lower back, neck and shoulders, just as tired when I wake up, only about 3-4 hours of non continuous sleep, E.D, depression most my life due to family/ethnic issues, migrane headaches which sometimes caused me to be blind in one eye and not feel my arms, bowel problems, acid reflux, constipation, very low energy etc...

Ive been to all kinds of doctors from traditional to herbal and Ive gotten no help...Doctors think Im a hypocondriac Ive found in my research that my symptoms are similar to Chronic Fatigue Syndrome, Fibromyalgia, Leaky Gut Syndrome, Depression etc...Basically I could have any one of those and Ive tried treatments for all of them without good results...

Ive tried Elavil, Ambien, Lunesta, Activive, Nexxium, and so many more Im about to give up on any chance of me having a good life...Im 34 years old and have been dealing with this stuff since I was 20 yrs old...Dont know why I havent given up before since my like is especially cruel....Any help would be appreciated.....

Im a fighter and I wont give up till whatever I have kills me or I find a cure....But its getting harder to deal with this crap...

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21 Replies:

  • Abouttogiveup-Mine is a long, long story. I've put it on a few health web forums. I had many symptoms which crossed over many different illnesses and conditions - yet no test could find anything really wrong - except for a couple of things which the doctors dismissed. I experimented, researched etc and found if I took certain things to increase my temperature, which increased my breathing, blood and oxygen circulation to my whole body, it suppressed the symptoms (I was very ill - seizures, cramps, spasms, twitches, numbness etc. these symptoms cross over many different illnesses and conditions), and after 18 months of experimentation, the symptoms started to reverse. It took another 12 months to regain my health. I took 250mgs Vitamin B1 3 times a day.OR 1000mgs Vitamin C - 3 or 4 times a day I had to raise the dose to find the right dose per my body weight. I rose the VB1 dose to 500mgs per dose and the VC to 3000mgs per dose. These suppressed my symptoms for a few hours.Don't take VB1 if on pain relief and I would advise anyone not to change any medication without seeing their doctor.I also found that one teaspoon dark vinegar in a little water or juice at the night time meal - eased my constipation. It seemed to stimulate the saliva glands and helped with digestion.Hope this helps.ainee.
    Anonymous 42789 Replies
    • November 3, 2006
    • 05:24 AM
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  • Sounds like you should check into pituitary problems. Check out the Pituitary Network Association. Good luck!
    Anonymous 42789 Replies
    • November 4, 2006
    • 11:23 PM
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  • I know exactly how you feel. I have been suffering with the same symptoms and the only thing I have to offer you for help is knowing there are others who feel the same way. There is power in numbers and maybe we can band together and find out if there are any similar test results, ect. I am 47 and have suffered with extreme fatigue as long as I can remember. Over the years my symptoms would spike and taper for no reason. Currenly I am no longer able to work and therefore have no health insurance. I have no idea what my next move is as I live alone and have no one to help. Like you I am a fighter and will overcome this. I will leave you with a funny story.... A while back I decided I couldn't take the pain and not having any support from the doctors I decided to end my life. I am not a depressed type of person but I had taken all, I thought, I could take. Constanty sick and fatigued. I felt I had nothing to lose. With pills in hand, and for reasons only God knows, I decided to call the suicide hotline. A very nervous soft spoken man answered and I explained I had been in chronic pain for a long time and couldn't see a future feeling this way. TRUE story.... he replied that this was his first night on the job and he needed to put m call on hold. I thought this was a ploy to track my number but he quickly returned and I could hear the flipping of pages and then he started to reply pausing after several words. I knew he was reading from prepared training logs. It was exactly what I needed. I started to laugh and thought "I think my life is bad, this poor guy has no idea" I told him I think he needs more training and continued to laugh as I hung up. Looking back I realize my reaction could have been very different but as I said earlier depression has never been part of my illness. :)
    Anonymous 42789 Replies
    • November 6, 2006
    • 00:36 AM
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  • Please don't give up - I'm in the same boat. I've been going to my GP for the last 15 years on and off with the same symptoms. I have an appointment at 2.30 today and I'm going to stand my ground and say I'm not leaving until they take me seriously. I have to have time off work every month and I know a disciplinary is on the horizon because of my health record! We have to stand firm with our doctors and insist that they sort us out. They are paid a lot of money to do this, and as well you know, most of them are writing a prescription as you walk in the door. Go back to your GP and tell them exactly how you feel. I know what it's like - you get there, they ask you how you are and you say "fine" and go out not telling them what half of your symptoms are and exactly how much this whole thing is ruining your life. Now go and sort them out!! let me know how you get on....:)
    livewithoutwarning 1 Replies
    • November 7, 2006
    • 00:04 PM
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  • thank you all for the responses....Im really trying to keep my head up....Its real hard dealing with this because my friends and family think Im making it up and dont take me seriously when I just cant do certain things...It sucks not having someone in your corner...I dont even have the energy or desire to have a girlfriend or to let anyone get close to me cause I dont want them to find out how messed up I am...Im trying anything I can right now...It is comforting to know Im not alone but sad at the same time to know someone else is going thru what I am with no light at the end of the tunnel.... I too have very frequent days off from work because of this problem...Just got my raise denied even though they know I have a problem....Well thanks again for listening....ttyl
    Abouttogiveuponlife 1 Replies
    • November 14, 2006
    • 01:38 AM
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  • My boyfriend has alot of the same symptoms as you and his was caused from his Gall Bladder he had Gall stones. He also seemed depressed and lacked energy but after the surgery I have seen a big difference in how he acts. so maybe you should see about that. Just keep your head up. I'll pray 4 you. God bless
    LAS707 5 Replies
    • November 14, 2006
    • 03:26 AM
    • 0
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  • Have you looked into food allergies? It explains all the symptoms and the progressive nature, the Fibromyalgia, the CFS, the leaky-gut & all associated digestive problems. If its a wheat/gluten allergy any pill you've been taking is probably just trying to treat the symptoms but doing more damage. Corn or milk problems could lead to similar results...There's little incentive for the doctors to ID the cause because there is no prescribed, chemical cure. Although European statistics put the number at 1 in 100 (that would be 3 million Americans), Its only diagnosed in 1 in 4200 Americans. Its most common among Italians and northern Europeans. Some counties in Ireland report numbers as high as 1 in 33. Then again, some doctors suggest 1 in 7 people creates antibodies to fight wheat protein. Although the full effect is unknown, it is also known to interact with the brain through the opiate receptors and often causes withdrawl to people who stop eating it for the first week. Overall, food allergies and intolerences affect 1 in 10 people.The tests aren't reliable. Some doctors want all six tests to agree, some doctors realize one or two positives out of six is probably good enough to see health improvement with an elimination diet.Long story short, I used to feel like you and although the symptoms weren't QUITE as bad, they were getting worse as I got older. Now, I feel like a new person. No diagnosis, no prescription, no pills.
    Azaral 152 Replies
    • November 14, 2006
    • 04:29 AM
    • 0
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  • It sounds as if you could do with some more support. I suggest the chatrooms at www.immunesupport.com as you will find supportive ones there who have very similar problems as you. CFS as you already know can cause similar problems.. and leaky bowel, pain and sleeping issues are often all involved in CFS. If you havent done already.. you should go and see a doctor who specialises in CFS to get his/her opinion and possibly give you a diagnoses. To find a doctor who specialises in CFS.. contact your local CFS/FM support group and ask them for a recommendation. kiwi.. lol.. that story is so funny. Maybe that not a clue guy is just what a suicide line really needed.
    taniaaust1 2267 Replies
    • November 19, 2006
    • 03:44 AM
    • 0
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  • Visit www.womentowomen.co, somr really good reading. It sounds like your environment is causing you all forms of distress also, which will make pinpointing your problems a lot more difficult. How old are you?all the best, agape,searchingsam
    Anonymous 42789 Replies
    • November 19, 2006
    • 04:01 AM
    • 0
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  • Please google the word "Candida" and/or look at this website: www.candidafree.net. You have many symptoms of candida overload and it is hard for doctors to diagnose. There is no real definitive test for it, but you can take a written test on that website above and it will tell you if you likely have it. Candida fungal overgrowth is a huge problem and western docs just don't get it. Western antifungal meds are quite toxic as well. Try a natural approach like Threelac or Oregano Oil.Candida can lead to food allergies, and is implicated in CFS, Fibromyalgia, depression, sinusitis, and much more. Please check this out and see if it helps. Best of luckDoctor of Oriental Medicine
    acuann 3080 Replies
    • November 29, 2006
    • 08:46 PM
    • 0
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  • The sugestion of checking out pituitary illnesses is right on target. Check out a cushings info site that has a symtom chart it will give you ideas of if it could be cushings or other pituitary things like acromegaly, and even gives you diffarent doctors in diffarent parts of the country and world. Type cushings info in a search engine. What state do you live in? There is a wonderful doc in TN.
    Anonymous 42789 Replies
    • December 7, 2006
    • 06:49 AM
    • 0
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  • Dear About to give up...Please don't give up. There has to be something out there to help. I have had similar problems for many years. It took the doctors 8 years to finally test me for Lyme disease(I saw a dozen doctors-all said no you're justed stressed-take a vacation). When I was finally tested,It was positive. But it went undetected for years prior. I had to give up my job and I am single too. Started a home business to pay the bills. Doctors do not take my symtoms seriously. Friends think I am exagerating-I know exactly how you feel. There is a book I have begun reading written by a woman afflicted with CFS. No miracle answers, but it is strangely comforting when you know others out ther are ill and being ignored too. Book is "Encounters with the Invisible" by Dorothy WallWorking from home enables me to rest without broadcasting my illness. I find that laying flat for a few hours helps when the symptoms are not too bad (I know sometimes nothing helps). Also, juicing, taking vitamins helps (with B complex). Eating healthy foods helps, but when you feel like c__p, it's hard to have the energy to cook anything healthy.Don't give up, you're not crazy. Get yourself through this by letting yourself rest and not caving into what others say.I am pulling for you! There seems to be some great advise on these posts and I will take some of it myself.
    Anonymous 42789 Replies
    • December 13, 2006
    • 01:26 AM
    • 0
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  • Hi,i am also 34 and have been sick since i was 21.After my son was born it seems like i started getting theses symptoms,burning on urination,vision problems,palpatations,panic attacks probably from my symptoms,cold hands and feet.They just told me i had a vitamin d deficiency which i took 50,000 units of vitamin d which after the first two pills i had energy but after the third pill i got really bad off but i think that was due to not having the vitamin d for so long,it was like a reversal anyway the doctors are dragging their feet and i am running out of time,i feel like i am starving and i am very scared.Good luck with your health i hope you find all of your right answers.God bless. christina
    christina i 3 Replies
    • February 1, 2007
    • 01:16 AM
    • 0
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  • Please get tested for Lyme and the co infections. It can also affect your thyroid and adrenal glands, gone undx'd for a long time...Both of with can cause bad fatigue. Check out www.lymenet.org .Cold hands and feet are also related to Lyme , thyroid or Raynaud's syndrome. You might also need some minerals, like magansium. Hope you feel better soon.
    Anonymous 42789 Replies
    • February 14, 2007
    • 00:14 PM
    • 0
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  • I was worried for a while that I was a hypochondriac until I researched that along with my symptoms, lol. I found that a hypochondriac will actually have psychsomatic symptoms. They are afraid that something is terribly wrong, and when they research illnesses, they will get phantom symptoms of the illness they are reading about. I can't offer insight on your symptoms, but I am sure your docs don't think you are a hypochondriac.
    pumibel 42 Replies
    • February 14, 2007
    • 07:13 PM
    • 0
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  • i agree .hypochondria does not arise for nothing,;at the simplest level,it can indicate anxiety.obvious really.but in the way we use and hear the word lies the problem.isnt there a secondary meaning usually present,a built in implication that we should ignore the person,and withdraw our sympathy and concern?what if the hypochondriac is beginning to sense a real physical problem,but is unable to be precise about its nature as yet?it may yet prove to be an important early warning sign,ploperly understood.
    Anonymous 42789 Replies
    • February 19, 2007
    • 04:24 PM
    • 0
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  • HI PEOPLE,I went to a new doctor yesterday and put me on rocal for my vitamin d defeiciency,it started to work but i am feeling bad again today.I dont think my body is absorbing it or anything for that matter.My stomach growls all the time like my body is not absorbing the food.i dont know what to do,i dont think i can depend on the doctors to help me,so i guess i will just spend the rest of my time with my kids and let what ever happens happens.good luck everybody.CHRISTINA
    christina i 3 Replies
    • February 20, 2007
    • 06:26 PM
    • 0
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  • The best thing i could suggest is a visit to a reputable naturopath. I have heard very good things about them. They are on the ball when it comes to matching up problems with various symptoms. Lets admit it, doctors today are just doing a job. They will prescribe what they think matches up with your symptoms and tell you to "give it a go" if it doesn't work you can always go back and spend more money on something else!
    nannyraine 1 Replies Flag this Response
  • {quote}With pills in hand, and for reasons only God knows, I decided to call the suicide hotline. A very nervous soft spoken man answered and I explained I had been in chronic pain for a long time and couldn't see a future feeling this way. TRUE story.... he replied that this was his first night on the job and he needed to put m call on hold. I thought this was a ploy to track my number but he quickly returned and I could hear the flipping of pages and then he started to reply pausing after several words. I knew he was reading from prepared training logs. It was exactly what I needed. I started to laugh and thought "I think my life is bad, this poor guy has no idea" I told him I think he needs more training and continued to laugh as I hung up. Looking back I realize my reaction could have been very different but as I said earlier depression has never been part of my illness. :) *Humor and laughter can indeed be the best medicine sometimes. But it has to catch you off-guard and take you by surprise to snap out of the morose quagmire - psychologically speaking. This can be half the battle. The fear and anxiety that symptoms can have can blow you out of the water. If I were any of you on here with these symptoms, my first trek would be to the chiropractor. I've felt better immediately afterwards and for days after I have a smile on my face instead of a furrowed brow! That's just for starters. I haven't had a "good doctor worth his/her salt since the advent of HMO's. So it's an up-hill battle. My present doctor is better than some but that's not saying much. She doesn't listen all that well, but at least we go one more step in the right direction when I show up the next day, but it's still a fight. They only seem to want to support the pharmaceutical co's - I get rx's for all sorts of things I know I don't need and often don't take the medicine because I know she's got it wrong. But she/they won't listen! I recommend going on Amazon or Alibris.com and finding some good self-help or inspirational books - just to deal with the anxiety and fear over your situations. If you can't think straight and aren't getting enough sleep to be clear-headed and articulate everything properly, it won't help. I am here to say I support you all with your problems and wish you all the best...there's a lot of people living in fear and anxiety who are suffering, me included - Take good care of yourselves. ;)
    Lilgreenapples 7 Replies Flag this Response
  • I had similar symptoms since I was 20, it took eight years of wrong medicines and having a baby to find out I have PMDD. Research it on the net to see if it is and while there is no treatment for it, I have felt better with YAZ birth control and Adderall for the depression. I also found relief taking Omega 3 everyday. You may have a vitamin deficiency too, but I know for a fact that if you take Omega 3 everyday you will begin to feel better, studies have shown that and I am a biochemist :) unemployed though :(Good Luck and Don't Give Up
    Anonymous 42789 Replies Flag this Response
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