Discussions By Condition: General well-being

desperate for my health

Posted In: General well-being 3 Replies
  • Posted By: charlimeign
  • June 19, 2008
  • 06:04 PM

im 29 y.o. single caucasian female. over the past year my health has deteriorated rapidly.

i was a healthy young adult living in manhattan ( no drugs and i dont drink alchohol ), my life was great, then one day while walking down a midtown sidewalk, i collapsed. the world started to black out, i lost my breath, my heart started to pound out of my chest and i felt like i was being pulled from my body. then .. nothing. i was unconscious for ten minutes. i woke up in an ambulance with a headache, a cracked tooth and 7 stitches across my chin.

recovery has been elusive, forcing me to ask a friend in florida for help.
since that day i have been been unable to function like before. every time i stand up my eyes glaze over and my balance is completely thrown off. it usually takes 5-10 seconds for my balance and eyesight to return. once im up and moving, within 2-3 minutes i begin to feel a slight loss of breath and my heart rate increases and i begin to feel slightly dizzy. this condition increases rapidly the longer i am standing or walking unsupported. if standing/walking for up to 5-7 minutes i am at the point of collapse.

i have been dependent on my friend for care and support. after my collapse i moved in with my friend in florida and for many months i was under a sever depression about my condition and my losses.. feelings as if my life was over and no hope to start over. so depressed i lost interest in daily activities and personal hygiene. its been a year and only recently have i realized how my depression has been aggravating my condition.

my cracked tooth has broken, my gums are swollen, my ear hurts, my teeth hurt, it hurts to chew solid food, i have headaches, i have chronic fatigue, i feel trapped in bed or on the sofa because of the dizzyness, i have low blood pressure and poor circulation, my skin is dry, im surviving on ramen noodles and microwave pizza water and soda.. so add poor nutrition to the list, im tired, im hungry for a sandwich, im depressed and unmotivated, i feel disconnected from all the things i used to enjoy, memory loss, im distracted like i have a.d.d... i cant think or focus clearly like "brain fog", i feel overwhelmed, confused, my neck is sore when i sit up, my spine gets sore when im standing, and to hide from all this discomfort i just stay in bed and sleep or watch movies while laying on the sofa.

every single day ive given up on myself. every single day ive not tried. every single day .. for almost a full year now .. ive gotten worse.

i have no insurance, no job, no money and no hope.

so im asking you, or someone, or anyone who can help.

i need a doctor. i need a dentist. i need care and i dont have a way to provide for myself. i need to be diagnosed and treated so i can have my life back.

ive crumbled to tears while typing this.. i wish i had some comfort right now..

i dont want to be one of those people you hear about "that girl didnt see a doctor, died from an infection" and you think "aw how sad" but dont actually feel sad.. and in minutes return to your life and forget about.

i still want to do something with my life. i still want to have a chance. and i need help but I dont know whats wrong with me ..


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3 Replies:

  • (((hugs))) Pat yourself on the back for reaching out to others for help during your depression. You are right, your depression will only make the other condition you have worst. You need to look at getting something done about the depression AND the other condition. Dont let a doctor tell you that you ONLY have depression as I personally think you definately have more than that going on. With what im about to tell you, please dont just focus on the negative side of it as the info if im correct, thou you have a serious health condition.. at least you will know what is wrong with you and will be able to then seek out support for this throu support groups (oneline and offline) etc and have more of an idea what to try to help. One can get onto Disability payments for it, (i dont know how the American disability stuff works thou). I myself are on full disability (at 37 yrs old). every time i stand up my eyes glaze over and my balance is completely thrown off. it usually takes 5-10 seconds for my balance and eyesight to return. once im up and moving, within 2-3 minutes i begin to feel a slight loss of breath and my heart rate increases and i begin to feel slightly dizzy. this condition increases rapidly the longer i am standing or walking unsupported. if standing/walking for up to 5-7 minutes i am at the point of collapse. I have the same thing thou right now not as bad as that. 10 mins of standing thou has been enough to make me go unconscious for up to 5 mins. I cant be on my feet for long... walking 150 metres makes me feel dizzy and standing in any queue.. is dreadful for me, I struggle to do it and have to sit on the ground (or collapse). I have OI and POTS. Look up "Orthostatic Intolerance", "postural orthostatic tachycardia syndrome (POTS)" and "Mediated Hypotension (NMH)". Some of the answers to your health, I believe lay there. NMH causes a dramatic drop in blood pressure when standing up, even for as short a time as 10 minutes. Its immediate effect can be lightheadedness, nausea, and fainting. A less severe hypotension condition known as postural orthostatic tachycardia syndrome (POTS) is also associated with CFS. An estimated 30% of CFS patients may have POTS, and some experts believe that the key to understanding CFS will eventually be found in understanding orthostatic intolerance. To further confound the issue, different CFS patients display different types of orthostatic intolerances. the following quote is from http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndromeThe hallmark symptom of POTS is an increase in heart rate from the supine to upright position of more than 30 beats per minute or to a heart rate greater than 120 beats per minute within 10 minutes of head-up tilt. This tachycardic response is often accompanied by a profound decrease in blood pressure and a wide variety of symptoms associated with hypotension including:lightheadednessdizzinessextreme fatiguesyncope or presyncopeexercise intoleranceChronic or acute hypoperfusion of tissues and organs in the upper parts of the body are thought to cause the following symptoms:dyspneachest pain and discomfortmuscle weaknessheadachetremulousnessvisual disturbancesdisorientationcold extremitiesCerebral hypoperfusion can cause cognitive and emotive difficulties:impaired concentrationbrain fogdifficulty finding the right worddepressiondecreased mental staminaburnoutsleep disorders You may? be able to have this condition helped by drugs (unfortunately many are permanently disabled by this). Also the low BP and this condition can sometimes be helped some by increasing salt intake..or doing what is called "salt loading". (needs to be natural sea salt and not salt with additives etc). ................ You could have this condition alone.. or you may have it with chronic fatigue syndrome. (You could try to get some emotional support for POTS throu chronic fatigue sydrome support groups if you cant find any POTS or IO support groups). Also.. your tooth..could also be affecting your health on top of everything else. Ive heard that Tooth infections can travel to the brain!!!. Even if you need to borrow the money.. you need to get that fixed or pull it out.
    taniaaust1 2,267 Replies Flag this Response
  • http://forum.notcrazy.net/ that's the link to a CFS online support group i use for emotional; support. (thou i dont know if you do have CFS with the Orthostatic Intolerance problem you have, you may have CFS too????). Anyway..if you need others to chat to about things or vent, feel welcome to join there as thou a small group (mostly Aussies thou thou we do have some from overseas), we are supportive and many there will understand your issue as some of us have same Orthostatic Intolerance condition. You could post there and ask others with it how they are being treated for it (my doctor just tells me to add extra salt).
    taniaaust1 2,267 Replies Flag this Response
  • I am so glad I read this. You are not alone, sweetheart. Please come home and start your life over while you are still young. We can get you on the road to recovery - medical, dental, and more - but you have to be willing to change the direction of your life. You can do it if you try and if you really want to live a more fulfilling life. Love you, Mom
    msvaughn 2 Replies
    • October 16, 2008
    • 01:27 AM
    • 0
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