Discussions By Condition: General well-being

cures for startling

Posted In: General well-being 7 Replies
  • Posted By: Anonymous
  • August 12, 2006
  • 11:23 AM

can anyone please explain if there is any cure for this startling disease, and what the cure will be e.g. medication course or tablets/medicine or if there is anyother type of cure that is needed. my brother (aged 14) had this desase for 2 months and the doctors have only named this as 'startling'. i have done research and have found 6 more deseases which my be the cause of this 'startling' they are:
panic disorder
sandhoff disease
anxiety
acute stress disorder
general anxiety disroder
these startling have been steadily increasing starting from about once a day from day one until around 5-6 times a day now.All these medical problems can cause startling and they affect his ears very badly as he can get startled by very small amounts of sound. if there is anyone who has experienced this problem and has found a cure or a treatment to stop this ptoblem can you please mention some cures or some advice.

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7 Replies:

  • Startling can be caused by diseases of the nervous system. Multiple Sclerosis, for example, can cause startling.According to WrongDiagnosis.com, "Multiple sclerosis is a nerve or spinal cord disease that causes random damage to parts of the nervous systemhttp://kona.kontera.com/javascript/lib/imgs/grey_loader.gif. The result is a diverse range of possible symptoms depending on which parts of the cord are damaged, and how often the inflammation reoccurs. Typical symptoms are any kind of tingling, numbness, burning sensations, "pins-and-needles" or other types of sensory changes in various parts of the body; also possible are vision changes (see a full list of symptoms)".Besides "startling", other symptoms of M.S., include:Sensation changesMovement symptomsVision problemsBlurred visionDouble visionRed-green color distortionBlindness in one eyeEye painRapid involuntary eye movementFlashing lightsPartial vision lossVision impairment in one eyeMuscle problemsMuscle weaknessCoordination difficultyClumsinessBalance difficultyUnsteady gaitLimb tremorArm tremorLeg tremorLimb stiffnessNerve problemsParesthesias (pins and needles)PainLoss of feelingNumbnessHand tinglingHand paresthesiasFoot tinglingFoot paresthesiasFacial paresthesiasFacial tinglingBabinski sign - a particular abnormal foot reflexAbnormal foot reflexesMental problemsCognitive impairmentsConcentration difficultiesAttention difficultiesMemory difficultiesJudgment difficultiesSpeech disordersSlurred speechIncontinenceBladder incontinenceBladder control problemsBowel incontinenceParalysisImpotenceBalance disordersEmotional symptoms The above list is by no means, all-inclusive, but it should give you an idea of what M.S. is all about.I've had trouble with startling, since I was an infant. My triggers include:Loud noises (like train horns, buzzers, alarms and sirens)Someone walking into the roomSomeone tapping me on the backSomeone spritzing water in my faceSomeone touching my faceVisual Hallucinations (ex. if I see what looks like someone in the room with me)I had gotten to a point, in my life, where I began telling new friends, "If you ever scare me, I will beat your a**". Don't get me wrong, I'm not a violent person (in fact, I'm the exact opposite), but startling greatly affects me and I try to avoid it, at all cost. Lately, it has gotten worse - I've been jumping back, clutching my chest and inhaling loudly (imagine Fred Sanford times three). I often lose my balance and flail my arms about, searching for something to hold onto.The Doctor initially thought that my symptom was as a result of PTSD, but we now know that M.S. is causing it. In the past, startling was not considered a symptom of M.S., but they've recently learned that there are an alarming number of M.S. patients, who have the symptom. Last year the Multiple Sclerosis Association of America announced, "Thirty-seven patients self-reported "startle response" after an inquiry in MSAA's "Ask the Doctor" column in The Motivator". They added that, of the respondents, "Startle was usually precipitated by auditory (82 percent), visual (17 percent), tactile (six percent), or a combination of stimuli". The MSAA's study found that the average age of onset of MS symptoms was twenty-six (mine has been life-long, but the disease really kicked-in, in my mid-twenties).One thing that might help you, is to find out if he has any other symptoms. Several of my symptoms, while growing up, seemed normal to me, because I thought that was how I was supposed to feel, etc. For example, when I would fall on my hands, pain would shoot up my arms and I would instantly get a pins/needles sensation. It wasn't until recently, while trying to put the pieces together, that I realized, it wasn't normal for me to have that pain. In fact, it was a symptom of M.S.So, try talking to him about the symptoms of the various possible diseases and ask him if he has experienced any of them. With many diseases, unfortunately, many of the symptoms don't appear until adulthood, but you still have a major advantage - the internet (WrongDiagnosis.com is a great resource, so keep searching their site and posting questions in the forum section).Also, don't ever dismiss seemingly-insignificant symptoms, because they can sometimes be the missing link. The more symptoms a person has, the more likely it will be that a diagnosis can be made. WrongDiagnosis.com has a great tool, on their homepage, called "Multiple Symptom Checker", where you can select two or more symptoms, to help narrow down your search.By the way, the medical term for "startling" is Hyperekplexia (a.k.a. Hyperexplexia).I hope that this information was helpful in your search for the cause of your problem. Once you get a diagnosis, please come back and share it.Have a great day. :-)Joe
    NoDrCanDiagnoseMe 20 Replies Flag this Response
  • hi, don't know if you will read this but i would like to thank you for replying Joe. its been almost 4 years since i posted the question here and soon after i lost the website address and couldn't check to see if anyone has replied. by chance i was going through my old emails in my inbox until i came across the email sent to confirm my registration to this website, and here i am now checking up on it haha. anyway, as for the illness, it was very similar to yours. the heavy breathing and almost 'panick' attack like symptoms. to cut the long story short, the problem that they found with my brother wasn't just Hyperekplexia, after a very long time and an autopsy later, they found that my brother had a small brain tumor, they said they could operate on it and try to remove it, but since it was so close to the nerves of the brain, the success rate was very low and had many other risks such as permanent disability etc. rather than my brother suffering from something like that, he and my parents both just decided to use medication to solve it and if not then leave it in the hands of god. my brother passed away February 19th 2008 aged 15. i guess it was too late by the time they figured out what the problem was and even if they did find out what it was sooner, i don't think they would have been able to do much. i would like to thank you again for replying, it made my day knowing someone did eventually reply :). Thank you and take care. Foyaz.
    Anonymous 42789 Replies Flag this Response
  • Wow! I am so sorry, to hear about your Brother. Many Doctors, these days, don't take people seriously, when they complain of things like this. I am glad that they were able to find out what's wrong with him, but it saddens me deeply, that it was too late to do anything about it.Based on what you know, you probably won't be too surprised, when I tell you that my Doctor has diagnosed me with a Pinched Nerve (in my neck). There is a lump on my neck (at the base of my brain), which is suspected to be a tumor. They have ordered an MRI of the brain and neck, so I will get the results, within the month, hopefully.He has also ordered a couple other tests, to rule out a possible Cardiovascular problem. The tests are: a Doppler Scan of my legs (to check my circulation) and an Echocardiogram (to check my heart).Since my last post, I have been suffering from seizures. I am fully conscious, when they occur, but the entire left side of my body spams and jerks, during these episodes. Then, the seizure stops, for a couple of seconds, only to restart. It repeats this process, until they dissipate.The Doctor says that my Autonomic Nervous System is being "thrown out of whack", by the pinched nerve, and has suggested that I try sleeping with a neck brace and a special pillow, until the tests results are back.I'm hoping that they'll be able to operate on my neck, and safely remove the "tumor" (or whatever it is, that's pressing on the nerve). It's amazing, that it took a lifetime, for me to get a diagnosis. Of course, I feel VERY grateful, that I am alive, to receive it.I will post any changes, to this forum. Please feel free to write, anytime. :-)Joe
    NoDrCanDiagnoseMe 20 Replies Flag this Response
  • Hi Joe, the symptoms you are saying such as the 'jerking' was very much like what my brother had, his seizures would break out if there was a sudden loud noise. The way we found to help minimize the occurrences was to get him ear plugs. they didn't solve the problem completely but it reduced the number of times he had these seizures to around 3-4 times a day at best compared to his outrageous amount of times it used to happen without the ear plugs. I'm glad to know that your doctors at least seem to know what they are doing. my brother also had a lot of MIR scans and stuff like that. anyway, hope you get well and post an update now and then if you get the chance. I'm sure I'll be checking this thread again sooner or later :D. Take care,Foyaz.
    Anonymous 42789 Replies
    • January 21, 2011
    • 03:32 PM
    • 0
    Flag this Response
  • Hi Joe,Had some spare time at work and remembered about this forum, thought I'd come and check how you were doing after such a long time.You haven't replied but I really hope you are doing well. The last I heard from you, you said that you were going to have an MRI scan.Have they been able to confirm what the lump is? Hope your seizures have improved too, I know exactly how bad they can be; Not just for you but how it affects the people around you as well.I pray for your recovery mate and make sure you keep fighting! You yourself know exactly what it is that you are going through. Drop us a message whenever you get the chance, would like to know that you are doing well. :)Stay blessed,Foyaz.
    Anonymous 42789 Replies
    • November 4, 2013
    • 10:43 AM
    • 0
    Flag this Response
  • Wow! I am so sorry, to hear about your Brother. Many Doctors, these days, don't take people seriously, when they complain of things like this. I am glad that they were able to find out what's wrong with him, but it saddens me deeply, that it was too late to do anything about it.Based on what you know, you probably won't be too surprised, when I tell you that my Doctor has diagnosed me with a Pinched Nerve (in my neck). There is a lump on my neck (at the base of my brain), which is suspected to be a tumor. They have ordered an MRI of the brain and neck, so I will get the results, within the month, hopefully.He has also ordered a couple other tests, to rule out a possible Cardiovascular problem. The tests are: a Doppler Scan of my legs (to check my circulation) and an Echocardiogram (to check my heart).Since my last post, I have been suffering from seizures. I am fully conscious, when they occur, but the entire left side of my body spams and jerks, during these episodes. Then, the seizure stops, for a couple of seconds, only to restart. It repeats this process, until they dissipate.The Doctor says that my Autonomic Nervous System is being "thrown out of whack", by the pinched nerve, and has suggested that I try sleeping with a neck brace and a special pillow, until the tests results are back.I'm hoping that they'll be able to operate on my neck, and safely remove the "tumor" (or whatever it is, that's pressing on the nerve). It's amazing, that it took a lifetime, for me to get a diagnosis. Of course, I feel VERY grateful, that I am alive, to receive it.I will post any changes, to this forum. Please feel free to write, anytime. :-)Joe Hi Joe,Had some spare time at work and remembered about this forum, thought I'd come and check how you were doing after such a long time.You haven't replied but I really hope you are doing well. The last I heard from you, you said that you were going to have an MRI scan.Have they been able to confirm what the lump is? Hope your seizures have improved too, I know exactly how bad they can be; Not just for you but how it affects the people around you as well.I pray for your recovery mate and make sure you keep fighting! You yourself know exactly what it is that you are going through. Drop us a message whenever you get the chance, would like to know that you are doing well. :)Stay blessed,Foyaz.
    Anonymous 42789 Replies
    • November 4, 2013
    • 10:45 AM
    • 0
    Flag this Response
  • Hi Joe.Not heard from you in a while. How are you doing?Regards,Foyaz.
    Anonymous 42789 Replies
    • November 4, 2013
    • 11:00 AM
    • 0
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