Discussions By Condition: General well-being

Chronic headache

Posted In: General well-being 17 Replies
  • Posted By: Anonymous
  • September 2, 2006
  • 07:27 PM

My name is Rachel,I have had a consistent headache for the last seven years.It has never gone away,I have it twenty-four seven.I have been to so many doctors including( excuse my spelling):nueroligists,I have done allergy shots,acupucture,herbal remedies,horomone therapy,checked my vision,been to the dentist.I have taken dozens of meds,and nothing helps,nothing ever helps.Nothing triggers them,it just will get worse all of a sudden,or it will progress to get worse.A bad headache can last a few hours up to a few weeks.The doctors cannot diagnose them to be migraines or stress.I do know that I have a angiovenous malformation in my left temporal lobe,but they think that it is something my father may have.And has nothing to do with my headaches.If anybody can offer any info I would appreciate it

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17 Replies:

  • Maybe you have sinus problems - sinusitis that can cause a lot of headaches I know because I get them. I've also been diagnosed with Menier's Disease and as well as dizziness that causes bad headaches. I notice you take a lot of pills for the pain I was told they can make the problem worse so maybe you could try giving them up for say a week or two to see if there's any improvement. I also had a similar problem with a headache that lasted for three months and in the end do you know what I found worked - slow deep breathing - the Alexander Technique I lay quietly on a bed in a dark room for over an hour breathing in and out very slowly and unbelievably the headache went. It's very good for cluster/tension headaches good luck Joy.
    Anonymous 42789 Replies
    • September 5, 2006
    • 07:46 PM
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  • I havent taken pain or any meds in a year,I don't see a point to if it doesnt help.I have had my fair share of ENT,nothing was abnormal.Thanks for your info Joy.If you have anything else you want to share,I am open.
    Anonymous 42789 Replies
    • September 5, 2006
    • 09:00 PM
    • 0
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  • My name is Rachel,I have had a consistent headache for the last seven years.It has never gone away,I have it twenty-four seven.I have been to so many doctors including( excuse my spelling):nueroligists,I have done allergy shots,acupucture,herbal remedies,horomone therapy,checked my vision,been to the dentist.I have taken dozens of meds,and nothing helps,nothing ever helps.Nothing triggers them,it just will get worse all of a sudden,or it will progress to get worse.A bad headache can last a few hours up to a few weeks.The doctors cannot diagnose them to be migraines or stress.I do know that I have a angiovenous malformation in my left temporal lobe,but they think that it is something my father may have.And has nothing to do with my headaches.If anybody can offer any info I would appreciate itRachel, I too have suffered from headaches for many, many years and nothing on top of nothing would work and no ct scan or mri or any other test run would show any results. I know how this has put a strain on your life. You probably do not work and do not have many friends as many people do not understand. I urge you to look into a cond called Pseudotumor Cerebri or Benign Intrcranial Hypertension. It is what I was finally diagnosed with after seeing numerous drs. There is only 1 diagnostic test that can diagnose it and even that is normal sometimes as in me. See the neurologist once more and request a spinal tap or lumbar puncture to check the pressure of CSF (cerebral spinal fluid) in the brain. Let me know and Good luck.
    Anonymous 42789 Replies
    • September 6, 2006
    • 06:58 PM
    • 0
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  • ;) Rachel, I too have suffered from headaches for many, many years and nothing on top of nothing would work and no ct scan or mri or any other test run would show any results. I know how this has put a strain on your life. You probably do not work and do not have many friends as many people do not understand. I urge you to look into a cond called Pseudotumor Cerebri or Benign Intracranial Hypertension. It is what I was finally diagnosed with after seeing numerous drs. There is only 1 diagnostic test that can diagnose it and even that is normal sometimes as in me. See the neurologist once more and request a spinal tap or lumbar puncture to check the pressure of CSF (cerebral spinal fluid) in the brain. Let me know and Good luck:) ;)
    Anonymous 42789 Replies
    • September 6, 2006
    • 07:05 PM
    • 0
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  • Thank you so much for your reply,I have never been told to have that done.What have you done to help the headaches?My mother had one done years ago,for back pain and she ended up having to get a blood patch,another one they hit a nerve in her back and messed up her arm.It has always scared me since then.But I am willing to try anything now.I do work two jobs,I guess because I am stubborn and refuse to let anything have control of my life.I don't really think of my headache anymore,I am just used to it.But it is getting worse and with more symptoms.
    Anonymous 42789 Replies
    • September 6, 2006
    • 10:51 PM
    • 0
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  • Thank you so much for your reply,I have never been told to have that done.What have you done to help the headaches?My mother had one done years ago,for back pain and she ended up having to get a blood patch,another one they hit a nerve in her back and messed up her arm.It has always scared me since then.But I am willing to try anything now.I do work two jobs,I guess because I am stubborn and refuse to let anything have control of my life.I don't really think of my headache anymore,I am just used to it.But it is getting worse and with more symptoms.Rachel, The other symptoms you might be experiencing with this condition might be; dizziness, lightheadedness, blurred or loss of vission periodicly, nausea, vomiting, light and sound sensitivity, are the most common. You have access to the web so look up the signs and symptoms of Pseudotumor Cerebri or Benign Intracranial Hypertension. It is basically like having the signs and symptoms of a brain tumor without the tumor. It is not life threatning but it is serious and does disrupt the normal activity of its victims. Keep your chin up help is around the corner. Jane:)
    Anonymous 42789 Replies
    • September 7, 2006
    • 06:22 PM
    • 0
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  • Thank you for the information,I looked at dozens of websites last night.I was curious if you had a shunt put in?
    Anonymous 42789 Replies
    • September 7, 2006
    • 10:28 PM
    • 0
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  • Rachel, I do not have shunt as of yet. The medication Topamax that the dr put me on seems to be doing very well for my h-aches. What did you find out on the web sites? When I looked it up on the web it was like someone had opened a book about lifes histery for the world to see. All those symptoms I mentioned I experience everday. If you would like to talk more here is my e-mail janesjungle4u@yahoo.com. Write me if you wish outside this forum. I hope this helps. Jane
    Anonymous 42789 Replies
    • September 9, 2006
    • 03:01 PM
    • 0
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  • have u gone for csf. examination, whats the result, how u r feeling , have u get rid of ur headache plz let me know as i ......I am 30 years old man suffering from daily persistent headache for years concentrated on centre of forehead. NO FEVER, NO VOMIT, , MRI SCAN is normal.Its generally Throbbing headache sometimes worse, but never goes always, I have tried medicines as prescribed by Neurologist with absolutely no help. Cap. Fulanrizine (calcium channel blocker) Tab. Vosograine (ergotamine, caffeine, and prochlorperazine) Tab. wysolone (Predinosolone ) Cap. Betacap propranolol Tab. Alprax (Alprazolam) Tab xenobid (Naproxen) Tab suminat (Sumatriptan) Tab. Amixide (chlordiazepoxide and amitriptyline) Tab.Ciplactin (cyproheptadine) Tab. Rantac, Tab. Epilex (Sodium volporate ) also one Injection Botox , but no change in nature & severity of headache . it is daily headache from the onset, no change in nature of headache for last 10 years, no sinus problem , No overusage of analgesics medicine as have not used any medicine for last three years and tried message therapist ,aqua pressure, acupuncture , but again no change in nature of headache Affecting my concentration & career as it is persistent headache daily always for last 10 years. Concentrated on frontal forehead .Headache even after a sound sleep of 8 or more hours.
    Anonymous 42789 Replies Flag this Response
  • I have at least a headache a day and something that helps me is drinking lots of water. Also getting your spine adjusted at a chiropractor. Those always seem to help.
    Anonymous 42789 Replies
    • November 23, 2009
    • 11:16 PM
    • 0
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  • have u gone for csf. examination, whats the result, how u r feeling , have u get rid of ur headache plz let me know as i ......I am 30 years old man suffering from daily persistent headache for years concentrated on centre of forehead. NO FEVER, NO VOMIT, , MRI SCAN is normal.Its generally Throbbing headache sometimes worse, but never goes always, I have tried medicines as prescribed by Neurologist with absolutely no help. Cap. Fulanrizine (calcium channel blocker) Tab. Vosograine (ergotamine, caffeine, and prochlorperazine) Tab. wysolone (Predinosolone ) Cap. Betacap propranolol Tab. Alprax (Alprazolam) Tab xenobid (Naproxen) Tab suminat (Sumatriptan) Tab. Amixide (chlordiazepoxide and amitriptyline) Tab.Ciplactin (cyproheptadine) Tab. Rantac, Tab. Epilex (Sodium volporate ) also one Injection Botox , but no change in nature & severity of headache .it is daily headache from the onset, no change in nature of headache for last 10 years, no sinus problem , No overusage of analgesics medicine as have not used any medicine for last three years and tried message therapist ,aqua pressure, acupuncture , but again no change in nature of headache Affecting my concentration & career as it is persistent headache daily always for last 10 years. Concentrated on frontal forehead .Headache even after a sound sleep of 8 or more hours. By reading the details you have mentioned I believe yours is a chronic problem.Since you have taken almost all the medical check ups and medicines suggesting any regular medicines will be of no use. I suggest you to go alternative system of medicine, that is yoga which has helped most of them. Pranayama or process of deep breathing of air in and out of the body is help full. Pranayam is of different types so instead of just going through books or some ones advice consult a yoga teacher nearby to your place and practice. Meditation is also helpful. So please believe in this there will be no side effects and you can see the benefits within a span of 20 to 30 days. It just requires your time of 5-10 min in the early morning hours and lot of fresh air. There are a lot of websites which will give the information you require for this.Please practice this for your good health.Thank you
    MadanKulkarni 1 Replies
    • November 30, 2009
    • 03:05 PM
    • 0
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  • Try looking into magnesium deficiency. I have been doing a lot of study on it myself, trying to figure out my strange symptoms. If nothing else, a strong dosage should help with your symptoms. Check out Jigsaw. They have one of the most easily absorbed and non-laxative types. The kind in every multi-vitamin I have seen is magnesium oxide. It's crap. Only 4% absorbable.
    DCameronMauch 3 Replies
    • December 1, 2009
    • 01:08 AM
    • 0
    Flag this Response
  • My name is Rachel,I have had a consistent headache for the last seven years.It has never gone away,I have it twenty-four seven.I have been to so many doctors including( excuse my spelling):nueroligists,I have done allergy shots,acupucture,herbal remedies,horomone therapy,checked my vision,been to the dentist.I have taken dozens of meds,and nothing helps,nothing ever helps.Nothing triggers them,it just will get worse all of a sudden,or it will progress to get worse.A bad headache can last a few hours up to a few weeks.The doctors cannot diagnose them to be migraines or stress.I do know that I have a angiovenous malformation in my left temporal lobe,but they think that it is something my father may have.And has nothing to do with my headaches.If anybody can offer any info I would appreciate itCould be a cervicogenic headache... headache which originates from your neck? These are usually associated with neck tightness, restricted movement, pain, poor posture or muscle tension. Might be worth seeing a physiotherapist.Hope that helps and good luck,PhysioAdvisor
    PhysioAdvisor 93 Replies
    • December 2, 2009
    • 02:42 AM
    • 0
    Flag this Response
  • My name is Rachel,I have had a consistent headache for the last seven years.It has never gone away,I have it twenty-four seven.I have been to so many doctors including( excuse my spelling):nueroligists,I have done allergy shots,acupucture,herbal remedies,horomone therapy,checked my vision,been to the dentist.I have taken dozens of meds,and nothing helps,nothing ever helps.Nothing triggers them,it just will get worse all of a sudden,or it will progress to get worse.A bad headache can last a few hours up to a few weeks.The doctors cannot diagnose them to be migraines or stress.I do know that I have a angiovenous malformation in my left temporal lobe,but they think that it is something my father may have.And has nothing to do with my headaches.If anybody can offer any info I would appreciate itYou could have a slow leak in your spinal cord, when i had an epidural for my first child, i got a hole punctured in my spinal cord, and the slow leak, will literally make you feel like you are dying, your head feels like its going to blow off!!!, this leak could be anywhere, even in your sinus somewhere, it only has to be an extremely small amount of spinal fluid leaking and the headache can make you feel like you will die!! Check this out, it can be overlooked so easily,
    Anonymous 42789 Replies
    • January 8, 2010
    • 04:44 PM
    • 0
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  • Rachel, I hope you are still a member of this forum. I was hoping you may have found a solution to your headaches and could share will a fellow sufferer. My mother has had chronic headaches that never go away for the past 15 years. Your original post is a carbon copy of EXACTLY what she has gone through with the addition of Botox treatment for headaches. Did you have do the spinal cord leakage test?Did you ever find any relief? I hope so and if you did please share.Thank you!
    bobsey51 1 Replies
    • January 10, 2010
    • 03:07 AM
    • 0
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  • By reading the details you have mentioned I believe yours is a chronic problem.Since you have taken almost all the medical check ups and medicines suggesting any regular medicines will be of no use. I suggest you to go alternative system of medicine, that is yoga which has helped most of them. Pranayama or process of deep breathing of air in and out of the body is help full. Pranayam is of different types so instead of just going through books or some ones advice consult a yoga teacher nearby to your place and practice. Meditation is also helpful. So please believe in this there will be no side effects and you can see the benefits within a span of 20 to 30 days. It just requires your time of 5-10 min in the early morning hours and lot of fresh air. There are a lot of websites which will give the information you require for this.Please practice this for your good health.Thank you------------------------------It does not seem as though that person who posted actually has had migraines. Although yoga is fun it will not fix your migraines. I have had chronic daily migraines for three and a half years now. ( yes, all the time 24 hours a day) The man who posted before. I am not sure if you had tried a gluten free diet, I know for some people it helps. ( after 10 years you probably have) I know that you see a neurologist, ( i also do) I am not sure if you are in the U.S. but if so, there are two actual migraine clinics that will prescribe different types of medication. One is in Ann Arbor, MI ( MHNI) and the other is in Chicago, IL ( Diamond Headache Clinic) They both have inpatient units, or you can also just go up for a day appointment. I am not sure you have ever done injections, but if you would consider it-- it opens the door of possibilities so much more for the meds you can take!
    Anonymous 42789 Replies
    • January 28, 2010
    • 04:29 AM
    • 0
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  • Perhaps 'hemicrania continua' is the kind of headache you are experiencing?I also experience constant headaches (unilateral) since May 2009 and it seems to be hemicrania continua. This kind of headaches can be treated with medicine.
    ross-syndrome.com 7 Replies Flag this Response
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