This is my first time posting on the internet about my stomach issues but I don't know where else to turn anymore. This may be a long post, but I want to be sure that I cover everything that is going on.
I am 23 years old and have been in and out of doctor offices since approx. 2006. I have always been in fairly good shape and maintain a pretty well rounded and healthy diet. Never really had any problems with being sick other than an occasional cold and did not have any allergies, food, medicinal, or otherwise. In 2006 I went on a class trip to Costa Rica. While going kayaking there, I swallowed a bit of lake water and became very sick for the first couple of days. I soon got over the illness and went back to enjoying my trip. When I came back to the states I started going through phases in which I would be sick every time I ate something, regardless of the food, for about a month then I would go through about 2-3 months of feeling fine. This lasted for about 2 years. During this time I developed an eating disorder (anorexia) and in 2008 was hospitalized in intensive care for about a week for pancreatitis. The doctors are still unsure what the actual cause of the pancreatitis was seeing as how I had none of the usual causes (obesity, alcoholism, drug use, gall stones, old age, etc.) but assume that it was due to the eating disorder and severe anxiety and stress. During this period of time from 2006-2008 I was still facing the one month on two months off of sickness and normality.
In about early 2009 the nausea began to intensify and became more more frequent. I was sick after eating at least 3 out of 4 weeks in the month. As the time passed the problems only became greater and more severe. I am now at the point that nearly any time I eat food I get sick afterward. I feel like I am going to throw up, the salty taste in the mouth, increased saliva, extreme noise from my stomach, etc. but 9 times out of 10 can not throw up and just end up feeling sick for hours after eating, sometimes even full days from one meal. Most often times I will try to make myself throw up. I feel that if I could just get whatever is bothering me out of my stomach I would feel perfect. My bowel movements are not consistent, sometimes extreme constipation lacking using the bathroom for days or weeks at a time, others food will seem to go directly through me and I will have diarrhea. Often times during the most extreme cases I have of sickness induced by food intake, I will react in ways similar to flu-like symptoms. Fatigue, dizziness, sweating, flashes of hot and cold, etc. Most recently I have been getting more ocular migraines, sometimes up to 3 or more in a day, and have had ringing of the ears, memory loss, extreme fatigue, dizziness, and what I only know how to explain as extreme 'shock' to my body (I feel like every noise that is made, every movement, and every sign of light is 'radiating', 'reverberating', and being felt through my entire body). I am extremely gassy all of the time, both in burping and passing gas, and I do definitely get heartburn and acid build up. I also get extreme pain at times in my kidneys.
I feel that we have exhausted so many options at my doctor's office and I am so exhausted and angry from feeling this way for so long. I just want some answers. My primary care doctor has done numerous blood tests which have all seemed to come back normal. I have been sent to GI doctors who have told me they are unsure what the problem is. I have had both upper GI endoscopy's that have come back normal (other than a few inflamed areas of tissue) as well as a colonoscopy that showed no sign of Chron's disease nor problems with IBS. I was then sent to an allergist who gave me many scores of 1's and 2's saying that I had an intolerance to many foods, some very strange ones such as coffee and mustard, but very few 3's or 4's that were full blown allergies. The strangest part to this is that I was told that the allergy test would most likely show nothing significant because I don't get hives, rashes, or swelling of the airways (any physical signs of an allergy) but rather just intestinal issues which typically don't show up on an allergy test. I was then transferred over to a dietician who has limited me down to no red meats, no dairy whatsoever, limited gluten, and as little raw veggies as possible. This has helped some, but just in the sense that when I am hardly eating, I'm not feeling sick.
I have been on and off antacid medicines and currently just got back onto one but they only seem to control the acid which at this time is the least of my worries. I am at a loss as to what the issue is and am so tired of feeling sick every single day. I just am looking for some leads in the right direction and would appreciate any ideas, help or advice that I can get.
Thanks in advance.