Hi all, thanks in advance for any help. I'm a 28 y.o. female with no other medical history except for renal obstruction repaired surgically at age two.
Starting about six months ago, I started developing early satiety and postprandial abdominal fullness and pain. I also had extreme fatigue and night sweats. I have gone from doctor to doctor (rheumatologist, GI specialist, neurologist) and none had any idea. I've finally found a good PC who is looking at the whole picture, but at this point, she is stumped. Here are my symptoms/lab work:
-Postprandial abdominal pressure
-Generalized upper (vaguely right quadrant) abdominal pain and tenderness
-Fever or low body temp (Sometimes I'm at 95.4, sometimes I'm at 101...usually running a fever at night)
-Nausea and vomiting 60-90 minutes after eating
-20 lb weight loss (I'm quite thin to begin with, my BMI is now at about 18)
-Muscle weakness, loss of muscle tone
-Nighttime lower back pain
-Hot, flushed skin
Labs have shown the following:
-TSH of 9.2 (TSH taken about two months ago was well within the normal range)
-Morning cortisol of 32.4
-Normal brain MRI
-Abdominal CT showing what looks like slow/lack of bowel movement (I don't remember the term... I don't feel constipated and am having normal BM's, but the CT and x-ray showed otherwise... the doctor said they didn't look normal, but in a way she couldn't put a finger on), as well as slight ureteral stenosis on left kidney (the one I had surgery on)
-Biopsy of abnormally large/shaped lymph node was benign
-Erratic blood glucose levels, high two-hour glucose level
-No celiac disease
-Normal PTH and T4
-Severe vitamin B and D deficiency, not remedied by OTC vitamins
-low EO# and MONO#
-Currently waiting for results of ACTH stimulation test
-Normal upper endoscopy about two years ago
My doctor was convinced it was Addison's, but the extremely high morning cortisol obviously doesn't fit that, and I have zero symptoms of Cushing's. I had read about Chronic Mesenteric Ischemia (not spelled right, I know), and it vaguely seems to maybe fit, but I'm at a loss.
Does anyone else have any ideas? I'm starting to lose my mind, I can barely function day-to-day and waiting days/weeks for tests and to see specialists is killing me.
Thank you again :(
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