Discussions By Condition: Gastrointestinal conditions

Scared and desperate- Bladder pain again

Posted In: Gastrointestinal conditions 6 Replies
  • Posted By: Winnie29
  • May 26, 2007
  • 08:56 AM

My Name is Nadya, I'm 29 years old, have no children and live a fairly healthy lifestyle (no drugs, non-smoker, little alchohol) I exercise regularly and am not overweight or suffering from any medical conditions except one.
It started 6 years ago when I had a bout of cystitis that not only didn't go away but changed in symptoms over time for 2 years. I had feelings of urgency to go to the toilet, a feeling like a hard lump in my bladder, an extremely sensitive urethra and lower bladder and clitoris, discomfort and aggrivation of symptoms during and after sex.
I had some ultrasounds which all looked normal. Iwent to a urologist who gave me a muscle relaxant and painkillers which helped slightly for a short period. A friend suggested it may be endometriosis- I was getting vaginal pain as well by this stage, probably due to tensing up during sex. I ended up having a lacoproscy and nothing unusual was found but for some reason after the surgery I went back to normal and have been fine for a few years until now.
My symptoms returned after a day at work when 3 times I was not able to get to the toilet and was forced to "hang on" for a couple of hours. That night I felt like I had cystitis with all the usual symptoms, burning, frequency etc but after the usual course of antibiotics from the GP there was no joy. I went for an ultrasound which showed I was retaining a bit of urine after going to the toilet (175ml) which I was told was not much above normal and was prescribed more antibiotics and referred to a gyno-urologist.
The Urologist was very thorough in questioning me and I gave him a full detailed history. He diagnosed me with urethritis as my pain/discomfort is entirely in the urethra and lower bladder. However I have none of the other symptoms such as discharge or burning while urination. He prescribed Sporahexal (cephalexin) one a day for 3 months. Before that I self medicated with Ciproflaxin and flagyl out of desperation.
It has been 2 and 1/2 weeks and there is no improvement whatsoever.
My current symptoms are a very sensitive urethra and lower bladder. It feels like my bladder has been taken out, given a good kicking and put back in again, it feels bruised and sore almost constantly. The only time I feel normal is when I urinate and for a few minutes after. It also feels more sensitive after I pass a stool even though I am regular and don't strain when I go. Sometimes my bladder feels a bit acidic but it's fine when I urinate. I can't drink a glass of water in one go without having the urge to go constantly straight after, I am sipping water all day instead. I have cut out acidic foods, chocolate and any tea or caffeine from my diet.
My mental state is not good, in fact to be honest I am starting to feel suicidal as I already know what this condition did for my quality of life last time. My partner is very understanding but I am constantly angry or depressed and terrified of having sex, I don't know how much longer I would want to live with someone like that so I hope he is patient. My work is also suffering, and I no longer socialise or exercise or do any other activities unless absolutely necessary.
I can take physical pain in my life, if it was just somewhere else on my body! There are many people on this forum who have much worse problems and are far stronger than I am and you have my heartfelt admiration.
BUT if anyone out there can help me out PLEASE PLEASE help!!

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6 Replies:

  • Dear Scared and desperate,My best friend went through the same thing. Your symptoms are almost identical. She was suicidal until she found help. She was diagnosed with interstitial cystitis but nothing helped her. After losing her job and having to go on disability she found out she has dysautonomia which is a disorder of the autonomic nervous system. Most doctors are not familiar with this and it can be difficult to be diagnosed.Just don't lose hope! Get support whereever you can. My friend is so much better now. Try relaxing Yoga andtell yourself that your entire life is not going to be this way. Then look for a doctor and don't give up until you get help.
    Anonymous 42789 Replies Flag this Response
  • Hi Winnie, I have read your post, and am sorry to hear that you are experience such pain. You are so young and should be enjoying life and not be so overly concerned about health. Suicide is not the answer. You probably have people in your life that really care for you. I care about people which is why I am taking the time out of my day to provide you with some information and to let you know that there is hope for you. When it comes to detoxification next to water there is nothing more important in your body than Glutathione. Your body has to manufacture Glutathione. Glutathione appears in every cell of your body. It appears the most in the liver and then in the kidneys. You cannot eat Glutathione the digestive tract will get rid of it. We have to give the body the building blocks or precursors for manufacturing Glutathione. Winnie I need to help you to understand how Glutathione has a realtionship to what you are experiencing. It would take a long email to do that. You can email me, and we can set a day and time to talk about what you are going through and I can provide you with some very insightfull information that will help you to regain your health again. I look forward to hearing from you soon. Have a good day. Donald Farrishdfarrish@starband.net
    dfarrish 34 Replies Flag this Response
  • Hi Nadya, I have read your story and am very sorry to see that you have been going through such a hard time. You are very young and should not be so overly concerned about health. Suicide is not the answer. You probably have many people who care about you and so no like to see you in your present condition. I am taking some time out of my day to email you some information that I would like to share with you. The information that I have should be very encouraging to you today because there is hope for you. In every cell of our bodies we manufacture what is called Glutathione. All though it appears in every cell of the body it is most abundant in the liver and kidneys. When it comes to detoxification next to water there is nothing more important in the body than Glutathione. You cannot eat Glutathione, the digestive tract will get rid of it. We have to give our bodies the building blocks or the precursors so that we can manufacture it. I need to help you to understand the relationship of Glutathione and your kidney. It would take a very long email. Since I don’t type very good. I would suggest that you email me. And we can come up with a date and time to discuss this further if you like. I look forward to hearing from you soon. Thank YouDonald FarrishDfarrish@starband.net
    dfarrish 34 Replies Flag this Response
  • I realize that this was posted in 07 but I have the exact same symptoms that you have. I am also 29 years old and have had one child. I have had these symptoms for about 9 months and they are ruining my life. I was wondering if you found releif? My Name is Nadya, I'm 29 years old, have no children and live a fairly healthy lifestyle (no drugs, non-smoker, little alchohol) I exercise regularly and am not overweight or suffering from any medical conditions except one.It started 6 years ago when I had a bout of cystitis that not only didn't go away but changed in symptoms over time for 2 years. I had feelings of urgency to go to the toilet, a feeling like a hard lump in my bladder, an extremely sensitive urethra and lower bladder and clitoris, discomfort and aggrivation of symptoms during and after sex.I had some ultrasounds which all looked normal. Iwent to a urologist who gave me a muscle relaxant and painkillers which helped slightly for a short period. A friend suggested it may be endometriosis- I was getting vaginal pain as well by this stage, probably due to tensing up during sex. I ended up having a lacoproscy and nothing unusual was found but for some reason after the surgery I went back to normal and have been fine for a few years until now.My symptoms returned after a day at work when 3 times I was not able to get to the toilet and was forced to "hang on" for a couple of hours. That night I felt like I had cystitis with all the usual symptoms, burning, frequency etc but after the usual course of antibiotics from the GP there was no joy. I went for an ultrasound which showed I was retaining a bit of urine after going to the toilet (175ml) which I was told was not much above normal and was prescribed more antibiotics and referred to a gyno-urologist.The Urologist was very thorough in questioning me and I gave him a full detailed history. He diagnosed me with urethritis as my pain/discomfort is entirely in the urethra and lower bladder. However I have none of the other symptoms such as discharge or burning while urination. He prescribed Sporahexal (cephalexin) one a day for 3 months. Before that I self medicated with Ciproflaxin and flagyl out of desperation.It has been 2 and 1/2 weeks and there is no improvement whatsoever.My current symptoms are a very sensitive urethra and lower bladder. It feels like my bladder has been taken out, given a good kicking and put back in again, it feels bruised and sore almost constantly. The only time I feel normal is when I urinate and for a few minutes after. It also feels more sensitive after I pass a stool even though I am regular and don't strain when I go. Sometimes my bladder feels a bit acidic but it's fine when I urinate. I can't drink a glass of water in one go without having the urge to go constantly straight after, I am sipping water all day instead. I have cut out acidic foods, chocolate and any tea or caffeine from my diet.My mental state is not good, in fact to be honest I am starting to feel suicidal as I already know what this condition did for my quality of life last time. My partner is very understanding but I am constantly angry or depressed and terrified of having sex, I don't know how much longer I would want to live with someone like that so I hope he is patient. My work is also suffering, and I no longer socialise or exercise or do any other activities unless absolutely necessary.I can take physical pain in my life, if it was just somewhere else on my body! There are many people on this forum who have much worse problems and are far stronger than I am and you have my heartfelt admiration.BUT if anyone out there can help me out PLEASE PLEASE help!!
    blythe11508 1 Replies
    • November 20, 2009
    • 11:06 PM
    • 0
    Flag this Response
  • Hi Blythe, I think I haven't replied to this post correctly so I hope this gets to you...Currently I am feeling fine but I think it took about a year for the symptoms to go away. I did have an exploratory operation to check the inside of my bladder but the surgeon said there was no sign of any abnormality or infection. After that I gave up looking for a straight answer. The symptoms slowly subsided over time but I have to be careful about 'hanging on' too long before urinating or it does feel sore for a few hours afterwards.Part of the initial problem was a 'spastic bladder' it was really hard but I had to train myself not to go as frequently- first 1/2 and hour and gradually working upwards. This was a big part of the problem solved, if you look up spastic bladder online there will be advice on overcoming it. There was still some discomfort but nowhere near as bad as before I trained the bladder back to normal.I think that was the first step and after that it slowly recovered. One thing I make sure of is that when I occasionally get cystitis- I don't pee every 5 minutes as that will make it go crazy again, I try to keep it to 1/2 hour minimum. Then it just clears up and goes away as normal.I also found heat packs helped relieve some of the pain.I can't say what would work for you but I'm so sorry that another woman is suffering with this horrible affliction. Please don't give up or do anything hurtful to yourself- I just felt so crazy and desperate at the time that I nearly self-harmed.Best of luck, I'm sure you can beat this.
    Winnie29 1 Replies
    • November 21, 2009
    • 09:49 AM
    • 0
    Flag this Response
  • Hi,I realize this is a very old thread, but I have been suffering with the same symptoms for 9 monthes. been to every doctor, had every test. urologist says stressed induced irritated bladder. gave me toviaz, vesicare, enablex, and like you, works for a little while. I get this atleast once every month or so, and I'm down for about 2 weeks. I get "female" area pain, both front and back. had a million tests done from gynecologist too. I currently get so depressed, that I don't want to live like this, while its happening. My husband is patient, but its affecting him too.It is such a weird thing, and it feels hopeless. Like you, I could handle pain in the body just about anywhere, but not this. wondering how you finally got relief, that actually lasted a while. I have been self medicating with antibiotics too, because I'm just hoping they'll work...somehow. Are you still doing well after all this time? any advice you could offer would be greatly appreciated. :o)
    Tammy46 1 Replies Flag this Response
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