I posted in the general diagnosis forum but I haven't had much luck in the way of responses, so I figured I would post here as well.
Ahoy, for that past four years I've been having increasingly bad abdominal pain that resides about three finger-widths above my belly button and seems to be four inches in depth. It is accompanied by intense nausea which requires me to take Zofran once or twice a day to even be able to eat (I went about three or four days without eating before getting this stuff). I've become more and more reliant on high strength painkillers (Demerol takes a good chunk of the edge off) to get to sleep, or to maintain some semblance of sanity. The severity is rising quite a bit as time goes on. I haven't been able to go to school, work, exercise, ect. It feels as if I was punched in the abdominal area hard enough to take my breath away, except the fist bypassed about an inch of flesh and is still inside my abdomen. The nausea is well... extreme nausea, it has never caused me to vomit but I have been very close on several occasions.
I have been to several doctors: Family Doctor, a Psychiatrist, two Gastroentrinologists, and a Pediatrician. All have said that I appear fine and that this is all in my head. All tests (Several blood tests including Anti-Thrombin III, abdominal CT scan, two abdominal ultrasounds, Upper G.I. series, an endoscope down the throat and biopsies from the esophagus, stomach, and small intestine) have returned clear. A stomach emptying study was returned with a result of slow digestion, but the results are blamed on the painkillers.
To take care of the common questions: I don't have bloody stool, the pain is constant but will flare up, it never fully goes away, I am a wee bit constipated but have been so all my life and the entire side of the Mother's family is the same way except without the pain, Milk of Magnesia has been tried and improved the amount of bowel movements but had no affect on the pain, I had had a few extremely severe attacks where I have been lying on the bathroom floor nearly passing out from pain and a combined feeling of intensely extreme nausea and a feeling of diarrhea like cramps but with no stool. I have tried a diet for IBD for three months with no affect on the pain.
When all this started I was mildly anemic and spent 14 to 18 hours a day sleeping, a month or two of iron pills solved the extensive fatigue but not the abdominal pain.
For the longest time there was a persistant, foul tasting, white film on my tongue. Recently I was on 30mg of Nortriptyline to help with the pain, while it had absolutely no effect on the pain it seems to have eliminated the white film when the extreme dry mouth kicked in. I'm now off the medication and the film slowly seems to be coming back.
The only "diagnosis" I have received is "Well, it's probably not cancer and if it was terminal you would likely be dead by now." I'm hoping you folks can help.
Another thing, my Aunt had a similar problem when she was around 10, it was never diagnosed but eventually went away after eight years. Very similar symptoms.
If any additional information is required, just ask. I think I've covered pretty much everything I can think of, however.
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