Discussions By Condition: Gastrointestinal conditions

no antibodies in test, could I still have Celiac?

Posted In: Gastrointestinal conditions 1 Replies
  • Posted By: disappearing
  • April 30, 2008
  • 07:09 AM

Over the last two years I have lost 30 lbs. suddenly on three seperate occasions, for no apparent reason other than constant diarrhea. I was under tremendous stress during those times and the first episode was attributed to IBS and stress.
My mother and her sister were recently diagnosed with Celiac. After hearing their symptoms, I stopped eating gluten. This promptly reversed the second episode and the weight came back quickly. I have a small frame and normally weigh 115 so this is a huge impact. Also, when I quit eating gluten I felt better than I have in years. Although I desperately craved a pizza, I would never have eaten it because it made such a difference in how I felt.
I felt good for about three months. Then the third episode occured. This time there was no diarrhea. I lost 30 lbs. in a matter of two weeks and fell into a deep depression. I was not eating gluten when this occured. I did ask my Dr. to test me for Celiac though. The test showed no anitbodies to gluten. The Dr. said I definitely did not have it and I should try to eat the breads, etc. to help with the weight gain. Against my judgement, I did begin to add gluten back to my diet. I felt horrible almost immediately.
Can the blood test be wrong?
Thanks in advance for any advice
:confused:

Reply Flag this Discussion

1 Replies:

  • Over the last two years I have lost 30 lbs. suddenly on three seperate occasions, for no apparent reason other than constant diarrhea. I was under tremendous stress during those times and the first episode was attributed to IBS and stress.My mother and her sister were recently diagnosed with Celiac. After hearing their symptoms, I stopped eating gluten. This promptly reversed the second episode and the weight came back quickly. I have a small frame and normally weigh 115 so this is a huge impact. Also, when I quit eating gluten I felt better than I have in years. Although I desperately craved a pizza, I would never have eaten it because it made such a difference in how I felt.I felt good for about three months. Then the third episode occured. This time there was no diarrhea. I lost 30 lbs. in a matter of two weeks and fell into a deep depression. I was not eating gluten when this occured. I did ask my Dr. to test me for Celiac though. The test showed no anitbodies to gluten. The Dr. said I definitely did not have it and I should try to eat the breads, etc. to help with the weight gain. Against my judgement, I did begin to add gluten back to my diet. I felt horrible almost immediately.Can the blood test be wrong?Thanks in advance for any advice:confused:Yes, the blood test could be wrong. There are several reasons this could happen. First you must be "on" gluten for the test to have any accuracy. Most probably, if you had not consumed gluten for a considerable period of time before having the blood test, you would not be producing antibodies and the test could be a false negative.Another possibility is if your overall IgA number was low, it throws all the other markers out of whack and you could still have celiac even if the other markers were not elevated.Ask if your overall IgA number was low. If so, the blood test is pretty much useless.Finally, it is conceivable that you have a wheat intolerance without having celiac disease. I was told by an allergist that this is a possibility. Your symptoms would not likely be as severe as with celiac, but they could still be problematic enough for you to need to cut out wheat. My personal view is that if someone feels dramatically better off of gluten, they should just stop eating it, period, no matter what the lab tests say. Life's too short to be imprisoned by a diagnosis (or lack thereof).
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.