Thanks everyone for reading this. I have an illness which has thus far eluded diagnosis. What I know about the condition is that it's causing significant malabsorption in my body and that's the best lead I have to pursue. I'm posting here not to get your opinion on possible diagnoses (my case is VERY complex), but to get your advice on what tests someone with malabsorption might consider having run to 1.) prove they do, in fact, have malabsorption and 2.) narrow down what type of malabsorption it is that they have.
The two tests I am considering (and will likely have) are:
- D-Xylose test
- small bowel scoping. (That may be the wrong term, but I'm talking about having the portion of the GI tract that's not covered in a typical endoscopy and colonoscopy, both of which I've already had)
I'm a 25 y.o. male, 175 pounds, 5'9, athletic build with little body fat, and I exercise intensely 5x/week. Based on these stats, I've used several sites to generate a 3,200 calorie weight maintenance intake. In reality, though, the number of calories I eat on a daily basis is an avg. of 4,350. Based on the above stats, I would need to be 195 pounds heavier (370 pounds) for that to be the number of calories I'd need to maintain my weight. I have major abdominal distention and myriad other symptoms which I presume to be rooted in whatever's causing the malabsorption. I have no diarrhea, gas, or any of the other embarrassing GI symptoms, however. I have about 5 bowel movements a day and I used to have a maximum of 2. Besides the abnormally high calorie intake, another feature of the malabsorption has been the difficulty keeping my Vitamin D levels up. I was first tested at a 16 and have had a very difficult time raising that figure even after months of supplementation at an avg. of aroun 60,000 IU/week. I realize that many people have low Vit. D levels, but I contacted one of the foremost experts on Vit D and, after hearing my supplementation levels and intake through foods, he agreed that something was abnormal. Just so you know, all the basic stuff like Crohn's, Celiac Disease, other food allergies/intollerances, and IBS have been ruled out.
Again, I'm not looking for diagnostic suggestions. I'm looking for advice on which tests could confirm that I have malabsorption and which tests might be more telling about what type of malabsorption I have (i.e. fat malabsorption, carbs, protein) or what portion of the GI tract the malabsorption is occuring in.
Thanks SO much for taking the time to read this.
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