Discussions By Condition: Gastrointestinal conditions

Intense Abdominal Pain

Posted In: Gastrointestinal conditions 217 Replies
  • Posted By: Anonymous
  • October 18, 2006
  • 03:41 PM

Hi there, lately I've been having a severe recurring pain in my stomach just below my sternum. It's an intense gripping pain and has actually doubled me over at one point. It isn't consistent, it comes and goes (over the course of the day), but when it does it's quite severe.

I was wondering if perhaps anybody knows what could be causing this? It's getting hard to eat because I don't want to aggrivate it, but at the same time not eating doesn't help it either! Any help or suggestions you guys could offer would be of great value to me, I want to get rid of this pain as soon as possible but am hoping to avoid a doctor visit.

I've had some food that I wasn't entirely positive about a week or so ago however that was after the pain had started, and I have neither experienced an increase in pain/nausea nor had the urge to vomit so I don't suspect that's the cause. Also I recently had a small head cold, but again I don't suspect that has to do with this (although that's just an assumption). Has anyone experienced this before? As I mentioned it's towards the front of my stomach just below the sternum and is quite severe at times.

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  • I can't believe there are others with these symptoms....I have had this same burning since the week before Christmas. Having a stress test on Monday and endoscopy/colonoscopy on Wednesday. This is the most frustrating pain I have ever had.....feel hungry all the time but double over after I eat. I too have a lot more pain if I lie down, especially if lay on my left side....what is that? My Dr says he has no idea why that would make a difference. Gallbladder is gone so what could be wrong with me?
    Anonymous 42789 Replies
    • January 31, 2007
    • 05:55 AM
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  • I can't believe I am reading these posts, although mine is a bit different as I don't have any vomiting, diarrhea and my pain is in my entire abdomen. I have been in the ER twice with this. It starts as what I think are gas pains in my stomach area/upper abdomen. Then radiates mostly down my right side in a "C". The first time in the ER my lipase level was elevated so they felt it was pancreatitis. This time a month later, same pain occurred but all levels normal. I now have to go back to the GI for ulcer check, gastritis, endoscopy and possibly colonoscopy. The pain gets so bad I cannot walk. I have to crawl (literally). I cannot straigthen up and it's hard to breathe because it hurts so bad. I am 39 and healthy otherwise. All bloodwork, urine, catscans etc are normal including Hpylori. I am very frustrated! I had it once last month and once this month now. I am starting to notice it happens when I eat fattier or not so healthy foods. I wonder if my gall bladder or intestines cannot process it anymore?? But I don't eat those foods on the same day as it occurs. It's usually a day or two before, and then wammo! I'd love any opinions on this.
    Anonymous 42789 Replies
    • February 2, 2007
    • 00:05 PM
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  • Greetings,This must be one of the hardest ailments to diagnose. My daughter, 21 years old, has had severe stomach pain on and off for 6 years. Here is a snapshot of things done over the years:Doctor says:Lactose intolerant (So she stays away from dairy)Food allergies (she stays away from certain foods)Upper GI Tests OKX-rays and CAT Scan OKColonoscopy OKGallbladder removed (Dr said Gallbladder was in bad shape)Stomach continue….Dr. Says it may take a year for her body to get used to working w/o GB2 years after surgery…still has same issuesGo to Dr. at Northwestern in Chicago Dr. prescribes mild antidepressant for , “nervous stomach”Stomach issues slow downAfter 7 months on mild antidepressants, we take her off drugStomach is OK for a whileSeveral months pass and she gets pain attacks that double her over, cause her to sweat and shakePain goes away, stomach hurts for a couple of days apparently due to muscle convulsionsShe is religious with her attention to food intake and type, but it seems that there is no pattern to what she eats and when the attacks come. Yesterday she was at work doing what she loves, student teaching when an attack came. She had to go home to get relief.Diarrhea is also a symptom. She tries to belch to relieve pain. Her stomach gets bloated feeling. Sometimes the pain radiates to her side and back.We are getting ready to go through another round of Dr. visits. It seems that the symptoms are being treated but we never get to the cause.
    Anonymous 42789 Replies Flag this Response
  • I know it's hard to go to the Dr. And "deal" with their bills/ignorence (in many cases). But If I were you, I'd go in to see a Gastroenterologist. Have your regular Dr. refer you, or call on your own. This could be severe. Be prepaired to tell the Dr. ALL of your symptons and say you want to start with "a complete blood work-up" And from there, say you want an a CT scan and/or an X-ray. If still no help demand an endoscopy and/or colonoscopy to find out the problems! The major thing is being the boss in a Dr's appointment. You've obviously done your homework on here, so go prepared, and don't feel bad asking a lot of questions and taking your time. (many Dr's, at least in my experience, always seem in a hurry) Good Luck!
    Anonymous 42789 Replies
    • August 29, 2007
    • 05:30 AM
    • 0
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  • Here has been my solution, and history, to the pain that has been described over and over again in this posting, that I also have had all my life..When I was a baby, my mother said that I would uncontrollably scream day/night scratch my own face from some kind of unbearable pain, and without the help of the doctors, who unfortunately misguided her and from opposition from everyone in the family and the doctors, found through selective diets, that I was intolerant to wheat(gluten), lactose(milk), a little to peanuts, and mildly to corn. This took her some time and the doctors never diagnosed me with celiac, or other disease.After giving my stomach some time to heal and then putting me on a strict diet of what most resembles a Thanks Giving meal, i.e., turkey, potatoes, veggies, rice, fruit, and soy products, i.e. no milk, wheat, or peanut products, I had no stomach problems up through my preteen years. This was because my mother made me stick religiously to the foods she had found that I could eat with out the unbearable pain as an infant.When became a teenager, around 14, on my own I began to experiment the "taboo" foods, i.e., cheese burgers (wheat and milk), pizza (wheat and milk), and pretty much anything else that I felt like trying, much of which had milk and wheat as ingredients. Although to this day I have never tasted plain milk.I did not have any problems with any pains other than occasional diarrhea and figured I had built a tolerance by slowly introducing those foods into my diet.As the years when went by, and the further I strayed from the foods I knew were safe, I began to gain some weight, and when I was 24 years old, I had my first attack of a strong dull pain just under the rib cage slightly to the left that spread to the rest of my lower abdomen. I had diarrhea and constipation that alternated, along with extremely green stool.My grand father and grand mother were both doctors, and my grand mother told me that the green stool was green because it contained bile. (associated w/ the gallbladder and pancreas.) My stomach pains got worse to the point of where I could any piece of food traveling through my stomach and where it was located due to the location of the pain.My pains got worse and worse, and there was always a dull pain under my rib cage, and at some points, it felt like my stomach was going to explode from feeling very full, even if I had not eaten. I began to start my "approved" diet and that helped some.I saw several doctors, who the first one put me on an antacid, which then caused the food in my stomach to feel like glass shards passing through my intestines. It was unbearable. I lost 20 pounds in two weeks. The doctor then diagnosed me with IBS, and attempted to give me handfuls of "free samples" of a new test phase IBS drug that had lactose in it as the number one non-active ingredient, and it also stated in the information, that it had been known to only be effective on female patients, me being a male of course. I told the doctor I would not take the medication, primarily due to that I knew the drug had lactose in it, and the other drugs I took really hurt my stomach. My doctor was so furious with me because I refused his precious free samples. (A month later, came to find out that 9 women died in the nation from this drug, and many more had to have their intestines removed due to it. It was all over the news in 2001)I was a senior at a University in California during finals when the pain climaxed and got the worse it have ever been. I could not move at all... the pain would start at the bottom of my rib cage and move down the left side and to my groin. At this point, I could not even hold water in my stomach; it would just flush through me in about 30 minutes, green with bile. It was excruciating.The pain was so bad, and the doctor started telling me that it was in my head and that he felt I needed to see a psychologist/psychiatrist. I demanded to see a specialist, the my doctor reluctantly referred me to a gastroenterologist for a colonoscopy, which my grandmother suggested.As a surprise to me, the gastroenterologist did not give me any anesthesia during the procedure, and he took 12 biopsies with out telling me that he was going to. During the procedure, I saw something on the screen and asked, "what is that?" somewhat concerned... and he replied very seriously, "That my friend.... is what we call s**t." and he and the nurses all busted out in laughter as I laid there in pain and discomfort. Test results came back negative for everything, the whole slew that is tested for with a biopsy, celiac, etc…. I was healthy in their eyes.That was the point when I just gave into the sickness and pain. Gave up all hope and seriously mentally prepared to die. I really believed I was going to die it hurt so bad to eat. I had stopped eating much for about a month at this point, so I just decided not to eat at all.I read some online about fasting, and how to clear out/clean out my system to avoid any food from rotting in my stomach or intestines. And did not eat or drink for about a day. I suffered during this time, especially since I had not been eating much anyway, but this was from starvation and dehydration. Without food in my system, I had no abdominal pain at this point.After about a day and half, my hunger/appetite went away completely. I still felt really weak though. I started to drink a little water. And to my surprise, I did not pass it in 30 minutes. So I started to drink more, and then a lot water, and I mean a lot. I got thirsty but did not crave food, or feel hunger though. I didn't even feel hungry at all. So after about 3 to 3 and half days of no food, I decided to start with some baby food in a jar. I was going for the simplest and safest food out there. Just the stage one baby foods too, nothing with substance. I only ate one jar for the first day, and then all of a sudden my hunger kicked in, but I still only ate two or three jars the next day, probably only 300 calories at most. Then I upgraded the baby food to stage 3 baby foods.At this point my stomach had seem to have healed. I had no stomach or abdomen pains, and my stool was being processed much more normally. From there I ate rice, beans, mixed with olive oil. as my next full meal after a few days. No pain again. After about a week or so I was eating a fairly bland diet, but I was not dead. After that experience, I have always had a dull sensation/pain under/behind my left bottom rib. I just live with it.More recently, 6 years later in 2007, I had slipped on my diet again, and was eating anything I wanted, and the pain of the past was long gone to me, and had several drinks for the evening at dinner. That night I took some sea sickness medicine for a yatch cruise I was attending in Southern California. The next day on the Cruise I was not feeling well, and believe it or not, I sneezed heavily, and at the same time if felt like my pancreas exploded. It felt like I was yanked back in time to my previous stomach problem, it was extremely excruciating.So what did I do? I fasted again, not as extremely, but I had no choice again. And it worked. I got better, down to just a dull sensation/pain under my rib, which by now, my mind usually blocks it out, and I don't think about it. All of this second bout, without any doctors.Now to the scary part for me. Just his last month, my 5 year old son had a bad case of diarrhea, and since has complaining that his stomach hurts about an inch or two above his belly button, and that it hurts all over. He keels over after ten minutes of eating his food. He does not want to go to school, and he fears eating. He has had a fever of about 100 degrees for about a week or so, and is now turning pale. Some of his stool has been green, like I had experienced, and he is sweating very badly at night. We took him to the doctor, and guess what happened....Diagnosed with IBS and just feed him bananas. As you can gather, he is not feeling well, and is getting worse. This is like my worst nightmare. I would never wish what has happened to me onto anyone else, especially my son. (Well maybe onto a few doctors to say it is in our heads.)And now I have mildly started to feel the pain in my stomach again.My thoughts are that it is some kind of chronic pancreatitis and food sensitivity combined.As for myself, I follow a saying of Albert Einstein "I can die without the help of doctors.", but for my son. I am torn and don't know if I should submit him to the either knife wielding, disbelieving, drug sample slinging, well paid HMO and drug representative pr**titutes, we know as the modern day doctors, or the no-action, hands thrown up in the air… it must be IBS, now you deal with it with no help other than 15 minutes of my time and like I really give a hoot or have any empathy for your child, aka modern doctors. I know there are a few good doctors out there, but how often do they show their faces, and why are there so few. I think I will have to do what my mother did and work on a selective diet first and move from there. I am sorry, but solution is not really a solution.
    Anonymous 42789 Replies
    • October 11, 2007
    • 08:27 AM
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  • In the past 6 months I have had chronic abdominal pain, sometimes a dull ache, sometimes severe pain. Along with the pain I have had alternating bouts of constipation and diareha. I have had blood tests, stool samples, an ultrasound, CAT scan, HIDA scan, upper endoscopy, colonoscopy and I even swallowed a pill with a camera in it. The only thing that all these tests showed was gallstones (Thank God), so I had my gallbladder removed. After all of this, I still had the pain. I finally gave up on the mainstream medical community, as they basically washed their hands of me and went to my first visit to a Naturopathic doctor. He spoke with me for a good hour about my whole life medical history (better than the two and a half minutes I was alloted by the 5 MDs I saw!!). After this he started me on a restrictive diet (lots of protein, no sugars, yeast, molds) along with digestive enzymes and a natural protein shake formulated to help with intestinal inflamation. I also did a stool test that was looking at my good/bad intestinal bacteria mix as well as yeast concentration. The tests showed very low levels of good bacterias, very high levels of bad bacterias and way too much yeast. Diagnosis - CANDIDIASIS, CHRONIC. He has added some natural suppliments (Caprylic acid, oregano oil and Saccharomyces boulardii lyo)that aid in killing the bad bacteria and promote the growth of the good. I feel better after 3 weeks of this regime that I have for the last half a year. This may not be your problem but it seems as if this is a disorder that the MD society doesn'y even look for. You would think that the 2 GI docs that I went to would look for this since it is going on in the digestive tract??? Not an overly earthy, granola type person, but this REALLY helped.
    Anonymous 42789 Replies
    • January 23, 2008
    • 02:26 PM
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  • Hi, I posted this over on the pain section not knowing there was a section for gastro. This is a repeat but i was really surprised at how many people are dealing with the same kind if not the same thing i am and how many of us can not get a doctor to correctyl diagnos and fix us. Im happy to see a community here that is trying to figure it out themselves as i have been trying to do for a long time now as well. This has been going on for over 2 years now. It is dibilitating and strikes for no reason that i can see. It seems like i have seen every doctor and specialist in the city about this.General pain in the abdomen, around the belly button and lower. Stabbing pains which will wake me from a dead sleep in the very lower, maybe upper pelvic area towards the front. Attacks happen for no known reason due to diet, health or excercise and seem to have periods of flarring where ill be good for a day or 2 then out of it for a week, out of it being lying in bed in pain unable to do much of anything at length, even sitting at the computer. The only real comfort i can get when an attack happens is to lay down on my side, usually my right side in a cool place. Usually i just bear with the pain till it goes away or I fall alseep.attacks can last 5 minutes or hours and again seem to be for no reason. I can be driving, walking, sitting, standing or even sleeping and go into an attack and since i had my first one over 2 years ago i have not had a period where it hasnt been with me(sometimes it will go away for a day but thats about it). It also came on with no warning, i was married with a good job that i enjoyed when i had my first attack and it became worse and worse to where i had to leave my job which ended up in the wife going soon after.I dont believe it is stress or mind related at all. I was in a good time in my life when this came about, sure there was stress but a healthy amount of good stress. I was in the military previously and had been in some really messy situations with bad stress and handled it with no problems so i have ruled that out.I have been told i have IBS-irritable bowl syndrome but the meds do nothing.I have been told it was stress related, again the meds do nothing.I have been told it was axiety, again the meds do nothing.I have had an Endo and Colonoscopy with no negitive results.I have have so much blood taken from me to test for everything with nothing negitive.2 Cat scans- 1 at the ER looking at the apendix and gull bladder and 1 general abdomen before my colonoscopy.I have been looking at Chrons alot and when i read how the bowls flare and come and go for no reason i feel i can relate to that and it describes me, the blood in the stool doesnt fit at all though. I seem to move from a soft stool state to normal bowl movements but can not see a pattern with other symptoms.2 symptoms that doctors always seem to shrug off but i feel are important are: I can not drink Alcohol, it will bring me into an attack. I used to drink a few beers when we would go out to eat or even a beer at night after a hard day, rarely drinking heavily except on special occasions.The second being that when i had my colonoscopy and had to flush my bowls, i was in constant pain from my bowls being empty, since this started any time i get the stomach flu and get bad diarrhea to the point my bowls are "flushed" out i end up in bed for days or weeks getting over it. I know this makes it sound so obvious that a Gastro Specialist would know what this is but i have seen 3 different ones now along with a few internal medicical doctors and have even gone eastern medicine and had acupuncture and taken eastern herbs and also to an allergist to test for food and environmental allergies.Nothing seems to work, nothing so far in all the medications i have taken will normalize my life enough for me to even feel comforatable or confident enough to leave my home for an extended amount of time or extended distance. It even hard for me to go to the Doctors for appointments. I am turning to you the community for help. I would be for ever grateful for any help or leads to make my life normal again. Thanks in advance.P.B.
    Silentme 5 Replies Flag this Response
  • I have a constant gnawing pain under from ribcage (right side). Sometimes there is a sharp moving pain and I feel a fluttering sensation. I have thrown up a few times and I am quite dizzy after eating. Went to the ER and the CT Scan and ultrascan showed nothing. My white blood cell count was 12K. Yesterday, went to my GP and had HIDA and fraction test as they were normal. I am beginning to think this is all in my head and I feel like I am going crazy. A few years ago, I was diagnosed with ulcerative colitis through an “emergency” colonoscopy. Then last summer, I had similar symptoms. My white blood cell count was 22K and hard enlarged red blood cells. Then a second colonoscopy (about 3 yrs later) showed no ulcerative colitis. WHAT?Could this be all tied together?P.S. I FEEL YOUR PAIN!
    ChristineCornwell 1 Replies Flag this Response
  • I am a 28 year old male, having no major health issues aside from what i experienced 3 years ago and now again. 3 years ago i had severe abdominal pain, mainly on the left side of my bellow butting going up to my upper abdominal area as well as all the way down to below my belly button. I also got really bad migraine headaches from this. It took about 2 months to go away. I went to a GI and a neorologist. I had an endoscopy, colonoscopy done which showed nothing. A CT scan showed nothing. A CT scan of my head also showed nothing. They gave my amitryptiline last time which i dont think had much of an effect. They did find some inflammation in my intestines and i had h pylori 3 years ago. Now this time its been about 3 weeks...i feel the same exact symptoms. Constant burping, my abdominal area on the left side is tender to the touch, if i bend over it almost feels like there is something in the way. Lately it has even started bothering my lower back. I feel that if i lay down it doesnt bother me as much, as when i sit down for an extended period of time. This latest time i have done a CT scan that showed that i have diverticulosis, but my doctor does not feel that, that is what is causing me this pain. He just said to eat more fiber and thats is how to deal with diverticulosis. I have an upper endoscopy scheduled and another test where i swallow some pill that has a camera in it and it takes a picture every 2 seconds as it goes through the system. I have dont blood tests and stoll tests all normal. They tested me for h pylori again which was also negative. I have been out of work for 3 weeks now. At times the pain is dull, but when it comes bad it is pretty bad and need to just lay down and try to fall asleep. When i wake up in the morning i am extremely dizzy and lightheaded and feel like i am going to pass out. As the day goes on the headaches seem to go away and the pain lessons. It is definitely worse in the morning than later on in the day. Can anyone help steer me in the right direction here. This is so frustrating and depressing to have to deal with, b/c it just takes up my whole day constantly thinking about it, b/c the discomfort is always there. Any help or advce would be appreciated, thank you.
    Anonymous 42789 Replies Flag this Response
  • I have had pain in my upper right quadrant under my lower rib for 8 years. It is so painful right now it hurts to breath or move and is also in my back. I have chronic constipation. i have had so many tests such as endoscopy,colonoscopy,upper gi. After the tests my gastro said I had a redundant colon? Does that mean he was unable to get through all of it? He gave me meds for acid reflux. It doesn't help. He said it might be IBS. It hurts so badly right now I am contemplating going to the ER.They took out my gallbladder,appendix. This started after i had been in mexico and contracted giardia. I had it for a year before it was properly diagnosed and treated. I am desperate for help or suggestions.Thanks in advance!
    melzbelles 1 Replies
    • September 13, 2008
    • 07:31 AM
    • 0
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  • I am a 28 year old male, having no major health issues aside from what i experienced 3 years ago and now again. 3 years ago i had severe abdominal pain, mainly on the left side of my bellow butting going up to my upper abdominal area as well as all the way down to below my belly button. I also got really bad migraine headaches from this. It took about 2 months to go away. I went to a GI and a neorologist. I had an endoscopy, colonoscopy done which showed nothing. A CT scan showed nothing. A CT scan of my head also showed nothing. They gave my amitryptiline last time which i dont think had much of an effect. They did find some inflammation in my intestines and i had h pylori 3 years ago. Now this time its been about 3 weeks...i feel the same exact symptoms. Constant burping, my abdominal area on the left side is tender to the touch, if i bend over it almost feels like there is something in the way. Lately it has even started bothering my lower back. I feel that if i lay down it doesn't bother me as much, as when i sit down for an extended period of time. This latest time i have done a CT scan that showed that i have diverticulosis, but my doctor does not feel that, that is what is causing me this pain. He just said to eat more fiber and thats is how to deal with diverticulosis. I have an upper endoscopy scheduled and another test where i swallow some pill that has a camera in it and it takes a picture every 2 seconds as it goes through the system. I have dont blood tests and stoll tests all normal. They tested me for h pylori again which was also negative. I have been out of work for 3 weeks now. At times the pain is dull, but when it comes bad it is pretty bad and need to just lay down and try to fall asleep. When i wake up in the morning i am extremely dizzy and lightheaded and feel like i am going to pass out. As the day goes on the headaches seem to go away and the pain lessons. It is definitely worse in the morning than later on in the day. Can anyone help steer me in the right direction here. This is so frustrating and depressing to have to deal with, b/c it just takes up my whole day constantly thinking about it, b/c the discomfort is always there. Any help or advce would be appreciated, thank you.Hi Steve and everyone else in the forum. Please reply and let me know whether you have had any diagnosis or health updates. I'm a 35 year old male and also feeling exactly the same symptoms that you had described, and only recently I've had a few more symptoms arise. I'm still undiagnosed and uncertain of this serious health scare which worries me. I'm exhaling peptic gas when eating also worst burping in the mornings as soon as I wake up. Feeling much weaker for a good 3 months and with a loss of appetite, faint and almost like my heart might have arrhythmia. At times I get a sensation of dull electrical current flowing through my head thinking I might have a stroke. Every test so far that you've had also was clear for me. I far as I remember this is how my symptoms began for me. I used to be a smoker and about 6 months ago I got up one morning and as I took a drag of a cigarette I felt severe pain in lower left in between the last two ribs of my cage. Ct scan however was clear. I tried lighting up a cigarette today for the first time after six months just to experiment a drag and the pain was still there in the lower left deep in the ribcage as soon as I inhaled the first drag. I don't smoke any longer of course but I wonder if this stinging pain indicates any sort of damage of my lower left lung. I hope someone with similar experiences or a medical background can help share some light!
    Anonymous 42789 Replies
    • January 3, 2009
    • 01:43 PM
    • 0
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  • I've got a suggestion to those of you who have extreme pain after eating and then vomit later. (However, that's not my stomach problem - mine is extreme pain before eating but I've had a negative endoscopy and colonoscopy - healthly esophagus, stomach, small intestine and colon - can't figure it out, but that's another story). Anyway, my sister has been diagnosed with "Delayed Gastric Emptying Syndrome" - she cannot eat, she is so nauseated, when she does eat, it won't go down, so it comes back up after several hours. The doctors are going to put some botox into the nerve around the bottom of the stomach that will allow her to complete the digestive process. I don't know all the ins and outs but I'm sure you guys can do a search for it if it seems to apply to you. This was something that she suffered with for so long before she had to travel out of town to a university hospital where a specialist finally discovered her problem. Don't give up! Keep researching on your own, but don't give up on docs.
    Anonymous 42789 Replies
    • February 20, 2009
    • 02:52 AM
    • 0
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  • I, too have major abdominal pains along with back pains which spreads through out my shoulders and lower back. I become catatonic and immobile when the attacks happen. I've had these attacks for sometime now, maybe around 7 years. Last year was horrible with attacks every 2 months or so, I went to the ER three times. Docs can't seem to figure out what it is. I've gotten every test except for colonoscopy and everything comes out negative. I just wanted to tell everyone what I do to help me get through the night. I have a massaging chair that works on my back and I get a heating pad to heat my tummy and my back. I guess it's the muscle spasms that starts after the tummy ache which is so debilitating for me. I don't take any meds because it affects my tummy. The problem started 7 years ago with a sensation that I swallowed a golf ball and it got stuck right in the center, under the sternum. I couldn't breathe very well and couldn't wear anything too constricting. It was very uncomfortable but not painful for about a year or two when it turned into this pain that I cannot even describe. I guess closest description would be that it feels like someone is squeezing it. If anyone else has had similar experience, maybe even a resolution, I 'd love to hear from you, Still seeking answers,
    tummytrouble3 1 Replies Flag this Response
  • I posted this in another thread but then found this. I am having very similar problems. It seems that a common trend among many of the posters is that many of us have had our gallbladder out. Basically, I am 28 years old and I feel like an 80 year old woman.... can anyone help???Personal info:Caucasian Female28 years old150 lbs5'5"I don't drink alcoholSmoke 1 pack of cigs per dayNo drugsI don't work around chemicalsI don't live in poverty conditionsNormal diet - love fruits, vegetables, starches, and meatMarried in a monogamous relationshipCurrent meds:Elavil - for anxietyHere is my history:Gallbladder out at 12 years old - over 20 gallstones up to a nickel in sizeMonuecleosis at 13 years old - my liver enzymes still elevate when I have cold or flu1 live birth (born 5 weeks premature without obvious cause)Sinus surgery at 14IUD that unexplained perforated my uterus and landed near my ovaries - 3 months agoSevere diarhea my entire lifeFamily history:Maternal grandparents: Adult onset diabetesFather and paternal grandfather - chronic diarrhea their entire livesFather - cardiac arrest due to electrical malfunction in brain - then stroke at age 54, is living but requires 24/7 care, also had gallstones and Hepatitis AMother has thyroid issuesDaughter suffers from unexplained chronic constipation (encopresis +something else unknown that we are in the process of testing for)Symptoms (some may seem unrelated but I just decided to list everything):Severe upper abdominal pain (right in the center where my ribs start) Most of the time it is a dull aching pain but a few times a day it gets sharp like a knifePain has been on and off for 11 years, but only in the past month has gotten VERY severe (as painful as childbirth and gallstones) - it is not related to types of food/times eaten and there is no pattern as to time of day that it gets worsePain in my joints and muscles - seems to get worse in afternoons and eveningsMajor lower back pain - seems to get worse in afternoons and eveningsChronic fatigue - regardless of amount of sleepChronic insomnia - regardless of how tired I amPainful menstrual cyclesStrong vaginal odor (within the past month - no infection)Ankle that won't heal from sprain (looks black and blue all the time and is very painful)Numbness in two of my teeth and roof of mouth (started tonight)Chronic diarrhea - 5-6 times per day... have to plan when and where I can go based on availability of bathroomsFeel full really fast - used to be able to eat a lot, now I am full after only a few bitesDistended tummy - I've been gaining weight quickly and it's all in my tummy, I look like I'm 6 months pregnant, but I'm notHere is the testing I've had done:Colonoscopy - normal appearance - normal biopsyEndoscopy - normal appearance - normal biopsyBasic blood work (GI doctor ordered) - normalStool testing - no blood, no weird worms or parasitesLiver enzymes - high one night but went down quickly and I had the flu, every few years gets high when I am sickHepatitis Test - negativeUrine tests - had blood for a few weeks (no infection) but then went away with no explanationUltrasound - negative for stones and normal appearanceNo gluten allergyNot lactose intolerantPregnancy test - negative & husband is sterileDoes anyone have an idea or thoughts on what tests might be beneficial? The doctors just keep referring me to someone else. Went from ER to PCP to GYN to Gastroenterologist. Still under GI care but I'm worried he is ready to give up on me.Any thoughts are greatly appreciated!
    westTXgirl 1 Replies
    • January 2, 2010
    • 07:07 PM
    • 0
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  • Stick with the GI Doc for now. Much of what you are describing points to the GI tract. Based on the tests you have listed, what has not been looked at is your small intestine. You need to swallow the camera pill to get a look at what is going on in the small intestine. Since you have had a colonoscopy and it was negative, you can rule out Ulcerative Colitis. What still has not been ruled out is Crohn's disease, which can occur anywhere in the digestive tract, which means from the mouth to the anus and everywhere inbetween. The most common location is the illeum region of the small intestine. So get your GI Doc to order the camera pill test for you. There is also a CAT scan with contrast that you can have to look at the small intestine, but that is not 100% accurate; I know this from experience. I have Crohn's Disease and I have had every diagnostic test, some tests multiple times. While Crohn's Disease always affects the digestive tract, it can also affect most any part of your body. That is because it is an autoimmue disease, meaning it affects your immune system. In addition to the the digestive tract and all the pain accosiated with the digestive tract, Crohn's affects other areas of the body. It can cause periphrial arthritus, joint pain and swelling, periphrial neuropothy, sacroilyitis (lower spine pain, which also radiates down the buttocks and legs), spondylitis (spinal disease), sores in the mouth and on the skin, and other things. Also note that unless the disease is active at the time of the tests, it will not be found. I learned that from experience. It took 10+ years before a Doc finally find my Crohn's Disease. I went through a number of GI Docs and was always told I had irritable bowel syndrome. Well, I proved those Docs wrong. You have to stay with it and not give up. I know you are confused and grasping for staws, but you are not nuts. Something is wrong and there is an explanation; they just haven't found it yet.
    muskie1 1 Replies
    • January 12, 2010
    • 00:25 PM
    • 0
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  • I posted this in another thread but then found this. I am having very similar problems. It seems that a common trend among many of the posters is that many of us have had our gallbladder out. Basically, I am 28 years old and I feel like an 80 year old woman.... can anyone help???Personal info:Caucasian Female28 years old150 lbs5'5"I don't drink alcoholSmoke 1 pack of cigs per dayNo drugsI don't work around chemicalsI don't live in poverty conditionsNormal diet - love fruits, vegetables, starches, and meatMarried in a monogamous relationshipCurrent meds:Elavil - for anxietyHere is my history:Gallbladder out at 12 years old - over 20 gallstones up to a nickel in sizeMonuecleosis at 13 years old - my liver enzymes still elevate when I have cold or flu1 live birth (born 5 weeks premature without obvious cause)Sinus surgery at 14IUD that unexplained perforated my uterus and landed near my ovaries - 3 months agoSevere diarhea my entire lifeFamily history:Maternal grandparents: Adult onset diabetesFather and paternal grandfather - chronic diarrhea their entire livesFather - cardiac arrest due to electrical malfunction in brain - then stroke at age 54, is living but requires 24/7 care, also had gallstones and Hepatitis AMother has thyroid issuesDaughter suffers from unexplained chronic constipation (encopresis +something else unknown that we are in the process of testing for)Symptoms (some may seem unrelated but I just decided to list everything):Severe upper abdominal pain (right in the center where my ribs start) Most of the time it is a dull aching pain but a few times a day it gets sharp like a knifePain has been on and off for 11 years, but only in the past month has gotten VERY severe (as painful as childbirth and gallstones) - it is not related to types of food/times eaten and there is no pattern as to time of day that it gets worsePain in my joints and muscles - seems to get worse in afternoons and eveningsMajor lower back pain - seems to get worse in afternoons and eveningsChronic fatigue - regardless of amount of sleepChronic insomnia - regardless of how tired I amPainful menstrual cyclesStrong vaginal odor (within the past month - no infection)Ankle that won't heal from sprain (looks black and blue all the time and is very painful)Numbness in two of my teeth and roof of mouth (started tonight)Chronic diarrhea - 5-6 times per day... have to plan when and where I can go based on availability of bathroomsFeel full really fast - used to be able to eat a lot, now I am full after only a few bitesDistended tummy - I've been gaining weight quickly and it's all in my tummy, I look like I'm 6 months pregnant, but I'm notHere is the testing I've had done:Colonoscopy - normal appearance - normal biopsyEndoscopy - normal appearance - normal biopsyBasic blood work (GI doctor ordered) - normalStool testing - no blood, no weird worms or parasitesLiver enzymes - high one night but went down quickly and I had the flu, every few years gets high when I am sickHepatitis Test - negativeUrine tests - had blood for a few weeks (no infection) but then went away with no explanationUltrasound - negative for stones and normal appearanceNo gluten allergyNot lactose intolerantPregnancy test - negative & husband is sterileDoes anyone have an idea or thoughts on what tests might be beneficial? The doctors just keep referring me to someone else. Went from ER to PCP to GYN to Gastroenterologist. Still under GI care but I'm worried he is ready to give up on me.Any thoughts are greatly appreciated!Since you have gone through so many tests and some of the symptoms you have mentioned seems to be familiar.Can you go for another test to know your B12 levels in blood or uMMA test to know if your B12 deficiency is causing all this.For more info on B12 read this thread, you may find some more information on it.http://forums.wrongdiagnosis.com/showthread.php?t=62327ThanksArya
    b12_UnDiagnosed 110 Replies
    • January 12, 2010
    • 03:28 PM
    • 0
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  • Greetings,This must be one of the hardest ailments to diagnose. My daughter, 21 years old, has had severe stomach pain on and off for 6 years. Here is a snapshot of things done over the years:Doctor says:Lactose intolerant (So she stays away from dairy)Food allergies (she stays away from certain foods)Upper GI Tests OKX-rays and CAT Scan OKColonoscopy OKGallbladder removed (Dr said Gallbladder was in bad shape)Stomach continue….Dr. Says it may take a year for her body to get used to working w/o GB2 years after surgery…still has same issuesGo to Dr. at Northwestern in Chicago Dr. prescribes mild antidepressant for , “nervous stomach”Stomach issues slow downAfter 7 months on mild antidepressants, we take her off drugStomach is OK for a whileSeveral months pass and she gets pain attacks that double her over, cause her to sweat and shakePain goes away, stomach hurts for a couple of days apparently due to muscle convulsionsShe is religious with her attention to food intake and type, but it seems that there is no pattern to what she eats and when the attacks come. Yesterday she was at work doing what she loves, student teaching when an attack came. She had to go home to get relief.Diarrhea is also a symptom. She tries to belch to relieve pain. Her stomach gets bloated feeling. Sometimes the pain radiates to her side and back.We are getting ready to go through another round of Dr. visits. It seems that the symptoms are being treated but we never get to the cause.I've had these exact symptoms for over a year. The first time I had them they were so bad it put me in the ER because I had been in pain for 3 days and my husband had had it. They did blood work and a sonogram where they found a 4 cm cyst on my left ovary. Four years ago I was diagnosed with Diabetes and they found out I had a GB stone so there went my Gall Bladder. So my pain isn't from my GB. It does help to know that other people have this, whatever THIS is. I go for a colonoscopy in July, but with what I've read so far, it's going to come back normal. Everyone has given me 4 other tests the Dr. can run on me, but I don't know if it's even worth it to try.
    Anonymous 42789 Replies Flag this Response
  • I've been suffering with the same "attacks" since August 12th, 2010.My first "attack" led me to the er - where I was found to have gallstones, it was suggested by the E.R. doctors that I have my gallbladder removed - which I did. After the gallbladder removal surgery I had hoped that it would be the end of my problems - but that wasn't the case.In September I experienced another attack, and was admitted to the hospital, many tests were run (ct with dye, xrays, bloodwork, ultrasound) - nothing was seen in the tests and I was referred to a gastro for an endoscope. I was under the care of the gastro for six months I had the endoscope, upper gi with small bowel follow through, colonoscopy, stool samples, more bloodwork, everything came back fine. He gave me medication for spasms thinking that maybe that could be the cause - no luck.While under the care of the gastro I started keeping track of each attack, so I could better assist my doctor in pin pointing a diagnosis. I noted that my attacks generally occurred in the morning, before I would eat anything. The attacks would last 15-30 minutes, the pain would start off with a "nawing" feeling in my stomach which was bearable but would increase and radiate to my back - which would cause it to be unbearable - my blood pressure would spike while the attack was happening. During these attacks I'd break out in cold sweats, suffered from naseau, I'd be so weak, and found it very hard to move. I also noticed that there was a pattern - these attacks would happen every month, and after an attack my bowels would become very loose.Because the attacks were happening every month I visited my gyn who immediately told me that it couldn't be related in any way to my reproductive system because of the location of the pain. In August 2011, after numerous visits, and after complaining of heavy "clotting" during my periods my gyn thought it best to perform an ablasion and a tubal ligation - although this procedure wasn't a result of my "attacks" - what my gyn found during surgery has me questioning if it could be related. He found that I had endometriosis - it was on my bladder, abdominal wall, uterus and ovaries - he burned away all that he could find. I asked him if it could have caused me pain and he said "absolutely". He said that I should find relief now that he burned away the lesions. Once again, I did not find relief. Here I was - 33 years old 135 lbs, no extensive medical problems (the last time I had been in the hospital was for the birth of my daughter 15 years prior) I am beginning to fall into a depression over this - no one seems to know what the pain is caused by. Last month I visited my GP because I had a cold, while in his office he asked how I was doing with the "attacks" (I thought it best to keep the gyn, gastro and GP all on the same page - so anytime one would perform a test or surgery I'd have the information sent to the others) I told him that I was still having attacks. He referred me to a different gastro. I was disappointed with his referral - I was tired of spending money and not getting any answers - I don't blame the doctors by any means - maybe it's a condition that is very difficult to diagnose. I went to the second opinion and had a MRCP done - that came back clean.The new gastro then gave me orders for labwork - to have done during an attack. Last week I went and had the labwork done. I'm waiting on the results. The new gastro thinks that I may have sphincter of oddi dysfunction - and that I would be a type III. He is waiting for my test results to come back before any official diagnosis. I'm desperate for hope, for answers, or just a sense that I'm not alone in this. Any words of wisdom, advice is greatly appreciated. This is not only the worst feeling I've ever had - but it is also the most emotionally draining - my daughter is terrified when I have an attack, I feel like my family is holding their breath - waiting for the other shoe to drop so to speak. I feel broken.
    lexian96 2 Replies
    • November 13, 2011
    • 05:25 PM
    • 0
    Flag this Response
  • I've been suffering with the same "attacks" since August 12th, 2010.My first "attack" led me to the er - where I was found to have gallstones, it was suggested by the E.R. doctors that I have my gallbladder removed - which I did. After the gallbladder removal surgery I had hoped that it would be the end of my problems - but that wasn't the case.In September I experienced another attack, and was admitted to the hospital, many tests were run (ct with dye, xrays, bloodwork, ultrasound) - nothing was seen in the tests and I was referred to a gastro for an endoscope. I was under the care of the gastro for six months I had the endoscope, upper gi with small bowel follow through, colonoscopy, stool samples, more bloodwork, everything came back fine. He gave me medication for spasms thinking that maybe that could be the cause - no luck.While under the care of the gastro I started keeping track of each attack, so I could better assist my doctor in pin pointing a diagnosis. I noted that my attacks generally occurred in the morning, before I would eat anything. The attacks would last 15-30 minutes, the pain would start off with a "nawing" feeling in my stomach which was bearable but would increase and radiate to my back - which would cause it to be unbearable - my blood pressure would spike while the attack was happening. During these attacks I'd break out in cold sweats, suffered from naseau, I'd be so weak, and found it very hard to move. I also noticed that there was a pattern - these attacks would happen every month, and after an attack my bowels would become very loose.Because the attacks were happening every month I visited my gyn who immediately told me that it couldn't be related in any way to my reproductive system because of the location of the pain. In August 2011, after numerous visits, and after complaining of heavy "clotting" during my periods my gyn thought it best to perform an ablasion and a tubal ligation - although this procedure wasn't a result of my "attacks" - what my gyn found during surgery has me questioning if it could be related. He found that I had endometriosis - it was on my bladder, abdominal wall, uterus and ovaries - he burned away all that he could find. I asked him if it could have caused me pain and he said "absolutely". He said that I should find relief now that he burned away the lesions. Once again, I did not find relief. Here I was - 33 years old 135 lbs, no extensive medical problems (the last time I had been in the hospital was for the birth of my daughter 15 years prior) I am beginning to fall into a depression over this - no one seems to know what the pain is caused by. Last month I visited my GP because I had a cold, while in his office he asked how I was doing with the "attacks" (I thought it best to keep the gyn, gastro and GP all on the same page - so anytime one would perform a test or surgery I'd have the information sent to the others) I told him that I was still having attacks. He referred me to a different gastro. I was disappointed with his referral - I was tired of spending money and not getting any answers - I don't blame the doctors by any means - maybe it's a condition that is very difficult to diagnose. I went to the second opinion and had a MRCP done - that came back clean.The new gastro then gave me orders for labwork - to have done during an attack. Last week I went and had the labwork done. I'm waiting on the results. The new gastro thinks that I may have sphincter of oddi dysfunction - and that I would be a type III. He is waiting for my test results to come back before any official diagnosis. I'm desperate for hope, for answers, or just a sense that I'm not alone in this. Any words of wisdom, advice is greatly appreciated. This is not only the worst feeling I've ever had - but it is also the most emotionally draining - my daughter is terrified when I have an attack, I feel like my family is holding their breath - waiting for the other shoe to drop so to speak. I feel broken.
    lexian96 2 Replies
    • November 13, 2011
    • 05:32 PM
    • 0
    Flag this Response
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