Discussions By Condition: Gastrointestinal conditions

ideopathic gastroparesis and pej tube

Posted In: Gastrointestinal conditions 2 Replies
  • Posted By: jadeycus
  • July 16, 2007
  • 09:11 PM

My names jade im 17, i have recently been diagnosed with mammoth gastroparesis and maldistribution of food in the stomach.
I currently have an nj tube in and in a couple of weeks im having the pej tube, i was wondering if anyone could tell me whether i will still be able to go swimming? and if this procedure is carried out under general anesthetic
I have only just been diagnosed having had symptoms for just under 10 years but it took to long thanks to predjuces and sterotypes, apparently i was anorexic and wanted psychological attention but as soon as i turned sixteen and saw a new consultant gastroentroligist he was able to diagnose me finally!
Having spent most my life in and out of hospital with it i was just wondering what surrounds the years of gastroparesis and if any foods are better to try then others?
Im currently on Losec 40mg, ranitidine 150mg, sulfulcare 4gram, domperidone 60mg, erythmiricin 125mg and cyclizine 150mg
despite the gastric emptying test being done on all these drugs my stomachs not working at all really
so any advice would be much appriciated
thanks jade

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2 Replies:

  • Hello Jade, sorry to hear of your trouble. About seven years ago, my digestive disorders turned for the worse after gall bladder surgery. As the years went by the weight was coming off without trying and I could not digest solid food. Fortunately, a doctor in New Haven, COnnecticut diagnosed gastroparesis and I too took the Domperidone, Reglan and Zelnorm. Zelnorm worked the best but it was recently taken off the market. Nexium helps with the heartburn. Other than that I use a heating pad for pain. Eventually, my choices came down to a feeding tube or the stomach pacemaker, I chose the pacemaker. Instead of your tube ask about the Medtronic Stomach/Gastric stimulator. It's not approved by the FDA, but if your doctors fight for it, insurance would cover it. Good luck. I am truly sorry to hear that someone so young has to go through what you have to.Irene
    Anonymous 42789 Replies Flag this Response
  • Thanks Irene Im gonna try and push this pace maker thing becausee i dont wanna live my life being fed from a maching tehebut im from the uk and from what im gathering i dont think the pafce maker things been over here yet!thankss jade
    jadeycus 3 Replies Flag this Response
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