Here's the rundown of this past year. February 2007 had Colonoscopy, EGD, Laparoscopy and D&C. From those I was told by the doctor's that I had GERD, a small hiatal hernia and from the latter there was evidence of PID, numerous adhesions and endometriosis.
As of a few months ago I was also told that I have IC (after this doctor performed hydro distention)to which I was given medication for. Then, about two or three weeks ago I had another doctor tell me that I have IBS (same doctor that performed the Colonoscopy and EGD) and again I was given medication.
However, like today, the symptoms aren't getting any better. As I said in previous posts, it started with what I thought was a simple UTI that the doctor didn't treat appropriately. Granted all the diagnosis's I have received cover majority of the symptoms, but something just doesn't seem right. I'm down to eating one meal a day, but doctors are no longer concerned because I'm starting to put some weight back on. Today for example, which is a typical day, I had three chicken nuggets and a half dozen or so fries and I couldn't ear any more. As usual my stomach bloated and made me look about eight months pregnant, which I assume it what actually gives me the full feeling, but I keep getting this pain around my waste, like someone has a belt around me pulling it tighter and tighter. It feels kind of like really really bad menstrual cramps, but I know that's not what it is, just feels the same and is in the same area. But right now it's killing me and I go through this a lot.
I've also been getting headaches a lot more frequently lately, which again, doctors don't seem to be concerned about. Same with my mood swings, which their not concerned about either.
Has anyone had something similar happen to them? I've coming up on two years with this problem, and after all these doctor's and their many diagnosis's, nothing is improving... at all. When I pointed out a month or so ago that I can eat only late of an evening and that I crave sugary foods, the doctor simply said it was IBS, that and my mention of the extremely loud noises my stomach makes, which is really embarrassing. But he didn't give me this diagnosis when he did the colonoscopy and EGD, which I would think is when he would have found out if it was or not.
I'm just scared that every doctor says something different. My Ob/Gyn said one thing, the gastro doctor something else, the urologist something else and every doctor in between. I've been told everything from depression to those noted above, but again, treating them is doing nothing. I miss eating, as odd as it sounds, and am tired of hurting every time I do eat. Now I find myself forcing myself to eat when I'm not hungry, just because I know that I "have to". I've even had doctors insinuate that I have an eating disorder because I'm on the extreme petite side at a little over 5 foot and 98lbs. I've always weighed the same, doctor were concerned at one time, but it's always been written off as metabolism. But when these symptoms started I dropped down to under 80, yet strangely enough my clothes wouldn't fit because of the mysterious swelling around my hip bones, especially on the left side. Doctor's still have no explanation for this either.
Sorry this has gotten so long, but I'm really getting frustrated here and don't know what to do. Doctor's are more than willing to lay a diagnosis on me anytime I want one, but finding the right one seems to be the problem as I still don't think they've found the cause of my problem. I do believe they may have found the things they have said, but don't feel they have anything to do with the last two years. GERD I could have guessed as I had heartburn pretty much every day. The hiatal hernia I could have guessed as well due to the fact that everyone in my family has one. As far as IBS, I don't know about that one and the Ob/Gyn I had turned out not only to be a ***k, but a quack too, so who knows.
But I'm at my wits end with doctors and am sick to death of being run in circles. Does anyone have any advice?
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