hi there, im a 35 yr old mum of three my problems started when i was sixteen,first they found pre cancer of the cervix got rid of that. but extreme pain that knocks you to the ground kept happening. the pain started either in the lower abdomen or shoot up thru the **m,with the pain i would then bloat to the size of a healthy 4or 5 month pregnant woman (i am quite a slim build) in about 5 mins.when i was 20 they found endometrosis lasered it away 3 times over a period of 7yrs .still the pain kept coming back,they looked again for endo but said that it wasnt a gyno prob go away which i did for several years.i tried going alternative drs and got told that my digestive enzymes were missing so pumped myself with their potions to no releif, even went to ki korean treatment they said that my problems were to big that i didnt have proper energy flow that there was some kind of blockage.from there i went back to standard medicine that was 2003, got diagnosed with raynards phenonmon and was told that i has very small veins and arteris but no blockages,i had a sliding segment in my coxcyc bone which they removed my whole coccyx bone. then they found a small sliding hiatus hernia,then it was the worst reflux in australia in the last decade with a toally stuffed oesophagus which has now turned into barretts eoesphagus, chest pain that makes me think im having a heart attack,they were going to do a fundoplication until they found out that i have severe gastroparesis, i also have von willibrands blood disease,theyve suggested SMAS superior mesenteric artery syndrome, scleroderma/CREST all blood tests are normal except iron which is low and a positive ANA low titre of 1:80 speckled. one specialist told me that i dont fit any of the catergories so he made me one it calle global upper gastrointestinal dysmotility disorder with possible connective tissue type disease. Does ANYONE know anyone LIKE ME cause i really do feel alone sometimes as im going thru this.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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