Discussions By Condition: Gastrointestinal conditions

Figuring out the pancreatitis maze

Posted In: Gastrointestinal conditions 5 Replies
  • Posted By: Anonymous
  • October 4, 2008
  • 00:23 PM

Last week I was a very healthy 32 yr old woman with a belly ache...and this week I have pancreatitis, apparently! For the last week or so I have had what I can only explain as an ache in my mid-epi region, like I've been socked in the stomach. Generally tender all the time with periods of a rolling burning feeling, sort of, but never anything more than fairly mild discomfort...totally fine otherwise and not ill realy at all. So I was quite surprised to see my bloods come back at 780 U/L amylase! What the?? Lipase was not tested (but will be in a few days). US has shown perfectly normal gallbladder, pancreas, liver, kidneys, spleen, etc. All other bloods came back normal. Nothing fits. Other than mild epigastric pain and tenderness and the amylase level, all is fine. So I am thinking that the two main causes of pancreatitis - gallblader and alcoholism - are not really relevant. In looking deeper into this I am wondering about the possiblility of amylase being so high from excessive amounts of salivary amylase (as opposed to pancreatic amylase)...I had a nasty flu a few weeks ago that wreaked havoc on my salivary glands. Then there is this whole other world of macromyalesemia, which seems more appropriate (but would I still have the tenderness and pain?). I am planning on getting bloods redrawn in a few days - and I will have a urine test done too to rule out or confirm macromyalesemia. I am just completely baffled and would love to hear from anyone with a similar experience!

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5 Replies:

  • Be sure you have a radionucleotide uptake test for your gallbladder. An ultrasound only shows if there are stones; doesn't necessarily show if it is functioning. A radionucleotide test will show if it is squeezing out the bile as it should. It can be non-functioning, and causing you pancreatic problems.Your other research and suggestions all sound reasonable; you may just have to wait it out. Hopefully you get better with time, too, if there are no mechanical problems. Marionstar
    marionstar 228 Replies
    • October 5, 2008
    • 02:02 AM
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  • Thanks for your reply, marionstar. If my gallbladder was compromised, wouldn't I feel it and / or have abnormal liver function readings? That is what is so bizarre about this whole thing...other than some tenderness in my mid to left epigastric region, and the sky high amylase levels, I am fine and have none of the other abnormal blood work that would usually correlate with pancreatitis. After reading some of thius forum I feel a bit chagrined to even be posting...so many people have had such full-on experiences compared to my virtually painless situation. We are all just after information I suppose:)
    Anonymous 42789 Replies
    • October 5, 2008
    • 02:29 AM
    • 0
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  • Not necessarily would you have gallbladder pain with a non-functioning gallbladder. Granted, it may be something else. But I had a GB test 4 years ago, the U/S, which was normal. And four years and a lot of sickness later I had the radionucleotide test, which showed that my GB didn't function. By then I had pancreas problems too. Having my gallbladder out helped, but hasn't cured the pancreas. So, I think it is worth while to at least be sure the GB is working. You could have another problem with the pancreas, but only time and persistence will know. Good luck. Marionstar
    marionstar 228 Replies
    • October 6, 2008
    • 02:14 AM
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  • Last week I was a very healthy 32 yr old woman with a belly ache...and this week I have pancreatitis, apparently! For the last week or so I have had what I can only explain as an ache in my mid-epi region, like I've been socked in the stomach. Generally tender all the time with periods of a rolling burning feeling, sort of, but never anything more than fairly mild discomfort...totally fine otherwise and not ill realy at all. So I was quite surprised to see my bloods come back at 780 U/L amylase! What the?? Lipase was not tested (but will be in a few days). US has shown perfectly normal gallbladder, pancreas, liver, kidneys, spleen, etc. All other bloods came back normal. Nothing fits. Other than mild epigastric pain and tenderness and the amylase level, all is fine. So I am thinking that the two main causes of pancreatitis - gallblader and alcoholism - are not really relevant. In looking deeper into this I am wondering about the possiblility of amylase being so high from excessive amounts of salivary amylase (as opposed to pancreatic amylase)...I had a nasty flu a few weeks ago that wreaked havoc on my salivary glands. Then there is this whole other world of macromyalesemia, which seems more appropriate (but would I still have the tenderness and pain?). I am planning on getting bloods redrawn in a few days - and I will have a urine test done too to rule out or confirm macromyalesemia. I am just completely baffled and would love to hear from anyone with a similar experience!I have had pancreatitis for several years some Drs. say most of my life. I find I cn live with it by taqking Pancrelipase 8P (Cotazym E.C.s.8 8 I take 4 pills with meals and 2 with snacks, this is by a precription from a DR. Hope this information helps, they don't have a cause for mine and I do not drink alcohal ever.
    Anonymous 42789 Replies
    • January 28, 2009
    • 05:30 AM
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  • I had a nasty flu a few weeks ago that wreaked havoc on my salivary glands. Sjogrens syndrome can cause problems with salivary glands and can also cause problems with the pancreas. It is however found in people with dry eyes and mouth....
    Anonymous 42789 Replies
    • January 28, 2009
    • 07:18 PM
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