Discussions By Condition: Gastrointestinal conditions

Doctors say IBS but I'm not so sure

Posted In: Gastrointestinal conditions 3 Replies
  • Posted By: tummytrouble3
  • August 4, 2009
  • 05:18 AM

I have major abdominal pains along with back pains which spreads through out my shoulders and lower back. I become catatonic and immobile when the attacks happen. I've had these attacks for sometime now, maybe around 7 years. Last year was horrible with attacks every 2 months or so, I went to the ER three times. Docs can't seem to figure out what it is. I've gotten every test except for colonoscopy and everything comes out negative. I just wanted to tell everyone what I do to help me get through the night. I have a massaging chair that works on my back and I get a heating pad to heat my tummy and my back. I guess it's the muscle spasms that starts after the tummy ache which is so debilitating for me. I don't take any meds because it affects my tummy. The problem started 7 years ago with a sensation that I swallowed a golf ball and it got stuck right in the center, under the sternum. I couldn't breathe very well and couldn't wear anything too constricting. It was very uncomfortable but not painful for about a year or two when it turned into this pain that I cannot even describe. I guess closest description would be that it feels like someone is squeezing it. If anyone else has had similar experiences, maybe even a resolution, I 'd love to hear from you,

Still seeking answers,

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3 Replies:

  • Hi it sounds dreadful, I personally do not think IBS exists I think it is the doctors way of saying I dont know whats wrong with you so il put you in the ibs box. I have just had my colon removed after 11 ops so ive had most colorectal ops and every test going. Have you seen a colorectal specialist? I would def ask your doc to put you forward for a colonscopy
    crunchiejoe 61 Replies Flag this Response
  • I have been dealing with something similar for over a year now. I have severe lower right quadrant pain, low back pain, diarrhea, nausea, weight loss and rectal bleeding. I have had numerous ER visits and I've seen four different GI docs. They have told me it was IBS. I told the last one that I felt like IBS was just them giving a name to "we don't know" and he told me I was correct. I have had two colonoscopies, EGD, small bowel follow through and three CT scans. My next procedure will be a capsule endoscopy. All my tests have come unremarkable according to the docs. I can't help but feel that they are missing something. I had one doc percuss my right abdomen and it sounded hollow. It's called tympany. He said it is common with a bowel obstruction but did not order another CT! I have been looking into something called intussusception. It is rare in adults and causes the exact same symptoms I'm experiencing. It can be difficult to diagnose. First, docs don't look for it in adults. It's more common in children. They have told me,"You don't have that. Only kids get that". Second, it has a tendency to spontaneously correct itself at times so it can be hard to pick up on a CT or x-ray or ultrasound. I need a good doc to pay attention to me! I'm a nursing student so I have a little knowledge about medicine.
    pavlovs-cat 1 Replies
    • August 26, 2009
    • 11:01 PM
    • 0
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  • I have severe lower right quadrant pain, low back pain, diarrhea, nausea, weight loss and rectal bleeding. I told the last one that I felt like IBS was just them giving a name to "we don't know" and he told me I was correct. I have had two colonoscopies, EGD, small bowel follow through and three CT scans. My next procedure will be a capsule endoscopy. that sounds EXACTLY like crohn's! i have it. i have terrible pain in my right side, mid-lower back pain, nausea, extreme weightloss and rectal bleeding. i had 5 colonoscopis with a capule endo in the middle until i finally had one that showed crohn's. and can get pretty serious. not so much that it will kill you, but if it goes un treated for long enough, you can lose part of your small intestines (i assume that's where it is b/c the lower right pain is associated with crohn's of the small bowel at the illium). talk to your dr. lie and say it runs in your family. try anothere dr if you have to. i went to 8 probably, said a first cousin has it (she's my grandma's first cousin's wife so she's not really related at all) andthey finally found it after eight years. be your own advocate. the only test i ever had that suggested it before now was the capsule endo. and even then my dr said i don't think you have that. long story short and 3.5 yrs later, i do.
    Anonymous 42789 Replies
    • August 27, 2009
    • 05:10 AM
    • 0
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