Discussions By Condition: Gastrointestinal conditions

Crohn's Disease???

Posted In: Gastrointestinal conditions 1 Replies
  • Posted By: latejuly
  • April 2, 2009
  • 03:25 AM

For 6 years I've been sick and off and on they mention Crohn's disease. I have the symptoms of it. I have chronic diarrhea, lost 35lbs, nausea, and terrible abdominal pain around my bellybutton that swells up sometimes all the way up to my liver. When you press on it I want to vomit.

I have had a long standing issue with absorbing b12 even with shots and supplements.

I've done CT's, MRI's, 2 colonscopies, 2 endoscopies, 2 upper GI's, 1 barium enema.. they can't find anything that shows crohn's on the inside. Someone mentioned that my pain is located in my ilium which is wher eb12 is absorbed. if i had crohn's it would make sense. Some people say you can't get to all of the small intestine with endo or colonscopy. Is that true? The gastros are pretty cocky and think they know everything, and because I'm a girl I must be nervous but Im not a nervous person.

Am I missing something? I have arthritis and inflammation, I weigh 100lbs and am 24 years old now. this is insane... so is there a possibility there could be crohn's? My doctor says yes but the gastros say their busy and if it isnt obvious then its 'probably' not there.

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  • Wow, this sounds extremely similar to what is happening to me. "You're a woman you must be nervous" "You do well in school, you must be too ambitious." I have been sick for four years now. I have lost weight, and I am in pain. My primary tells me he thinks it is Crohn's my gastroenterologist tells me they can't find anything. I have Crohn's/Colitis on both sides of my family, I would be the third generation and the fifth family member. Sometimes it is so bad I stop eating. I have problems with my esophagus too. Difficulty swallowing, sores, swelling, all of the fun stuff. Personally, I intend in find a new doctor. I am only 18, I have been sick all of my high school career. I wish I could be more of a help to you. With some people they can catch it quick, and others it seems that they can't. I had a capsule endoscopy, which if you haven't had, I would recommend. It is hard to get it approved by your insurance, but it is what I would try. It allows them to see the whole area.
    Anonymous 42789 Replies
    • January 16, 2010
    • 01:35 AM
    • 0
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