Discussions By Condition: Gastrointestinal conditions

Barrett's Esophagus

Posted In: Gastrointestinal conditions 14 Replies
  • Posted By: Anonymous
  • November 28, 2006
  • 01:06 PM

I was diagnosed with Barrett's about 6 months ago and was given Nexium to take daily. The doctor does not seem very concerned that this could lead to cancer of the esophagus but I have my doubts. Does anyone here have Barrett's and if so, can you give me your insight on this disease? The doctor did not give me much info other than to come back every 2 years to get an endoscopy.

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14 Replies:

  • Yes I To Have Been Diagnosed With Barretts ( 2mths Ago ) After Having Reflux Symptoms For 3 Years. My Doc Has Put Me On A Combination Of Tazac And Somac Twice Daily After Going Thru A Dozen Or So Of Other Medications That Didn't Work For Me Nexium Was One Of Them. My Doc Also Doesn't Seem To Worried About Cancer Either. From All The Reading Ive Done Esophagael Cancer Is Very Rare And Only 1-2% Of People With Barretts Will Get Cancer Main Concerni Have Though Is That I Dont Fit The Typical Group Which Is Over 50 Male.i'm A 35 Yr Old Woman. The Main Thing To Do To Reduce Your Risk Of Cancer From Your Barretts Is To Stop Or At Least Reduce Your Reflux As Much As Possible Hope Some Of This HelpsGreen Eyes Dragon;)
    green eyes dragon 3 Replies
    • November 30, 2006
    • 00:32 PM
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  • Thats good to know.......my first thought was cancer!I dont fit the typical group either....I am a 39 yr old female.Whats even stranger is that I have never had the first symptom of acid reflux......The reason I even had an endoscopy is because I was having trouble with the feeling of food or drink getting stuck as I swallowed.Thank you for your post.VenissaYes I To Have Been Diagnosed With Barretts ( 2mths Ago ) After Having Reflux Symptoms For 3 Years. My Doc Has Put Me On A Combination Of Tazac And Somac Twice Daily After Going Thru A Dozen Or So Of Other Medications That Didn't Work For Me Nexium Was One Of Them. My Doc Also Doesn't Seem To Worried About Cancer Either. From All The Reading Ive Done Esophagael Cancer Is Very Rare And Only 1-2% Of People With Barretts Will Get Cancer Main Concerni Have Though Is That I Dont Fit The Typical Group Which Is Over 50 Male.i'm A 35 Yr Old Woman. The Main Thing To Do To Reduce Your Risk Of Cancer From Your Barretts Is To Stop Or At Least Reduce Your Reflux As Much As Possible Hope Some Of This HelpsGreen Eyes Dragon;)
    Anonymous 16 Replies
    • November 30, 2006
    • 01:32 PM
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  • barrett's here to - diagnosis a year ago and I was put on plain old pepcid ac (famitodine) and endoscopy every two years.. Same here too on the little info. did all the research myslef. As far as the med's working - they did for a while but now I think I may call and have him put me on nexium. I could usually get away with using the Pepcid and then Pepto as a backup but recenlty I had a huge Italian dinner and it did me in... indegestian pains since tuesday.. and random pains here and there in my chest also with shallow breathing. Oh and yea I am a 31 yo female LOL not the typical patient either! LOL :D
    Anonymous 42789 Replies
    • December 22, 2006
    • 08:38 PM
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  • Sounds like the need to reconsider what they call the typical age and sex for aquiring Barretts!
    Anonymous 16 Replies
    • December 23, 2006
    • 05:57 PM
    • 0
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  • My wife, 65 yrs old, was diagnosed with Barret's. She went through Nexium treatment for 1 yr and was diagnosed free of Barret's. Continued Nexium led to stomach upset. So, She stopped it. To reduce acid reflux, I raised the head of the bed by 3 inches. She said it helped.
    Anonymous 42789 Replies
    • January 5, 2007
    • 00:49 AM
    • 0
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  • I also have Barretts.iwas diagnosed when I was 20. I am a 29 year old mother of 2. I have had 2 surgeries called I think fundlplication I think I am supposed to have a endoscopy 1 a year but the doctor I have know doesn't know too much about the disease which is frustrating for my questions don't get answered. I am on no medication. The doctor who diagnosed me said this is a serious disease. He has not seen a young woman with this at that time. The Doctors who I have ran into don't really know much so I want to know since I was diagnosed so young and have had 2 surgeries have not quit smoking, I used to drink lots of coffee until I recently lost for the taste. I eat chocolate I basically haven't stopped my habits for I don't know. I want to know what are the chances of it turning into stomach cancer. My grandma recently was diagnosed with stomach cancer does that mean anything? I know how it feels when you don't get much answered
    cheekysmooth 1 Replies
    • February 18, 2007
    • 05:23 PM
    • 0
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  • Hi i am a 38 year old male i just got diagnosed about two months ago with barrets esophagus is there anything i should be doing to prevent this from becoming a more serious threat. I am nexium but how long can i be taking nexium? isn't is just a treatment program in which you are supposed to stop taking it? please help need some input thanks.
    sandiffer 1 Replies Flag this Response
  • IMO allopathic meds are mostly treating symptoms and not getting to the root cause of this disorder. Consider two things - food intolerances of some sort may be contributing, if not directly causing, this problem. A good naturopath, kinesiologist, or NAET practitioner can point you in the direction of what types of foods/drinks are causing this problem. Suspected culprits: peppermint, tomatoes, salads, onions, spicy pungent foods, OVEREATING, dairy, caffeine, and others. Another thing to consider is trying a good quality digestive enzyme supplement and take this AT EVERY MEAL. This can be very helpful. I like BioCore Pro by NSI from Vitacost.com, but there are good ones out there - just stay away from papaya based as they are of poor quality. Consider acupuncture and Oriental Medicine to help your symptoms. This form of medicine can be very helpful. The classic Chinese patent formula called Pill Curing or Kang Ning Wan, is fantastic and is used for all sorts of stomach issues, from overeating (post thanksgiving feeling), to stomach flu and food poisoning. This is the one formula to have in your medicine cabinet! Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Hi I just want to add I am a 36 year old female diagnosed with Barrettes (long segment yippeee) diagnosed in my late twenties I was given the big scare but little info on what to do other than take 2 nexiums a day and come back bi annually to monitor . For lack of insurance and the outragious price of Nexium I spent years pretending they never told me .I finally had enough of the pain and enough insurance to go back to a Gastro and pay part of prescriptions 3 years ago so I did and what I got was a cold shoulder an attitude and a test that revealed what I already knew Long Segment Barretts but what really chapped my butt is him asking me if I eat and when I responded yes but I don't ever enjoy it when it usually leads to some kind of pain or drama he put his little recorder to his face and taped " self induced anorexia" . I am 5'5" 115 pounds and I am the daughter of a 5'1" 98 pound woman. I am not a man I am not overweight and I do not have any eating or after eating disorders other than reflux what caused it why I have it who knows but I do know we all need and deserve more answers than take a pill you know nothing about prescribed by a guy who knows nothing about you or your problem for a term nobody can seem to be clear on and cross your fingers . I hope that they whoever "they " is will open up to the idea that this is not obviously a certain age sex weight etc disorder and start pointing us at who can help better than the Gastros that seem as lost as we are everything I found I found online and the Nexium price for life didn't seem doable especially if discontinuing equals more damage . I am prescribing myself OTC Prilosec weaker but more affordable in terms of if needed forever and still stuck crossing my fingers may we all find a Dr who cares and knows what to say and do and if nothing else may they figure out what makes the percent that develop cancer 0 when you tell me this is an over 40 male problem then the percentage of those who will develope cancer may be way off too so any less scarey info on what we all in all ages and groups need to do to better our odds would be appreciated it is funny that the whole world is hearing about Nexium and OTC all of a sudden the world has reflux great for someones pocket but heres the thing some of us had it really had it and way too long!
    Anonymous 42789 Replies
    • October 11, 2008
    • 07:11 AM
    • 0
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  • I have been reading through the last dozen or so posts and they basically say the same sort of thing. It appears most doctors don't regard Barrett's Esophagus as much of a problem. The truth is that probably most doctors in this country have never even heard of it. The standard line they usually give you is: "take Nexium or Prilosec and come back in a couple of years." If you follow this advice you may be dead in a couple of years. Esophageal cancer is the fastest growing cancer in the United States. Many people have had Barrett's Esophagus for many years but don't know it. It is true that only a small percentage of those with Barrett's contract Esophageal cancer. But, what if you are one of those in that small percentage?You need to educate yourselves about Barrett's Esophagus since most doctors can't or won't. When you get done reading the information contained in the following two links you will know more about Barrett's than 95% of the doctors in the country. If your Barrett's progresses to cancer, it can spread rapidly and is very deadly.First, go to: http://www.barrettsadvice.comThis wil give you a good overview of what you are dealing with.Second, go to: http://pathology.jhu.edu/beweb%5Fchat/This forum is the premier forum concerning BE and is sponsored by Johns Hopkins in Baltimore. Read back through the posts for the last year and you will have a tremendous amount of first-hand knowledge of BE. Don't be afraid to post questions. There are some very knowledgable people on the forum who have been through what you are going through and will be very happy to answer your questions. Don't delay...if you have been diagnosed with Barrett's Esophagus you need to take control of your treatment since most doctors again just say: "see you in a couple of years."All the best,Ralph
    pygmalion 1 Replies
    • January 10, 2009
    • 01:07 AM
    • 0
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  • I am a 33 year old female who just got diagnosed in July with barrett's with dysplasia and am terrified, I was put on omneprazole and told to have a biopsy in 6 months. I working for a doctor did my reasearch, I never had any symptoms what so ever went for colonoscopy and they just decided to do endoscopy as well. So I guess it was a god. Anyway I refused to wait for 6 months and just had my upper endoscopy done again today and apparently the tumors I had dimenished, not sure how, Dr. said its some what of a miracle and all though I still have to wait for the biopsy results. The images he obtain today looked like two different people. He is confident that the dysplasia could have be a mistake because apparently the first time I did biopsy I was very inflamed and today was not. The Dr. is confident that the dysplasia is gone. My question is has anyone ever had a pathology result come back wrong.
    Anonymous 42789 Replies
    • October 8, 2009
    • 05:54 PM
    • 0
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  • I am a 33 year old female who just got diagnosed in July with barrett's with dysplasia and am terrified, I was put on omneprazole and told to have a biopsy in 6 months. I working for a doctor did my reasearch, I never had any symptoms what so ever went for colonoscopy and they just decided to do endoscopy as well. So I guess it was a god. Anyway I refused to wait for 6 months and just had my upper endoscopy done again today and apparently the tumors I had dimenished, not sure how, Dr. said its some what of a miracle and all though I still have to wait for the biopsy results. The images he obtain today looked like two different people. He is confident that the dysplasia could have be a mistake because apparently the first time I did biopsy I was very inflamed and today was not. The Dr. is confident that the dysplasia is gone. My question is has anyone ever had a pathology result come back wrong
    cece8176 2 Replies
    • October 8, 2009
    • 06:18 PM
    • 0
    Flag this Response
  • Hi I just want to add I am a 36 year old female diagnosed with Barrettes (long segment yippeee) diagnosed in my late twenties I was given the big scare but little info on what to do other than take 2 nexiums a day and come back bi annually to monitor . For lack of insurance and the outragious price of Nexium I spent years pretending they never told me .I finally had enough of the pain and enough insurance to go back to a Gastro and pay part of prescriptions 3 years ago so I did and what I got was a cold shoulder an attitude and a test that revealed what I already knew Long Segment Barretts but what really chapped my butt is him asking me if I eat and when I responded yes but I don't ever enjoy it when it usually leads to some kind of pain or drama he put his little recorder to his face and taped " self induced anorexia" . I am 5'5" 115 pounds and I am the daughter of a 5'1" 98 pound woman. I am not a man I am not overweight and I do not have any eating or after eating disorders other than reflux what caused it why I have it who knows but I do know we all need and deserve more answers than take a pill you know nothing about prescribed by a guy who knows nothing about you or your problem for a term nobody can seem to be clear on and cross your fingers . I hope that they whoever "they " is will open up to the idea that this is not obviously a certain age sex weight etc disorder and start pointing us at who can help better than the Gastros that seem as lost as we are everything I found I found online and the Nexium price for life didn't seem doable especially if discontinuing equals more damage . I am prescribing myself OTC Prilosec weaker but more affordable in terms of if needed forever and still stuck crossing my fingers may we all find a Dr who cares and knows what to say and do and if nothing else may they figure out what makes the percent that develop cancer 0 when you tell me this is an over 40 male problem then the percentage of those who will develope cancer may be way off too so any less scarey info on what we all in all ages and groups need to do to better our odds would be appreciated it is funny that the whole world is hearing about Nexium and OTC all of a sudden the world has reflux great for someones pocket but heres the thing some of us had it really had it and way too long! Hi - I am a 45 year old female. Diagnosed w/Barrett's after YEARS of chest pain and, finally 2 trips for that chest pain to the ER. I went to the Cardiologist for the 2nd time in 5 yrs for a work up, only to be told my heart's great...had to be something else. I had already had some test 2 yrs ago (drinking something) for reflux, which showed none. So I went to a great GI doc here and he scheduled an endoscopy. Found that, as a result of years of aspirin (and the like) - I'm a longtime migraine sufferer - I have erosive gastritis. A few days later he called w/the biopsy results...Barrett's also. He was very particular: no caffeine, no chocolate, NO more aspirin, motrin, etc., I have a list of no's. Additionally, a list of how to eat for reflux sufferers. Even though I didn't have evidence of it, I obviously had it, because the damage was done. I had to try four medicines before getting to protonix. All of the meds made my heart "flutter" and my chest feel hollow (only way to describe). Protonix seems to not negatively impact and the chest problems stopped. Doc says I will take this twice daily forever. Cancer is not a concern if a stay on the meds and keep the reflux controlled. For the first time last night, I ate after 8pm, all day today I had chest pain. He's right :) I have reflux. It causes my chest pain. It does not make it any less scary, but at least I know I can keep it from happening if I stay on track.
    mahindes 1 Replies Flag this Response
  • Hi - I'm a 56 year old woman and I was diagnosed with (minor) Barretts 2 years ago. My gastro doctors put me on Nexium - 1 tablet a day or I can take 2 if needed. I've just had my follow-up gastroscopy and the doctor said that the Barrett's is so tiny that it has almost disappeared. I will need another gastroscopy in 2 years time and if it has gone, then I'm all clear but have to take Nexium for the rest of my life to keep it away. I do have stomach inflammation at the moment and it seems that I might be lactose intollerant so I'm going to change my diet. Nexium, if agrees with you, is a wonder drug.
    Anonymous 42789 Replies
    • February 1, 2011
    • 06:23 AM
    • 0
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