Discussions By Condition: Gastrointestinal conditions

16 year old missing out on life

Posted In: Gastrointestinal conditions 28 Replies
  • Posted By: Anonymous
  • September 16, 2006
  • 07:13 AM

My 16 year old son started vomiting 2-8 times a day in Aug 2004. It continued until Jan of 2006 with a brief reprieve for about 1 month (June 2005). He was symptom free until Aug 2006 and it has started again. He was vomiting up just a little bit of blood yesterday and he vomited about 9 times today. He vomited when he was only drinking water and no food for several hours. He feels horrible. We have been to a pediatric gastroenterolist and she did every test she knew to do and came up with nothing. We have tried all kinds of medicines and some diets. He has been to an allergy specialist. The types of food doesn't seem to affect whether he vomits or not. The quantity might make a difference. He hasn't drastically lost weight because he is hungry all the time. Sometimes when he eats he keeps it down and sometimes he doesn't. Often he has pain just above his belly button. He has always been able to drink tea without much problem until today. Today he hasn't even been able to keep water down. He is sucking ice chips now. I am worried that he will be dehydrated. ( and I don't even know what those symptoms are).The only thing the doctors have found out of order is elevated eosiniphil levels in his colon. He was sleeping 14-16 hours a day until he started taking Melatonin 1 x a day before bedtime. He is able to wake up in the mornings now and is sleeping much less.= Now he doesn't vomit in the night but seems to feel worse during the day. His grand dad has central sleep apnea. Tonight we noticed that the palms of his hands are really red. Any suggestions. I have been just keeping a stiff upper lip until now. Can you help us?

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28 Replies:

  • Believe me -- I know how you feel. My 11 year old is doing almost the same thing. She threw up every meal and drink for about 3-1/2 months earlier this year. They told me it was an abdominal migraine -- her original symptoms were headaches, stomache pain around the belly button, vomiting and just wanting to sleep. After every test known to man, they decided it was abdominal migraine (which I had never heard of!); functional dyspepsia with cyclical vomiting. Phew. Finally. Now, how do you treet it? WELL ~ mixed answers there. After trying several migraine midicines (that didn't do anything other than make her cross or strung out), they decided to TRY Erythromycin. Liquid. she couldn't keep anything down, remember? So, finally I gave her the whole day's dose at bedtime and she just went to sleep. After about 3 months, she seemed better. Finally some things were staying down...yogurt, cheese, water...then after another month or so, the vomiting stopped and she "just" had diarrhea. I was thrilled because in my mind finally something was staying down long enough to digest at least in theory. WELL, the diarrhea went on every other day just about for the last 7 weeks or so. Three days ago, however, it all started over again. She is now vomiting everything she eats or drinks ~ again. Poor thing has 6 canker sores in her mouth again already, the pains around her belly button are more of a stabbing pain now and when she gets that pain, her whole body tenses up. She has also had 2 tinkle accidents -- one just standing looking in her closet and then last night while sleeping. she has never peed the bed in her whole life. something is so wrong and no one will figure out what. I am sorry your son is miserable too ~ believe me, I know what you mean about missing out on life. Good luck to you~
    Anonymous 42789 Replies
    • October 4, 2006
    • 02:56 PM
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  • First of all, if your son becomes dehydrated, he may have rapid heartbeat, sunken eyes, decreased urine output, poor skin turgor (pinch a small piece of skin between your thumb and forefinger, and then release it. It should spring back quickly. If it stays pinched for a couple of seconds after you let go, that's poor skin turgor), dry and sticky mouth, decreased saliva/tears. If he could sip on something like gatorade, or even pedialyte, that may help.Please don't be offended, but is it possible he has anorexia or bulimia and is hiding it from you? People who sleep alot can be doing so because of depression, and anorexia/bulimia can be a symptom, also, of depression. If the gastroenterologist did tests and didn't find anything wrong, and if this continues and you don't think it's bulimia, I would consider taking him to another doctor for a second opinion. I'm a nurse, but I can not come up with any new ideas based on your letter. However, as a mother, I would keep searching for answers until there's no where else to go.Right now, the best thing to do is treat his symptoms, and watch for signs of dehydration. If he becomes dehydrated, take him to his doctor or to the ER so he can be re-hydrated with IV fluids. Good luck. I hope he starts feeling better soon.
    Anonymous 42789 Replies
    • October 10, 2006
    • 05:18 PM
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  • to help eat crackers and bannanas, make sure you have enough watter in your system so you dont get dehidration.. I had a problem if I have soda or orange juice before I go to bed.. I will wake up and puke if I have it.. If I dont have soda or orange juice before I go to bed I am fine. I also took 1/2 a pepsic otc for about a week and my system felt a lot better to get back to normal.. hope this helps :)
    Anonymous 42789 Replies
    • October 17, 2006
    • 00:24 AM
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  • Hi, I know how you feel, My daughter is 10 1/2 years old. for the last 2 months she wakes up every morning at 5am with a stomach ache always around her belly button then will vomit 5-10 times, sometimes more ( always saliva) doesn't eat breakfast and then goes to school. She is usually feeling better by 10am. We have had lots of blood work, stool samples, and urine cultures and everything always comes back fine. (We are even seeing a therapist in case this is not medical) She is scheduled for an endoscopy tomorrow. And I'm hoping we find something, it is so hard to see her so upset in the morning. But other than not feeling well in the morning she is happy the rest of the day. If anybody has any suggestions or has had this problem and found out what it is please let me know.
    Anonymous 42789 Replies
    • October 17, 2006
    • 05:52 PM
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  • This is the second one i have read on here - this is from the cvs website - have a read and see if it matches the symptoms your child has. If it doenst at least that cvs is out the equation. Hope this helps.... Bonnie www.cvsa.org.uk CVS is characterised by recurrent, prolonged attacks of severe vomiting, nausea and lethargy, with no apparent cause. Vomiting persists at frequent intervals, 5-6 times per hour at the peak, for periods ranging from hours to10 days or more. It most commonly lasts for between 1 and 4 days. The episodes are self-limiting and tend to be similar to each other in symptoms and duration. The sufferer is generally in good health between episodes.In children vomiting is far from rare, as most parents can testify. However, CVS is very different from the normal vomiting we are all familiar with in children who are ill, eat too much or suffer motion sickness. The most obvious thing is that the vomiting doesn't stop. In adults vomiting in otherwise apparently healthy individuals is rare. Severe and constant, unremmitting nauseaOnset of vomiting is most commonly during the night or early morningRepeated vomiting, peaking at up to 5-6 times per hourRetching, often violentlyPallor, often extreme paleness of the skinHeadacheAbdominal painLow grade feverDiarrhoeaVomiting episodes may repeat with regular spacing of days or weeksLethargy or unresponsivenessDizzinessExcessive salivation, and/or spitting"Perplexing " or unusual behaviours
    Bonnie 2 Replies
    • October 19, 2006
    • 02:06 PM
    • 0
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  • I understand how you feel. It started 1 year ago with my 15 yr. old boy.He started waking up nauseas and feeling of having to vomit about 1-2x week. By 10-11 am he would be fine. Three months ago it started happing everymorning. He would wake us nauseaus and have to vomit till 1-2 pm. He couldn't eat till later in afternoon. He was weak and tired.Took him to Dr. he put him on a anti-nausea pill which he takes everymorning. (he sets his alarm at 5-6am) to take it, then goes back to sleep. So when he wakes up later, he doesn't vomit, but still feels crappy. This has been going on daily for 3 months. And him to, every blood test and CT test has been done with no results. He's suppose to have a endoscopy soon too. When he can eat, he doens't eat very well, not like a 15 yr old boy should! He's weak, tired, has headaches all the time. He is currently on home medical schooling because he cannot function in the mornings. He, however does not have any abdominal pain. Does have pain in his low back. I feel your frustration!!! They are in the prime of their youth, and their quality of life stinks!! And us as mothers feel helpless, although we are doing everything we can. You should ask your Dr. about a anit-nausea pill, it really helped my boy. If he doesn't take it, he too would be continuing to vomit daily. Hope this helps!
    bsmiller 4 Replies
    • October 20, 2006
    • 06:51 AM
    • 0
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  • Believe me -- I know how you feel. My 11 year old is doing almost the same thing. She threw up every meal and drink for about 3-1/2 months earlier this year. They told me it was an abdominal migraine -- her original symptoms were headaches, stomache pain around the belly button, vomiting and just wanting to sleep. After every test known to man, they decided it was abdominal migraine (which I had never heard of!); functional dyspepsia with cyclical vomiting. Phew. Finally. Now, how do you treet it? WELL ~ mixed answers there. After trying several migraine midicines (that didn't do anything other than make her cross or strung out), they decided to TRY Erythromycin. Liquid. she couldn't keep anything down, remember? So, finally I gave her the whole day's dose at bedtime and she just went to sleep. After about 3 months, she seemed better. Finally some things were staying down...yogurt, cheese, water...then after another month or so, the vomiting stopped and she "just" had diarrhea. I was thrilled because in my mind finally something was staying down long enough to digest at least in theory. WELL, the diarrhea went on every other day just about for the last 7 weeks or so. Three days ago, however, it all started over again. She is now vomiting everything she eats or drinks ~ again. Poor thing has 6 canker sores in her mouth again already, the pains around her belly button are more of a stabbing pain now and when she gets that pain, her whole body tenses up. She has also had 2 tinkle accidents -- one just standing looking in her closet and then last night while sleeping. she has never peed the bed in her whole life. something is so wrong and no one will figure out what. I am sorry your son is miserable too ~ believe me, I know what you mean about missing out on life. Good luck to you~yeah I had similar symptoms, vomiting up to 10 times a day, mouth sores, abdominal pain etc. I've been diagnosed with Crohn's, was on prednisone, 6MP, remicade. Remicade seemed to be the only thing that helped
    Anonymous 42789 Replies
    • October 20, 2006
    • 09:35 PM
    • 0
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  • My daughter is 8, we have been going thru similar events since the age of 18 months. She has had eeg, mri, ekg, upper gi and a full medibolic workup. She was digagonosed with cyclic vomiting 4 years ago and we still have not been able to find the right treatment. We have seen the "greatest" minds of New England and still no answers. She goes thru a 13 week cycle were she will spend 1 - 2 nights of vomiting every 20 min for 10 - 12 hours. light and sound sensitive, incredible sbdominal pain and headaches. We finally had her admitted to the hospital during a cycle and had a series of blood work, urine, GI and other work done. The blood work showed a hormone disorder that we are currently working with an endorinoligist to diciffer. We do not know if this is a second problem or a combination that might be triggering the vomiting. she also has bellyaches accompanied by eye pain in between cycles that seem to occur more frequenly as she comes closer to the 13 week time frame. We have tried, elivil, topomax,periactin imitrix, zofran and other. All are little to no help. Her cousin has a similar problem that occurs everyday, headaches and bellyaches. His peditrician had him start on Melatonin and after 3 days has had lessen his occurance by 90%.
    Anonymous 42789 Replies
    • November 16, 2006
    • 05:01 PM
    • 0
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  • hi i am 18 years old, i was recently diagnosed with rumination syndrome and i had many of the same symptoms. all of my tests came back perfect, the only test that will show rumination syndrome is a monometry. I would vomit even the littlest sip of water, i was extremely dehydrated and was always starving. It took a long time before i had a monometry done bc rumination syndrome is extremely rare in teenagers and most doctors are unaware of this test. Rumination syndrome is a motility disorder where the pressures in your stomach are too high causing it to push up (vommit) anything that is put into it. Good luck and don;t give up, it took me 8 months of my senior year before i could eat a meal without throwing up! This test is not offered many places either, i only know of 5 places in the country......columbus children's hospital, mayo clinic and kansas city childrens hospital are three of them
    Anonymous 42789 Replies
    • November 27, 2006
    • 02:24 AM
    • 0
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  • Ive heard of symptoms like this before, my ex boyfriend was complaining about the same thing, he said that he couldnt keep food down and every few minutes while i was talking to him, he would have to go throw up. Im seriously worried about him, as im sure you are with your son. If you get any useful information, please email me...xoBHSangel2009xo at aol . com
    Anonymous 42789 Replies
    • November 27, 2006
    • 02:15 PM
    • 0
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  • I've had the same symptoms since i was 14. I am 20 years old now. I've seen specialists, and have done every test known to man. Nothing shows up. I have come to believe that it is Cyclic Vomiting Syndrome. Doctors won't listen to me they give me Phenergan for nausea, shot of morpheen for pain, and ativan for painc attacks. I've been hospitialized countless times for uncontrollable vomiting with severe pain and nausea. All of the doctors think that it is psychological, and wanna put me on anti-depressants. I've tried all medication, including antiacids. I switched my diet many times. Cut out all unhealthy foods and tried vitimins... NOTHING HAS HELPED. I started a new self treatment, crazy as it sounds, i started smoking weed. My parents even support it because it is the only way i can eat without throwing up. I only smoke when i am sick. So far it has kept me out of the hospitial. Its going to be a long hard journey. I feel your pain and I am sorry that you are going through this. I would love to talk with you more about this. I feel I have some useful information. I am a victim of this so i can help you. Email me at lyla_monique@yahoo.com
    a_tempted_fate 2 Replies
    • December 30, 2006
    • 09:26 AM
    • 0
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  • How did they treat the rumination syndrome?
    Anonymous 42789 Replies
    • January 7, 2007
    • 07:28 PM
    • 0
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  • hi i am 18 years old, i was recently diagnosed with rumination syndrome and i had many of the same symptoms. all of my tests came back perfect, the only test that will show rumination syndrome is a monometry. I would vomit even the littlest sip of water, i was extremely dehydrated and was always starving. It took a long time before i had a monometry done bc rumination syndrome is extremely rare in teenagers and most doctors are unaware of this test. Rumination syndrome is a motility disorder where the pressures in your stomach are too high causing it to push up (vommit) anything that is put into it. Good luck and don;t give up, it took me 8 months of my senior year before i could eat a meal without throwing up! This test is not offered many places either, i only know of 5 places in the country......columbus children's hospital, mayo clinic and kansas city childrens hospital are three of themin reference to the post aboveHOw did they treat the rumination?
    Anonymous 42789 Replies
    • January 7, 2007
    • 07:47 PM
    • 0
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  • I came here hoping to find someone with the same symptoms as me, and hopefully some answers. While what you all are describing is close, it's not quite the same thing. This unidentified syndrome the children are suffering from definitely sounds like it is a 1) pediatric syndrome, and 2) NOT psycho-somatic. I HOPE the parents out there will PLEASE not fall into the trap that doctors set -- trying to make us believe that our child (the patient) is somehow creating physical symptoms due to a psychological problem. They will assure you that the physical problems "are real," followed by, "but... ." As a parent, tired and frusrated from weeks or months or even years of handling a sick child, you may be tempted to "buy" what is more accurately described as the doctor's "cop-out." The majority of them practice on the assembly line method, and having to search for such rare answers as "rumination disease," (things they've never heard of), literally stops the assembly line. Gotta move 'em in and move 'em out, simple diagnosis, simple treatment, or slap a psycho-somatic label on the patient and call it "resolved."I just spent 2 weeks in the hospital with severe abdominal pain and swelling (that swells so big it makes me look 7-8 mo. preg!), nausea, vomitting, and inability to eat & drink. This has been going on for 18 months, with it being severe the past 3 months: symptoms on a daily basis, unrelenting, and a 20lb weight loss. I think every possible test was done, except a PET scan, upper endoscopy, and exploratory surgery. I have a rare blood disease called APS, and they found a blocked artery to the area, but said that is not the problem. They found some bladder problems, but said that also is not causing the symptoms. My symptoms seem to differ from the pediatric symptoms listed above in that I have such severe swelling and less vomitting. I DO have complex migraines secondary to APS, so I was thinking maybe what I have been experiencing is abdominal migraines. I take 60 mg of morphine every 6 hours for APS and back pain, and that doesn't even touch the abdominal pain during an attack. Like the other poster, I, too, decided to use medicinal marijuana (discretely "prescribed" by a doctor for the complex migraines, and unofficially approved by the remainder of my physicians). It is illegal in our state, but it 1) works!, and 2) keeps me from going to the hospital at least twice a week for pain management (i.e., IV morphine). I had never used it prior to needing it for pain management; a cancer patient taught me how much to use, etc. Also like the other poster, after its use is the only time I'm able to eat anything and keep it down -- even Zophran by I.V. doesn't work on the nausea and vomitting like m.m. does. I can imagine it would be quite the moral/political/social issue within a family to consider using it for your CHILD, but given a serious enough illness, I know I wouldn't hesitate. I just couldn't allow my child to suffer needlessly AFTER I'd done EVERYTHING possible via the medical professionals, nor would I want my child stoned on narcotics all the time. (With m.m., you do NOT need to get stoned. You only need to use enough to treat the pain, NOT get high -- though I suppose some people probably CHOOSE to get high, just like some people choose to take 2 painkillers when the doc says to take 1.)I hope I added something of value to the discussion and didn't offend anyone. And if anyone has any info. that might be helpful concerning my particular symptoms (with the severe swelling), I'd appreciate a post from you.Thanks!Sue
    Anonymous 42789 Replies
    • January 15, 2007
    • 02:26 PM
    • 0
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  • What? An anti-nausea, anti-pain medication that increases appetite and isn't absorbed in the distressed digestive system?Almost too good to be true. :o
    Azaral 152 Replies
    • January 15, 2007
    • 04:17 PM
    • 0
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  • :) Hello There; have'nt had the pleasure. I 've had problems with my digestive tract, so to help it along i've started using turmeric. That's an ingredient in curry, can you imagine that? Well after using said, i've noticed a physical change as well as a outward one. To the best of my knowledge it's restored my system to normal. Dosege, the way i take is; one capsual, size 'o-o' per day. If my input is incorrect, please let me know. Thank You.;)
    hogndog 426 Replies
    • January 15, 2007
    • 07:38 PM
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  • Thanks EVERYONE!!!I am the mom that wrote the first post on this thread "16 year old missing out on life." My son is doing much better. He is going to try to go back to school next MOnday. All your responses helped me so much. He is only vomiting about every other day. Much improved. Thanks!!!
    Anonymous 42789 Replies
    • February 9, 2007
    • 11:18 PM
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  • :) your so very welcome; lets hear it from the boy...;)
    hogndog 426 Replies
    • February 9, 2007
    • 11:24 PM
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  • Ask your doctor to do a sonogram on your son. But, have them look at the stomach area, right above the intestine at the bottom of the stomach. Maybe he is not able to get the food into his stomach to digest it. It will eventually become bad food and he body will vomit. The intestine may have become to thin and the food can not pass thru to the stomach to digest it. It can eventually cause dehydration because the intestine will eventually close up. A surgrey can help. A small cut maybe 2 inches, they will cut the intestine muscle. Just think of a hot weinie as you are cooking it. It busts open to release. This is what the muscle will do, and it will allow the food to flow once again.My son had this problem, and I almost lost him. They ran all kinds of test, 2 spinals, etc. My son started losing so much weight. We had been to the doctor on so many occasion to find out what was going on and I finally gave up. First, they thought it was a cold, then reflux. It was just more and more meds to buy that didn't finx anything. Maybe this can help, just an IDEA! I for got the MEDICAL term for it. It begins with a P----!!! You can email me if needed at bccrisp@vvm.com
    Anonymous 42789 Replies
    • February 13, 2007
    • 10:25 AM
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  • Sorry I meant right below the intestine and above the stomach.
    Anonymous 42789 Replies
    • February 13, 2007
    • 10:26 AM
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