Discussions By Condition: Gallbladder conditions

Having odd symptoms. Can someone advise?

Posted In: Gallbladder conditions 10 Replies
  • Posted By: Anonymous
  • September 8, 2006
  • 02:43 AM

I have been having a strange fullness and sometimes pain in my upper abdomen. I also have IBS, but this is different. At first my pcp thought it was a virus, but it has continued for almost 2 weeks. I get nauseaus and belch alot too. Any help out there?

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10 Replies:

  • That sounds a lot like my gall stone symptoms~
    Anonymous 42789 Replies
    • October 20, 2006
    • 02:29 AM
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  • I Think I'm Having A Gall Bladder Atack, Its Got Al The Symptons--my Concern Is Cani Take Pain Meds To Cover The Pain.
    Anonymous 42789 Replies
    • November 3, 2006
    • 07:17 AM
    • 0
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  • Well, by now I suspect you've taken your meds. If it IS your gallbladder, it probably made it worse: opiates cause the valve between the liver and gallbladder (or where it hooks to the pancreas? No matter) to spasm, and let me tell you....not fun. MAKE the doctors test you, even if you have to threaten legal action. It took me in-pain and complaining, from age 8 to about age 35, all the while begging for help, and until the verrrry end, all I got in the way of "treatment" was the occasional finger up my butt (not nearly as fun as you might imagine.) and a script for the Donatal cocktail once in a blue moon. Oh, here's my favorite treatment "suggestion": "go drink your Mylanta, sweet heart, but if your tummy STILL hurts, you might try some Tagamet. Or warm milk with honey and ginger in it." Year after year after year. Bitter? Me? Why...yes.So, did the opiates, even if they made your stomach worse, make anything ELSE feel better? Then take 'em. That's my unprofessional advice. And get your gallbladder sucked out and hope it's not your pyloric valve. Toodles!
    Anonymous 42789 Replies
    • December 15, 2006
    • 09:12 AM
    • 0
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  • First of all, let me just say that the advice I give is not medical advice and should not be construed as such or used as a substitute for medical advice. That said, if it IS your gall bladder as you said what symptoms are you having? You didn't mention symptoms except that you thought you were having gb symptoms. If it is your gb then you do NOT want to take meds to mask the pain. If your gall bladder is diseased it needs to come out it is that simple...in theory anyway. Have them look for stones and/or sludge first. If they don't find either of those and your symptoms sound like gall bladder disease to them, i.e., a gastroenterologist dr., then ask for a HIDA scan - this will test for how your gall bladder is functioning (or not.) Let me also add the caveat that the reason I'm even answering this post is because of what I've been thru over the past 3 yrs and it's not been fun at all. From the very start of my personal saga (and yes, it's been a saga) 3 yrs ago, the gastro docs couldn't figure out what my symptoms of extreme nausea and abdominal pain were. After several tests they finally decided that it was my gb even though stones or sludge were not found. They decided this after runnung a HIDA scan was run which as I said previously tests for functionality. They said my gb had a "low ejection fraction rate" and I was informed that I needed to have surgery to remove it (laparascopic surgery aka belly button surgery.) What they did NOT tell me is that a vast majority of women that have lap cholecystectomy (gb removal) have the same symptoms return after surgery. This is now referred to as Post Cholecystectomy Syndrome. And further, for unknown reasons, women who end up with post cholecystectomy syndrome, in actality, have either (or both) early chronic pancreatitis and/or sphincter of oddi dysfunction (which is what I believe the other reply to your post was getting at due to the fact that the sphincter of oddi will go into severe spasms if morphine is administered and sometimes other opiate drugs but most often morphine) To make matters worse, not all gastro docs even believe that the above condition exists (sphincter of oddi dysfunction aka SOD.) They say it is as yet too controversial within the medical community and hence, the jury is still out (in their minds anyway) as to it's existence. If that's not bad enough most docs are also loathe to diagnose chronic pancreatitis since as scientists they need proof that the pancreas is diseased and the signs of that often don't occur until years of attacks have damaged the pancreas to the point that it has visible damage. They often won't call it "early" cp even though one of them said to me (the wisest thing he ever said and it's stuck with me because it makes such good sense) "EVERY disease no matter what it is HAS to start off at the cellular, microscopic level before it is visible to the eye even with ct scan, MRI, etc." Anyway, my suggestion: go to a pancreatologist (they only deal with pancreas patients) IF you've first gone to a gastro dr and they either can't figure it out or tell you that although there are no stones or sludge they believe that your gb needs to come out. And further, if your gb does need to come out think long and hard as to NOT having it done laparascopically (but bear in mind that they will most likely fight you on that point stressing faster recovery time (true but there's a HUGE possibility that if you're a woman you'll end up with post cholecystectomy syndrome due to chronic pancreatitis and/or SOD) Now before I close, one more word to the wise: acute pancreatitis is a totally different animal than chronic pancreatitis in that all drs have had a small amount of training in pancreatic disease and due to this if you ever have to go to the ER - drs are trained to look for high levels of digestive enzymes (called amylase and lipase) which do appear in acute pancreatitis (where you have attacks recovering fully between attacks) but often do NOT appear in chronic pancreatitis (an ongoing, daily pain and nausea only controlled by meds and nerve blocks), thus in their absence, drs with only a bit of training and also alot of gastro drs will tell you that you don't have pancreatitis due to the enzyme levels not rising. Go to the Johns Hopkins web site and find where they talk about the enzyme levels not rising in chronic pancreatitis and print it out to carry with you to show what I call ****s (Doctors In Need of Knowledge!!) Anyway, hope this helps and please post again after you've seen a dr.
    LauraD326 1 Replies
    • January 6, 2007
    • 04:18 PM
    • 0
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  • have any of you ever been diagnosed with other things as oppose to GB problems? I have been having problems since I was 14 and more so from the age of 19. I get seriously ill and was taken into hospital several times, and only in the recent admission was Cholecystitis diagnosed, but when no Gall stones were found, Dr.'s now say they're unsure!!!I have been driven crazy with so many diagnosis although I do understand I have a unique case, as I have a rotated bowel and have duodenal atresia (a blockage of the duodenum) as an infant, so now Dr.'s are looking for possible diagnosis around these. I have so far been told many conflicting opinions and due to the surgery previously nobody is too happy to operate on me!! What do I do?What were your symptoms?? I get severe pain mostly in the middle of the abdomin, bilious vomitting, severe constipation, spasms and other things which aren't so bad but are annoying like bloating in the whole abdomin. From previous experience does it sound like I have cholecystitis? and If anyone can find anything on my conditions and links please let me know, it's been going on for years!!!
    Anonymous 42789 Replies
    • January 21, 2007
    • 03:59 PM
    • 0
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  • I'm only 20 years old and I have had the same symptoms that you describe. Having experienced this, I should advise you to NOT take any pain medication that contains narcotics. If it is your GB or SOD, they will only make it worse. I was diagnosed with SOD in the middle of 2006 after an entire year of hospital visits. My GB was removed, but I still had the pain. Everytime I would go to the ER, they would just treat me with Morphine (which contains narcotics) and send me home. I would return a few hours later in even more pain! After about 30 visits (literally), they suspected that I was addicted to drugs and sent a pshych doctor in to evaluate me!! It was horrible! When I was pregnant with my daughter last year they ran a scope down my throat and checked the pressure of my esophigeal sphincter and later concluded it was SOD. My suggestion is to see a GI and tell him your suspisions. I was fortunate enough to see a doctor who studies about SOD, therefor he believes it is an actual condition, which it is! Talk to your doctor because when you start going down that road, you are mostly alone!!
    Anonymous 42789 Replies
    • January 26, 2007
    • 04:03 AM
    • 0
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  • I have a similar story. I was 22 and it was six weeks after I had my baby. Monday morning I woke up with horrible pains in my lower abdomin. My husband had to work so I took myself to the ER after sitting there with a newborn for 5hrs I was told it was a virus and that I should just go home. So I went home only to have the pain continue. I went to the ER every night for the next 5 days and each time they would send me home and say its a virus. Finally, that Friday I went to the ER and I could barely move it was so painful. My husband was beyond upset by now so he basically insisted that they admit me because this is not normal. They kept me overnight doing bloodwork and different tests. I was horribly sick vomiting I could not hold anything down and I was in terrible pain. Well, by the time the doctor came in the next morning I was in 80% kidney failure. They had no idea why and couldn't explain anything. After being in the hospital for 10 days getting every test under the sun they were able to get my "renal" level back to normal without doing dialasys, thank God. I thought it was over but it had just begun. That was in February, well for the next year I was in the hospital every month for at least 3-5 days. I would wake up at about 2 in the morning vomiting and in terrible pain. We'd go to the ER and they'd admit me and I have to stay for more testing. They could not figure out why this was happening to me so 6 months after this started I was back in the hospital with philonephritis(spelling) a very bad kidney infection, they had me get a psychiatric evaluation. They couldn't figure it out so it had to have been in my head, right? Well, the psych. doctor came in for about 5 minutes and said why am I even in here. There is nothing wrong with her head, she is sick. Needless to say, this continued on for 6 more months back to the hospital every month, during this time I was diagnosed with pancreatitis too. They tested and tested and even ruled out my gall bladder. Finally, after a year of this ***l, the hospital and doctors decided they couldn't figure it out and they were going to send me to SCRIPPS in La Jolla, CA. I went to SCRIPPS and saw this wonderful doctor . He asked my symptoms and went over all my paperwork. He said he was going to run this certain test because he had seen these same symptoms in a few other women he had treated but he was surprised because of my age and my general health. It was a nuclear dye test that basically they give you a shot in your veins you wait an hour and than your gall bladder "thinks" you have eaten so they can test the function. He started my test and was shocked to see my gall bladder was barely contracting at all. It basically wasn't working anymore, which was causing me to get so sick and have so much pain. I had the laproscopic surgery to remove it. 4 days after I got home I was back in the hospital with the same symptoms. I was done.. I thought it was over. Well, they had to send me to another hospital because they had left some "sand" in the liver duct so they had to do an indoscopy to suck the ducts clean. That was the worst year for me. I barely even new my baby because he was with my family so often because I could not take care of him. I am now 33 and I have had to learn what I can eat and what I can drink. I just have to be careful and take care of myself...I still have pancreatitis and I still get kidney infections but it's gotten so much better in the last few years.
    Anonymous 42789 Replies
    • January 26, 2007
    • 09:39 PM
    • 0
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  • Replying to LauraD326 -- your info reads like my symptoms. I am now into 2nd round of tests after gall bladder surg (via belly button). Get so sick from the same original symptoms and it seems no doctor has enough knowledge about "after g.bladd.surgery" to help. Surely digestive aids of some kind or some sort of cleanse could be of some help. Something is just not working correctly. I believe my problem started with Zetia for high cholesterol. I thought I might die on the 5th or 6th day and promptly stopped taking. Suspect it did some harm to liver and then a kind of domino effect on all the digestion. Appreciate your input.Kathleen
    Anonymous 42789 Replies Flag this Response
  • I had my gall bladder taken out after going to my gp with symptoms and being prescribed some medication for acid indigestion and then a month or so later i was in hospital at 3am with chronic pain and pumped full of morphine till they realised it was my gall bladder and removed it four months later!I still get the same symptoms but i also have many others but it is painful. I have same problem with bad docs not listening to the patient.
    sweetybandit_1 4 Replies
    • August 15, 2008
    • 00:14 PM
    • 0
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  • i am SO glad to hear this! Acute pancreatitis 6 yrs after gb out, always made dr at er say not possible no sign in blood work- must b acid reflux. i take previcid daily but i am on day 6 of not one bite of food from the pain. the 50 mg fen patch on my arm may as not be there. Thank u 4 that. here one more ? 4 u- i had cancer in left bottom lobe of lung also have MS from the chemo the most pain from my MS is mid spine where lobe of lung so close to both spine an pancreas. cancer was caught early but i have pneumonia in it 80 % of time. i am in so much pain i can't tell which one it is, even with blood pouring out of my mouth which my pcp says is lung infection. whats u thoughts? ps. i have no insurance, i no that plays a roleFirst of all, let me just say that the advice I give is not medical advice and should not be construed as such or used as a substitute for medical advice. That said, if it IS your gall bladder as you said what symptoms are you having? You didn't mention symptoms except that you thought you were having gb symptoms. If it is your gb then you do NOT want to take meds to mask the pain. If your gall bladder is diseased it needs to come out it is that simple...in theory anyway. Have them look for stones and/or sludge first. If they don't find either of those and your symptoms sound like gall bladder disease to them, i.e., a gastroenterologist dr., then ask for a HIDA scan - this will test for how your gall bladder is functioning (or not.) Let me also add the caveat that the reason I'm even answering this post is because of what I've been thru over the past 3 yrs and it's not been fun at all. From the very start of my personal saga (and yes, it's been a saga) 3 yrs ago, the gastro docs couldn't figure out what my symptoms of extreme nausea and abdominal pain were. After several tests they finally decided that it was my gb even though stones or sludge were not found. They decided this after runnung a HIDA scan was run which as I said previously tests for functionality. They said my gb had a "low ejection fraction rate" and I was informed that I needed to have surgery to remove it (laparascopic surgery aka belly button surgery.) What they did NOT tell me is that a vast majority of women that have lap cholecystectomy (gb removal) have the same symptoms return after surgery. This is now referred to as Post Cholecystectomy Syndrome. And further, for unknown reasons, women who end up with post cholecystectomy syndrome, in actality, have either (or both) early chronic pancreatitis and/or sphincter of oddi dysfunction (which is what I believe the other reply to your post was getting at due to the fact that the sphincter of oddi will go into severe spasms if morphine is administered and sometimes other opiate drugs but most often morphine) To make matters worse, not all gastro docs even believe that the above condition exists (sphincter of oddi dysfunction aka SOD.) They say it is as yet too controversial within the medical community and hence, the jury is still out (in their minds anyway) as to it's existence. If that's not bad enough most docs are also loathe to diagnose chronic pancreatitis since as scientists they need proof that the pancreas is diseased and the signs of that often don't occur until years of attacks have damaged the pancreas to the point that it has visible damage. They often won't call it "early" cp even though one of them said to me (the wisest thing he ever said and it's stuck with me because it makes such good sense) "EVERY disease no matter what it is HAS to start off at the cellular, microscopic level before it is visible to the eye even with ct scan, MRI, etc." Anyway, my suggestion: go to a pancreatologist (they only deal with pancreas patients) IF you've first gone to a gastro dr and they either can't figure it out or tell you that although there are no stones or sludge they believe that your gb needs to come out. And further, if your gb does need to come out think long and hard as to NOT having it done laparascopically (but bear in mind that they will most likely fight you on that point stressing faster recovery time (true but there's a HUGE possibility that if you're a woman you'll end up with post cholecystectomy syndrome due to chronic pancreatitis and/or SOD) Now before I close, one more word to the wise: acute pancreatitis is a totally different animal than chronic pancreatitis in that all drs have had a small amount of training in pancreatic disease and due to this if you ever have to go to the ER - drs are trained to look for high levels of digestive enzymes (called amylase and lipase) which do appear in acute pancreatitis (where you have attacks recovering fully between attacks) but often do NOT appear in chronic pancreatitis (an ongoing, daily pain and nausea only controlled by meds and nerve blocks), thus in their absence, drs with only a bit of training and also alot of gastro drs will tell you that you don't have pancreatitis due to the enzyme levels not rising. Go to the Johns Hopkins web site and find where they talk about the enzyme levels not rising in chronic pancreatitis and print it out to carry with you to show what I call ****s (Doctors In Need of Knowledge!!) Anyway, hope this helps and please post again after you've seen a dr.
    Anonymous 42789 Replies
    • February 13, 2011
    • 04:57 AM
    • 0
    Flag this Response
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