Discussions By Condition: Gallbladder conditions

Gallstones

Posted In: Gallbladder conditions 30 Replies
  • Posted By: Anonymous
  • June 4, 2006
  • 11:04 AM

I am 25 years old and was diagnosed with gallstones at christmas time 2005. I have been in severe pain for approx 6 years. I had been to literally hundreds of doctors through-out this time and no-one wanted to help. Doctors sent me home with pain killers which did nothing at all!! They still do nothing!

Extreme bloating, nausea, back pain, chest pain and constipation was what I suffered with during this time.
I have overdosed a number of times on pain killers hoping to get relief as the recommended "two" never worked. I have used heat packs, cold packs, massages, you name it, I've tried it!

Finally I was diagnosed with gallstones, I wasn't that "hypachondriac" that one doctor referred me as! Our health system here in Australia is appalling!
The day I was diagnosed, I had to pressure the doctor into giving me an ultra-sound, I needed an answer to this pain I suffered with for 6 years :(
He too was going to let me walk out the door.

Fat, female, forty and fertile are the four ways in describing someone who can get gallstones.

1..I'm not at all fat..never was. Since being diagnosed I had to severely change my diet. I have lost 9 kilos in the process

2. Yes, I am female

3. I am not forty. As I said, I developed this pain when I was 18-19

Now, anything I eat can trigger a severe attack. I usually wake around 2am in pain and stay this way until midday. My attacks seem to work in clusters. I could have up to 20 a month, then have not one for 1 month or 2.

I am on a hospital waiting list to get surgeory. However, I am looking at going private as I can't wait any longer! I've been told it could take up to a year to have surgeory through the public system. :(
With no health insurance as I am straight of university, this is going to be a costly process. But, my quality of life is suffering, my job is suffering. I am not the person I was 5 years ago.

I am very interested in meeting and sharing my story with people around the world.

I hope that people understand how painful this disease is.
I am very interested in meeting and sharing my story with people around the world.

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30 Replies:

  • Miss K,OMG! I thought I was the only one with this type of situation going on. If I was to start a conversation here, I could just copy and paste your post. Other than the fact that I'm in the US, am over 40, and fat.LOL I have been trying to get a doctor to find out the chronic, extremely PAINFUL!!! condition I've been going through for about 6 years with docs, but much longer because I just thought I kept getting food poisoning. It gets so bad I've often thought about putting an end to this pain. They always tell me it’s IBS, but I've never heard of anyone experiencing the pain associated with whatever "this" is and as bad as it is. I've had colonoscopy’s (3), barium x-rays (2), blood tests (can't even count), and the list goes on. I was even in the hospital getting a hysterectomy and had a flair-up with "this" whatever it is, and they put a tube down my nose to stop the acid in my stomach from making me regurgitate, they gave me meds to ease the pain. My point being no one knows what "this" is. I've been to 2 Gastro specialists (not many in my area), I've been to pain doc's, 4 primary care docs, 2 different radiologists for other tests, as well as 2 different hospitals. So I really can feel your pain, but it's a comfort to know it isn't just me. You may be wondering why I didn't post this in the IBS forum. Well yesterday, I went to out patient gastro under orders for yet another couple of tests, an ultrasound and an upper endoscopy. And guess what it revealed?I have gallbladder disease and must have it taken out immediately. The test showed many "mobile gallstones" as well as GERD, Hiatus Hernia, AcidPeptic disease and something with my liver! WTF!! These tests took only about 1 1/2 hrs and showed all that. How can IBS be detected for 6 years and in one day all of this?? I'm sorry for the ranting but I'm soooo *****d I can't see straight. This "IBS" has ruined the last 6 years of my life. And after reading your post I know your in the same situation. Can you get insurance from your state's social services? Not sure if you have that there or not but the US has a low cost medical insurance for people that cant get it through work and cant afford it privately? Good luck with your situation. *****d off in NC :mad:
    Anonymous 42789 Replies Flag this Response
  • Lakota,I was told by numerous gp's that I "just have IBS" until I demanded a ultra-sound to find out what was going on..I have finally set a date for my surgery- which is tomorrow, the 6th July :( . I am very very anxious about surgery but releaved that this pain I have suffered with for years, is finally coming to an end.I will keep you up-dated with how it goes.Your gallbladder buddy xx
    Anonymous 42789 Replies Flag this Response
  • MissKHope your op went well. I am assisting my wife who seems to have gallstones. She starts with chest pain and lower back pain on her righthand side. The chest pain subsides and she continues to have lower back pain. When you feel well enough I would like to hear if tightness or pain in the chest was experienced by yourself.Alexander (UK)
    Anonymous 42789 Replies Flag this Response
  • Hi Alexander, In answer to your question, yes I suffered chest pain when having a gallbladder attack. Tightness in the chest, along with a sharp stabbing pain between the ribs and shortness of breathe. I know how your poor wife feels It is compared to having a heart attack!I suggest she gets it removed ASAP, it has only been 4 days since my operation and I feel 150% already. I was in hospital for 2 days, been home for 2 and I'm starting to become mobile, even enjoying a short walk around the neighborhood this afternoon!! I had lap-choley surgery which is a shorter recovery time (4 smaller incisions rather than a huge 7 inch incision). It still hurts to sit up for too long, or to get up from lying down but I can guarantee it's nothing compared to what I went through when having the attacks. All I can suggest is that your wife follows a strict low-fat diet...I went totally dairy free, except for skim milk, and didn't suffer as much. However, in the last week towards my surgery, I had frequent attacks and even a glass of water would set off the pain. What helped me on occasion was lying on my right hand side with a hot water bottle underneath and deep breathing. I really can't suggest much except to get to your GP ASAP AND GET AN ULTRA-SOUND!! Pain killers DONT WORK and cause even more problems with your stomach if taken over extended periods!! I am still following a fat-free diet, and intend to do so for the rest of my life now, regardless that I'm missing that naughty gallbladder of mine!Let me know how she goes..
    Anonymous 42789 Replies Flag this Response
  • My son had his gallbladder out in Oct. he is 22, he was still having lots of pain and chest pain. It is his pancreas. They are not sure what is causing his pancreas to enlarge. They have done all the tests and his specialist is sending him to another specialist since he can not find the reason. They have told him he could die if they can't figure out what is causing it to get so big. If anyone has had similar condition please advise. We thought it was just his gallbladder (which when removed it was green and had no stones)so if anyone keeps having pain after gallbladder removal please see your doctor.
    Anonymous 42789 Replies Flag this Response
  • Let me tell you about pain!!! I was 6 months along in my pregnancy when my gallbladder suddenly tried to pass a stone!! I went to the hospital as I thought i truly was dying ans something was wrong with my baby! Well upon getting there the doctor informed my spouce that I was comming off of a narcotic as this was animaginary pain and he suggest that my husband take me to a clinic and have me treated for chemical dependecy, well when he was telling my husband this by the way not telling me or even looking at me I was *****d of and got put of the bed and literally triedto kick his butt(I know crazy) but when you are in that much pain and to have them not believe you and say that I am on drugs. Well thatgot me a ride up to the crazy floor where they tied me down to the bed and was going to let the drugs where off!!!! talk about being *****d, finally a nurse came in and i pleaded with here to find a doctor and check out the baby as i really thought something was wrong, after convincing he they did an internal ultrasound i think just to shut me up and found that I had a stone that was indeed trying to pass and it was huge!!! they dopped me up for 3 days where all I did was sleep and finally on the 3rd day My doctor removed my gallbladder while I was pregnant!! So to all you sufferers I know what you are going threw and Believe me you will always be your best adcocate for yourself so if one doctor isnt listening to your symptoms find one that will
    Anonymous 42789 Replies Flag this Response
  • Thank you ALL SOOO much for you posts. I have been experience many of these same painful symptoms for the past few years. Especially the bloating and constipation. (usually take a stool softener QD). But I have a question; has anyone also experience a very sharp pain, located sort of below the right shoulder/back area while sneezing? If I get a cold or suffer allergy issues, (anything that may cause repeated sneezing), I get struck with a jolt of pain that can literally floor me! Followed often a constant dull ache in the same area. If anyone experienced something similar....PLEASE let me know.
    Anonymous 42789 Replies Flag this Response
  • I experienced extreme pain under my right shoulder blade, which radiated to the front. I never experienced any pain like this while I sneezed.I'm well recovered now after having my surgery 4 weeks ago. Still hurts to lift things, but other than that I feel great. I am a completely different person, and the only way is up now! I have not reverted back to the fatty diet and in total I have lost 13 kilos!! Trying now to lose 7 more..... !!
    Anonymous 42789 Replies
    • August 12, 2006
    • 04:46 AM
    • 0
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  • I also had my Gallbladder removed after experiencing months of abdominal pain, difficult digestion and even fever. The special nuclear medicine ultrasound seems to be the gold standard for detecting problems with the gallbladder. I couldn't eat anything without getting sick. The worst of it was one night I was in so much pain and had a fever. I ended up having a seizure. They gave me a G.I. cocktail that numbs the stomach and makes you feel really drugged. I already had IBS and GERD along with surgery for that 4 years prior. I actually didn't have any stones but sludge which they said can be just as painful as the gallbladder and tube from it is inflammed and it was like gritty sand running through it. I had a laproscopic procedure and was sent home the same day it was removed. You experience pain in your right shoulder after the shoulder for a few days and still have to maintain a low fat diet. It cured my problem so your life should change dramatically after your surgery. I hate to see someone so young to lose those years in pain when don't have to. I was in my late 30's, 5'6" and 108lbs so you see it doesn't just happen to the overweight. I lost nearly 10lbs with my sick gallbladder before they took it out. My aunt was in her 70's and thin as well when hers went bad. I still have to be careful what I eat due to IBS with bloating and indigestion so it wasn't a complete cure-all, just took away the pain in the right upper abdomen that shouldn't have been there with the gallbladder. Best wishes for a fast surgery date and getting life back soon.
    Anonymous 42789 Replies
    • August 13, 2006
    • 03:52 AM
    • 0
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  • i ve just been told today from the doctor , after suffering months of pain that i have gallstones he as arranged for me to have a scan but it couldtake upto eight weeks.I have been in so much pain over the last week and i feel terrible, the doctor has told me to cut out all the fatty foods.i am 37 years old and my weight is 9 and half stone so i am not overweight could any one give me advise on what foods to eat::confused:
    Anonymous 42789 Replies
    • August 14, 2006
    • 02:22 PM
    • 0
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  • HI, I can understand what you are going through! I had my gallbladder taken out 1 year ago. I had severe pain. Why is it going to take 8 weeks to get a scan performed?? That is crazy!! Stay away from all spicy foods. Stay away from tomatoe products. Try to stay away from sodas. I was told that I had a gallstone and I needed surgery and I did not want to do it so I put it off. Then one morning I woke up in extreme pain and had to have surgery. Get this looked into soon. Surgery is very painful and it takes time to heal but you can get through it! If you have any more questions you can email me at winnerspopcorn@hotmail.comTake Care.
    Anonymous 42789 Replies
    • August 16, 2006
    • 03:43 AM
    • 0
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  • Wow! I'm so glad I found this site now I know I am not alone. I have been having all the symptoms of gallstones; bloating, gas, constipation, back pain, tender/sore upper right abdomin and more. On top of all of this I am only 19, and I have GERD and IBS, which does not help. The doctor said it is not uncommon for a young person such as myself to have gallstones, however as MissK stated above, I also am not 40...or overweight. I have been like this for months and been to the doctor repeatedly, nothing has helped. Finally I went to a doctor who suggested I get an ultrasound thinking that I may have gallstones, so this week I have one scheduled. I have just been sick of being called a "hypochondriac" which is the impression I get from most doctors, only making matters worse. So I have an ultrasound this week, I'm hoping is goes well. I feel better reading everyone's stories, it has really helped!
    Anonymous 42789 Replies
    • September 6, 2006
    • 01:54 AM
    • 0
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  • I had a problem with my gallbladder. It is not so severe to where I needed emergnevy help. It happened in 2004. I had been eating a lot of greasy foods and little bit of fruits and vegetables. When I work up for work i had this pain on the riight side of my chest. I am healthy and had no problems with my body before. So I thought, "No Big Deal." The pain would worsen when turn , bend, lay, sit, run--basically any kind of movement my body made. It took a week for me to go to the doctor. He told me that my gallbladder is working overtime ttrying to process all of the greasy foods I was eating. He also said I need to exercise more frequently and drink lots and lots water to help digest the food I ate. I took Motrins for my pain. Presently I am fine. No gallbladder problems for me.
    Anonymous 42789 Replies
    • October 19, 2006
    • 02:44 PM
    • 0
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  • Hi all it is nice to hear your storys I too have been having the problems with gallstones not for years but from what I have read it could have started giving me trouble about a year ago. I was having pain on my right side when sleeping and more during my monthly peirods. I went to my doctor she said felmale problems I went to a special doctor he said sis in my unteris he did surgery the pain went away for a month then it came back. I strarted not feeling very well and low engery. bloating , constipation. a few months ago I was getting tested for menapause and test said suger was high and liver count high.A month later I was having pain in back right side real bad for two weekends mostly when I went to bed it scared me so I went to the ER they told me gallstones my doctor sent me to a gastrospecilaist I told him gallstones he said IBS had me do all kinds of test up GI, lower GI everything test came back ok but I had two gallstones he said I had IBS I walked out call my doctor and told her to get me someone to take out my gallstones or I will change doctors I was on the internet and my problem are from gallstones I am now having problems eating sometimes I start to eat a low bland diet I feel like throwing up I am starting to eat less and less not sure what to eat. I hope by next month to have it taken care of.... I am overweight 45 years of age so I can stand to lose weight but I notice a while back my gut was getting bigger and bigger and I had not change much on eating. now I know why. so I hope to take care of it soon...
    Anonymous 42789 Replies
    • October 25, 2006
    • 00:33 AM
    • 0
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  • My father had a gall bladder surgery two weeks back as an open surgery. I was in the hospital for 4 days for recovery and then he came home. He was doing fine but after 4 days he had sever nausea and started throwing up. Could't eat/drink anything due to nausea.He is again admitted in the hospital and doctor has now diagnosed him with stomach bleeding.I was wondering if anybody had this situation. Also what could have caused this ?ThanksMTK
    Anonymous 42789 Replies
    • October 26, 2006
    • 05:42 PM
    • 0
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  • hI Here is my story it may help you. I was living with terrible tummy pains most of my life. The pain would come with out warning, I would be rushed to the hospital and they would say nothing is physically wrong. I had ultra sounds, upper gi series, nothing came of it. Nothing took the pain away. When I was 20, I was thin (have been all my life), I did not fit the bill for a gallbladder patient either. I was vomiting blood and I was yellow. They rushed me to the hospital and found that my gallbladder was filled with stones. I had it removed pronto. Weeks and months go by and I still have the same pain. Still yellow and very sick, they told me it was all in my head. Finally get sent to a specialist. I am not saying this is whats wrong with you, but it may be worth looking into. I had a scope (down the old thoat) yuk. They found that I was having spasms in my shincter of odie. That is the little muscle in your duedenum (not sure if thats spelled correctly) It opens and closes allowing bile to pass thru. Mine was not working, that caused the gallstones, liver problems and pancreas trouble. They ended up slicing it open. It was well worth it. This is rare, you may mention it. Like I said, it might not be true for you, but it was the reason for my gallstones. good luck and hope you feel better soon. I am 25 years old and was diagnosed with gallstones at christmas time 2005. I have been in severe pain for approx 6 years. I had been to literally hundreds of doctors through-out this time and no-one wanted to help. Doctors sent me home with pain killers which did nothing at all!! They still do nothing! Extreme bloating, nausea, back pain, chest pain and constipation was what I suffered with during this time. I have overdosed a number of times on pain killers hoping to get relief as the recommended "two" never worked. I have used heat packs, cold packs, massages, you name it, I've tried it! Finally I was diagnosed with gallstones, I wasn't that "hypachondriac" that one doctor referred me as! Our health system here in Australia is appalling! The day I was diagnosed, I had to pressure the doctor into giving me an ultra-sound, I needed an answer to this pain I suffered with for 6 years :( He too was going to let me walk out the door. Fat, female, forty and fertile are the four ways in describing someone who can get gallstones. 1..I'm not at all fat..never was. Since being diagnosed I had to severely change my diet. I have lost 9 kilos in the process 2. Yes, I am female 3. I am not forty. As I said, I developed this pain when I was 18-19 Now, anything I eat can trigger a severe attack. I usually wake around 2am in pain and stay this way until midday. My attacks seem to work in clusters. I could have up to 20 a month, then have not one for 1 month or 2. I am on a hospital waiting list to get surgeory. However, I am looking at going private as I can't wait any longer! I've been told it could take up to a year to have surgeory through the public system. :( With no health insurance as I am straight of university, this is going to be a costly process. But, my quality of life is suffering, my job is suffering. I am not the person I was 5 years ago. I am very interested in meeting and sharing my story with people around the world. I hope that people understand how painful this disease is. I am very interested in meeting and sharing my story with people around the world.
    horsecrazy1 8 Replies
    • October 27, 2006
    • 02:16 PM
    • 0
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  • HI,My name is Jamila, I had gallstones right after I had my first child. I didn't know what the pain was either... I went to the doctor and she did some xray and it came out that I had gallstones. I had it removed and I thought that was the end but it wasn't. I still have constant pain... I usually have a attact in the mid morning and I sweat real bad... It seems if I need to go back to the doctor again.... Hey, You can email me at jamila26richardson@yahoo.com to respond to this if you feel like it... I am signing off.
    Anonymous 42789 Replies
    • November 10, 2006
    • 06:10 PM
    • 0
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  • thank the lord i came across this website now i know i am not going crazy The pain i have been in is unbelievable Hope you are feeling better missk i kept thinking it was in my head but after reading all the letters here knowing i am not alone makes me feel better Ifeel fine on first getting up but seem to deteriorate over the day cant keep any food down even without eating i vomit Can i ask did moving worsen the pain i am seeing a specialist soon will now really push for something to be done Thank you all
    mssaab 1 Replies
    • December 19, 2006
    • 09:42 AM
    • 0
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  • I have had an acut attack 2 nights in a row after eating greasy meals. I have gallstones, and have stayed away from greasy foods etc. I went to see a surgeon but he wasn't too sure i had pain from gall stones because my pain was all over my stomach, I really don't remember it being isolated on my upper right side, the pain was so severe it felt as though it was all over my abdomen and back. Has anyone had these symtoms????????
    Anonymous 42789 Replies
    • December 22, 2007
    • 07:40 AM
    • 0
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  • I am 25 years old and was diagnosed with gallstones at christmas time 2005. I have been in severe pain for approx 6 years. I had been to literally hundreds of doctors through-out this time and no-one wanted to help. Doctors sent me home with pain killers which did nothing at all!! They still do nothing! Extreme bloating, nausea, back pain, chest pain and constipation was what I suffered with during this time. I have overdosed a number of times on pain killers hoping to get relief as the recommended "two" never worked. I have used heat packs, cold packs, massages, you name it, I've tried it! Finally I was diagnosed with gallstones, I wasn't that "hypachondriac" that one doctor referred me as! Our health system here in Australia is appalling! The day I was diagnosed, I had to pressure the doctor into giving me an ultra-sound, I needed an answer to this pain I suffered with for 6 years :( He too was going to let me walk out the door. Fat, female, forty and fertile are the four ways in describing someone who can get gallstones. 1..I'm not at all fat..never was. Since being diagnosed I had to severely change my diet. I have lost 9 kilos in the process 2. Yes, I am female 3. I am not forty. As I said, I developed this pain when I was 18-19 Now, anything I eat can trigger a severe attack. I usually wake around 2am in pain and stay this way until midday. My attacks seem to work in clusters. I could have up to 20 a month, then have not one for 1 month or 2. I am on a hospital waiting list to get surgeory. However, I am looking at going private as I can't wait any longer! I've been told it could take up to a year to have surgeory through the public system. :( With no health insurance as I am straight of university, this is going to be a costly process. But, my quality of life is suffering, my job is suffering. I am not the person I was 5 years ago. I am very interested in meeting and sharing my story with people around the world. I hope that people understand how painful this disease is. I am very interested in meeting and sharing my story with people around the world. living without gall bladder is torture for the rest of the life, why not get treated in a way so you can get rid of the gall stone and keep the gall bladder as well?If interested mail me grain_compass@hotmail.comfor the time being refrain at all costs from rice, white flour products, coffee and alcohol. Go veggie as much as possible.
    hakeem 3 Replies
    • January 22, 2008
    • 01:03 PM
    • 0
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