Discussions By Condition: Fibromyalgia

Vitamin D - I hope this helps someone

Posted In: Fibromyalgia 18 Replies
  • Posted By: snowball40
  • October 3, 2007
  • 04:24 PM

FOR PAIN IN JOINTS: I have fibro. I am only 39. The pain was getting unbearable and I felt like I was 100 years old. Recently a friend told me that she had pain in her joints, depression, confussion etc... Her excellent doctor tested her for Vitamin deficiencies. She was low in Vit. D. Her doctor put her on a high dose. We live in the Northwest so we lack sunlight.
Well not long ago I started taking calcium, magnesium (Good for pain relief as well.) and zinc. (A little higher dose then recommended on the bottle) And 1600 IU of vit. D. I am feeling better. Much better. I do not ache the way I used to. I am still going to see my doctor and have that vitamin test done. I want to feel completely normal.
*Too much Vit D can be dangerous.

FOR DEPRESSION: I take L-Tryptophan (Found in turkey meat) It is a supplement. I use Source Naturals brand. It has helped me through very deep depression...suicidal thoughts etc... I did not want to use those other meds for depression....none of them worked on me and the side effects and withdrawls were ***l.

I hope you see a difference like I have. I was really praying for a miracle and I think I found it. I noticed right away. Look up Vitamin D and fribro on google and see what you find. I am so enlightened.

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18 Replies:

  • :)Hi there,I will certainly try your suggestion. I also have aching joints, sore muscles and am on antidepressants. Thanks!Kind regards, Debbie Ann
    Debbie Ann 1 Replies
    • October 9, 2007
    • 08:21 AM
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  • dear snowball,I wish I had found your very helpful post sooner. I agree with you 100% about the Vitamin D and what can happen to a persons health if they have a deficiency in it. You see, I too was sufffering with debiliatating symtoms of bone pain, nerve pain, memory loss, and a diagnosis of osteoporosis, PLUS, osteoarthritis in my spine, neck, fingers, wrists, etc. and ontop of that, I just found out two weeks ago that I also have fibromyalgia. I had to go for a follow up visit for it and my rheumotologist who I just started going to, asked me how I was doing and I said worst, so he thought of running a vit. D test on me and we wound up finding out I had an extremely low level which is causing all my bone problems. I was flabergasted and shocked to find this out.I never knew how vital it is for out bodies to have a sufficeint amount of vitamin D in it. without it, it can cause such illness and pain, not to mention I thought I was losing my mind. my memory that is. i'm only 47 but felt I was in a body that was age 100. I thought I was getting early stage alzheimers disease because of my memory problem.everyone kept saying it comes with getting older, but to me, this was not just some common memory loss that comes with aging and not to mention to me that the aches and pains come with aging. so I am thrilled beyond belief that I finally have an answer to my medical problems and I can now start getting better and hope i can now get a full time job and keep it.I was just let go at the beginning of the month due to many days I was out because I was too sick to go to work. all I wanted to do was lay down and sleep. it wasn't depression either. I knew that much.so once again, I thank you for your posting such a very helpful and very important fact about vitamin D deficiency and that not enough doctors even think of running this simple test.sincerely,linda
    lintek 26 Replies
    • October 31, 2007
    • 05:07 PM
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  • Hi,I'm just passing thru. Actually I was doing a google search and this message popped up.I just wanted to say that I have been taking a super multivitamin for several years and my lab tests just showed that I have a vitamin D deficiency and I was totally shocked. I also eat my own fresh eggs and eat real butter. I do eat salmon pretty often too. I plan on purchasing some sublingual D3 to see if that will help. I supposedly have IBS and also no gallbladder. Don't know if that has anything to do with my low levels or not.I've been to many doctors and they never checked my Vit D level.
    hayley3 11 Replies
    • November 9, 2007
    • 08:31 PM
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  • yes hayley3,I read somewhere that if you have digestive problems and you do, that it can be the reason of the deficiency.your body is not able to either process it or able to produce it maybe?I have to search it again to find out the reasons for the deficiency.I'd be shocked too if I'd been taking supplements that many years and find out I have a deficiency.what symptoms were you sufffering if I may ask?I like to compare and see if they're similar in nature to mine.what exactly is that type of supplement you're going to add?what is the difference bet. regular D and the one you want to take?I think more doctors should be made aware of this deficiency.this day and age people do not suffer with rickets.I was watching a program here in NY, a weekly show that takes place in an emergency room. the people's stories are replaced by real actors but some of the drs are the actual dr's.they discuss complicated cases, mystery cases and how they solved them.one of the cases was about a very young boy who's parents brought him thru the ER. he suffered in extreme pain in all his body. his bones, etc.they thought he at first had leukemia, but tests showed negative.when they finally realized it was rickets, the doctor was absolutely shocked that someone this day and age would suffer with this deficiency.they even called social services to come and investigate the parents thinking they were not properly taking care of their child nutritional wise.well they found out why after they asked them what his diet consists of.he is a very picky eater and would only eat something like hot dogs.what ever the food was, it was not a healthy choice. he wasn't getting any type of other vitamins in his diet.just thought I'd share that with you.Linda
    lintek 26 Replies
    • November 10, 2007
    • 02:30 PM
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  • Hi Linda,I just purchased some Twinlab sublingual D3 with Vit K. I bought it at IHerb.com cheaply.I have the same symptoms as you. The memory loss was scaring me. I hope the D3 helps. I quit my career in 2000. I also have a thyroid problem which is how they found the vitamin D deficiency, and the thyroid problem has been undx'd for yrs. So which symptoms come from what, I don't know. I do have a spinal arthritis but it is autoimmune/inflammatory. I think all arthritis is inflammatory, but don't tell the rheumatologists that. LOL And of course I have osteoporosis, since my 20's. So yes we have a lot in common. I really need to work too, but can't. How are your eyes? How about your teeth? I have trouble driving at night because I get glare around lights and I have dry eyes, etc. I have 4 teeth that just broke. Not at the same time, but within the same year. I hate that. They say the Vitamin D prevents inflammation so that would explain all the arthritis if we are not getting enough Vitamin D. I really try to take care of myself. Raise my own eggs, make my own sourdough, limit my sugar intake, even had my own milk goat for awhile, but I could not get better. I have high hopes for this Vitamin D. I'm also going to purchase some eye vitamins, (I heard Bausch and Lomb was good at Walmart) because they are loaded with antioxidants, and I should be covered.
    hayley3 11 Replies
    • November 10, 2007
    • 03:26 PM
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  • The other poster was correct. If you have a liver problem, then this may be a reason why you are Vitamin D deficient. The liver synthesizes Vitamin D to 25-Hydroxy Vitamin D. The kidney's further synthesize the 25-Vitamin D into 1,25-Dihydroxy Vitamin D.I suspect that if you aren't properly processing the Vitamin D in your body, you may want to speak with your physician about your liver. When your doctor orders a Vitamin D test, they are ordering a test for 25-Hydroxy Vitamin D.Good luck!
    Anonymous 42789 Replies Flag this Response
  • To all who have contributed to this thread, thank you, thank you, thank you! I have Hep B & C, & have been feeling just dreadful for years. At 52 years of age, I too feel like I'm 100. I kept telling my drs. that I was constantly exhausted, drained, I've been taking antidepressants for almost 20 yrs, then developed mingraine headaches with the onset of menopause almost 2 yrs ago. No one understood how I was feeling, I became very depressed, had to end a 7 yr. relationship, & now am being laid-off at work at the end of this month due to the amount of time I've missed due to migraines. I went in to see a dr. covering for mine because my feet, ankles, & legs up to my knees suddenly became extremely swollen. They stayed like that for a week. They gave me a diuretic (Lasix) with an antibiotic in case of infection, & ordered (still more) lab work. I didn't know the dr. had ordered a Vit. D test, it never even occurred to me, or apparently to my regular doc. I got a call from this dr. telling me my Vit. D level was too low to measure. She told me that with results of 30 to 20, patients were put on prescription Vit. D. Mine was below 7, but they don't know how much lower, the test only went as low as 7. She rx'd some kind of MEGA Vit-D pills, you take one a week at the same time every week. (Don't have them with me, I'll post the rx later if anyone wants to know what it is) After the 1st one, I felt better. The 2nd day, I felt better, & actually had several hours that day I felt almost human! The 3rd day I felt ALMOST like the "old me," & the 4th day I felt almost "good"! Today was the 5th day, & when I (finally) woke up this morning, I felt like I'd hit a wall. I'm right back to where I was, & I still had 2 days to wait before I could take the next dose of Vit-D. I called the covering dr. (Kaiser) to find out if I could take the next dose tonight, they said "ok." If I take it & feel a lot better, I'll be convinced that the Vit-D deficiency has been the culprit all along. I wish (as I know all of you do) that someone had thought to check for vit. def. years ago. I've lost an inordinate amount of my eyesight~once it started to go, it went downhill much faster than just "old age" would account for. Like others here, my memory was failing to the point of thinking I was starting with Alzheimers. The depression was unbearable at times, & I had many, many thoughts of suicide~ getting massive amounts of grief at work, & feeling like I could barely force myself to function throughout the day. All I wanted to do was sleep, eat (mostly sweets) & "rest", even though I had nothing to rest FROM. I'm also vegetarian, have never been a milk drinker, but do eat dairy sometimes. I was just wondering if anyone else has had similar symptoms, if they've taken the rx'd Vit.D, & if they found it to be helpful. Thanks so much for all of your input & info~it's too bad that the only people who will see it, are the people who already know they have a problem. It's the UNdiagnosed people that I really wish would see it. Take care, & good luck to everyone
    arielle 1 Replies Flag this Response
  • I'm glad you posted about the vitamin D as I'm sure you'll help many people.I was diagnosed with fibro for years but I actually had nutritional deficiencies. Vit. D was very low and now I take a megadose with the close supervision of an endocrinologist; it's been literally like a year to get the level up to the low normal range but I felt some muscle and energy improvement as soon as I started treatment. Note that over the counter doses are inadequate for some people, in my case it's possible a medication I take (anti-seizure) interferes with the vitamin D absorption which is not uncommon but still nobody investigated my vit. D level before diagnosing fibro. Also, awareness of vit. D deficiency and even the definition of what level constitutes deficiency has all changed in the medical profession in just the last few years, so I suppose anybody diagnosed with fibro prior to that might not even have had vit. D deficiency considered as a possible alternative (and curable!) diagnosis.The other deficiency I had was tricky--I had "low iron stores". The tricky part is that various doctors thought of me maybe having anemia given fatigue and muscle symptoms, but gave me blood tests just for outright anemia. These tests came back fine, because my blood level of iron was normal due to my body robbing the iron stores of my bones to keep that blood level up. They have to run more comprehensive panels to detect low iron stores--I think they checked ferritin, saturation and some other things. Having low iron stores is not as bad as outright anemia (you don't get that until the stores are all depleted) but can cause, yes, fibromyalgia-like symptoms. Completely treatable with supervised high iron doses. It's just that it was many years until I found a doctor who thought of checking for low iron stores not just low iron.At this point it's thought probable I don't have fibro at all--can't tell for positive until my nutrients get all the way up to optimal levels. Right now, with low-normal as opposed to seriously deficient levels, I have slightly weak muscles and slightly low energy. Not the debilitating muscle weakness and pain and whole body exhaustion I had for years. So maybe this will all turn out okay. I do wish I had been more aggressive about seeking further medical opinions instead of just accepting that I had fibro, but, hey, I was tired, and I didn't know what to ask the doctors anyway.Hopefully hearing about this might help some of you. Even if nutritional deficiencies don't turn out to be primary problems like they were for me they can certainly make it worse if you do have fibro, so hopefully you can get your doctors to be vigilant about properly screening for them.Good luck to everyone.
    jakkij 1 Replies
    • September 22, 2008
    • 00:41 AM
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  • Hi,I've posted so many times on this website I've been suffering from complete fatigue muscle and joint weakness and slight pain and other very unusual symptoms since the birth of my baby 8 months ago.I've seen about 15 doctors been to the ER about 4 times and not to many answers besides at one time I had elevated liver enzymes and my recent blood test was low Vit-D 17 to be exact. I've seen a rheumatologist and my ANA and all those other tests were normal.So I'm left with Vit-D could this actually be causing all these problems I'm wondering it just doesn't seem to fit...anyway I'm suppose to start taking Vit-D once a week for 12 weeks.I'm just curious as to one of the last doctors I seen suggested Fibromyalgia does it just appear one day? Because my illness started one day and never left.Thanks for listening I'm just lost within all these different possibilities I just need to feel better so I can take care of my babies.MAE
    mae3057 50 Replies
    • November 21, 2008
    • 11:12 PM
    • 0
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  • Arielle,What kind of Vit D did they use? I am going to try this but don't want to strike out by using the wrong dosage or brand. Thanks for all who posted about this it reinforces that this may be something that will work for me that I can afford.
    Born Sick 1 Replies
    • November 27, 2008
    • 01:24 AM
    • 0
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  • Arielle,What kind of Vit D did they use? I am going to try this but don't want to strike out by using the wrong dosage or brand. Thanks for all who posted about this it reinforces that this may be something that will work for me that I can afford.Read San Francisco Chronicle Feb. 1, 2009 Section E page 3 Sunlight is better than mild as a source of "not a vitamin" Dfood@sfchronicle.com Marion Nestle column
    Anonymous 42789 Replies
    • February 1, 2009
    • 09:59 PM
    • 0
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  • thanks for the post, sounds like issues my mother is having and i will have her tested now thanks to reading this....i have however found some controversial information on how vit d deficient is part of the disease process and taking a supplement may progress this...the link is herehttp://www.sciencedaily.com/releases/2008/01/080125223302.htm how do you know if what you are reading is crap or not? after reading now im hesitant in taking an oral supplement for my mom.... i also read that we in north america (well north of ny anyways) are in need of much more than the numbers known by conventional doctors..how do you decide what to believe??? a great fact sheet here http://ods.od.nih.gov/factsheets/vitamind.asp kindly,mnic
    Anonymous 42789 Replies
    • February 5, 2009
    • 08:46 PM
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  • You feel better because vitamin D is not a vitamin, but a secosteroid hormone acting immunosuppressive, just as steroids. You are probably not vitamin D-deficient at all, ask your doctor to test the active form of vitamin D: 1,25(oh)Vit-D. NOT ONLY the 025D (inactive form that is nothing but a "storage form") Your 1,25D level will probably be very high because of the chronic inflammation autoimmune diseases create, the body uses 025D to make 1,25D in inflammation, thats the reason youre 025D is low. Adding more fuel to the fire is not the sollution I'm afraid. If it was, I would have done it too. So even if you feel better because of the vitamin D supplementation, youre actually getting more sick subclinically because you are supressing your immunesystem. Read here and learn: www.bacteriality.comAnd here to get well: www.marshallprotocol.comAks questions here: www.curemyth1.org Learn more about Vitamin D in chronic disease here:http://bacteriality.com/2007/09/15/vitamind/ We have to accept that "normal vitamin D levels" are described for helathy people. Us that suffers from autoimmune diseases are not healthy and we are not sick beacuse we have low 025D, we have low 025D because we are sick, and supplementing will not make us healthy. Good luckBr¨Martin
    Martin78 8 Replies
    • February 5, 2009
    • 10:25 PM
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  • My Muscleskeltal specialist put me on Vitamin D supplements as levels were on the low side, and must say it did make a difference in my spine pain, so can vouch for this too :) http://www.undiagnosedillness.org
    Anonymous 42789 Replies
    • February 23, 2009
    • 07:25 AM
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  • Lord have mercy! You folks are all so right. I have not been tested but had joint pain got sick often with flu and colds, tingles in my extremeties, and was tired all the time. I have recently changed a few things in my diet. Vitamin D was one of them. A huge difference. I attribute my dramatic changes to vitamin D and the increase of N-Acetyl cystein in a product called Max GXL and choosing to eat more vegetables and less of a high sugar and high fat diet. I so noticed the difference in vitamin D that when I ran out for a week, I got sick in about three days cold and cough is going around... evidence that my levels are not up yet. When I was on vitamin D (and I work in peoples homes for a living) I was able to avoid the flu at all with everyone around me catching it including my own children. This has not happened in years past. Boost your immune system naturally, people. A coulple facts that I learned that may be helpful to others. We need D daily. Most prescriptions of D are of the old D2 and synthetic variety. Insist on D3. The daily recommended is a joke. Talk to a healing doctor like a good chiropractor. They are finding there is a connection to autism and low levels of D. Mine is Dr Suzanne Holmes in Champlin MN at Revolution Chiropractic Wellness Center. They do chiropractic the right way. They don't just attribute spinal adjustments as the only answer. With her help we have learned about many of the pieces of the puzzle. Holistic. For the whole person. She is continuing to study the most recent research out there. Informed us that not all D tests are alike. You need to ask for the right D test, too. Not all D vitamins are good. But I have been taking 10,000 of D3 morning and evening. Yes, twice a day and when I do, I have not caught the flu or colds or been sick like every year past for many years. I was truly amazed at this little vitamin and its benefits. MAX Gxl gave me my wife back. She has been fighting with MS for years and in less than 6 months has been able to walk normally and quit using a mobility scooter. It's amazing. She chose to eat an antiinflammatory diet - no sugar, and drink 1/2 her body weight in oz of water daily. She chose to detox her liver and found out that her glutathione levels were so low that the Max GXL totally turned her health around. We were so impressed that we started helping others with their energy issues. It doesn't cure or treat disease but it certainly has improved our quality of life. Truly amazing. Me, I no longer want to sleep all the time and wake up every morning ready to go. Stress will do amazing things to our bodies. Stress in life, the stress of poor diet, the stress of lack of sunlight. We have to get to know our bodies. We are supposed to receive from the sun, not cover every bit of our skin with chemicals to block it. That's where we are able to get good doses of vitamin D but only when in direct sunlight... and how many of us are sitting out there with our feet and palms faccing the sun? Feel free to contact me... agwelman@gmail.com if you are wanting further information on these subjects. Otherwise, begin to think outside the box of the uninformed keep-em-sick-because-it's-profitable medical system, and you'll be happy. Too many cast a blind eye at research and believe only public radio and the CDC and the WHO. Believe me, I'm grateful for the medical advances and many people that have good and pure intentions that work in it, but the American medical model is killing us. There are answers! Yours are within your reach. God bless and later. The research is not new, my friends. The good book taught me "My people perish for lack of knowledge."
    Anonymous 42789 Replies
    • December 11, 2009
    • 02:58 PM
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  • I was recently diagnosed with vitamin D defiency. My doctor prescribed 50,000 per week for 8 weeks along with 1000 per day. I have also been so tire I had a hard time staying away anywhere I was and all I wanted to do was sleep. My liver enzymes are way up so I have to get this tested also. So everything that is posted makes since. I have been on the vitamin D a couple days and already am feeling some energy. I thought it was my iron level and had that tested, never thought of vitamin D.Linda
    Anonymous 42789 Replies
    • January 10, 2010
    • 07:51 PM
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  • FOR PAIN IN JOINTS: I have fibro. I am only 39. The pain was getting unbearable and I felt like I was 100 years old. Recently a friend told me that she had pain in her joints, depression, confussion etc... Her excellent doctor tested her for Vitamin deficiencies. She was low in Vit. D. Her doctor put her on a high dose. We live in the Northwest so we lack sunlight.Well not long ago I started taking calcium, magnesium (Good for pain relief as well.) and zinc. (A little higher dose then recommended on the bottle) And 1600 IU of vit. D. I am feeling better. Much better. I do not ache the way I used to. I am still going to see my doctor and have that vitamin test done. I want to feel completely normal. *Too much Vit D can be dangerous. FOR DEPRESSION: I take L-Tryptophan (Found in turkey meat) It is a supplement. I use Source Naturals brand. It has helped me through very deep depression...suicidal thoughts etc... I did not want to use those other meds for depression....none of them worked on me and the side effects and withdrawls were ***l.I hope you see a difference like I have. I was really praying for a miracle and I think I found it. I noticed right away. Look up Vitamin D and fribro on google and see what you find. I am so enlightened.Hey! be sure to have that vitamin D level checked before taking supplement so if your level is low it will be noted. I was misdiagnosed with Fibro, when I really just had low Vit D, or Osteomalacia.
    Anonymous 42789 Replies Flag this Response
  • hi i just read your message i myself have just been told my vitamin d levels are low and was given vitamins but it was my new doctor that tested me i had been taking very strong painkillers for 3 years my old doctor had me taking trammadol codrydramol and diclafenic and had told me i had artheritis this was a shock as i was only 23 and was living a healthy diet i was also told i was depressed and have taken every anti depressant under the sun and as you can guess they didnt work im just hoping that these vitamins work but am worried as i cant figure out why my levels are so low as im out in the sun almost everyday i have been looking into somthing called mallabsorbtion its when your body wont take in vitamins or minerals properly
    Anonymous 42789 Replies Flag this Response
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